Horrayy!!!

My hair is back... I've had hair growth consistently since October of last year.  I have patiently waited to write this post since the last time I tried I lost my hair again.

The doctors can't really agree (GP & Dermo) what started the loss but everyone is happy that it is back.  The hardest question I find myself thinking about is when will this happen again?  Or will it?\\

Has anyone found that they went through just a 2 year period of…

http://boston.cbslocal.com/2014/06/19/hairless-man-grows-full-head-of-hair-in-yale-arthritis-drug-trial/#.U6Q3wvUI1nQ.facebook

Hi Everyone,

I'm still giddy from my appearance on America's Got Talent on Tuesday night!!! The outpouring of love, support and encouragement I have received through websites, messages and social media has been overwhelming....I am moved to tears! You can see my audition in the full episode below. I'm the last act. I can't tell you how empowering it was to share my story and be seen by MILLIONS of people. I hope you are all inspired to live bravely and pursue your dreams. We…

In hairless man, arthritis drug spurs hair growth — lots of it

Read up this is brand new information. I think it's pretty legit as they mention Dr Christiano and her research.

Hello everyone.  I have had mild to severe cases of AA on and off since 1984, I was 13.  For the last four years I have been AU.   I know the longer you are AU the less chances there are for regrowth.

You can see my fantastic tattooed eyebrows I posted to AW.  I am very content with my AU.  I don't want to get too excited...........but......

...the reason I am writing today is I am starting to experience some rather strong regrowth on my head, eyebrows, and beard.  At this time…

Hey Folks,

I auditioned for America's Got Talent this season with my aerial silks act. My audition was filmed and will air on NBC at 8pm on Tues. June 17. During my backstage interview I discuss my experience with Alopecia and the challenges I had to overcome in continuing my career as a performing artist. I even took my wig off while I was on camera!! I hope to be an inspiration to others in helping them overcome their fears, to look beyond their physical appearance and to live…

I wasn't going to post this because it is just me getting my thoughts down to help me make sense of it all, and really, there can't be anything new to it in this group. But now that it is all typed, I find I want to let it out. It is just my personal story, not meant to instruct, inspire, or shatter the earth.

Confused.

How was it that I found myself walking around the children's museum, uncomfortably hot in a knit cap? 

It probably started this morning when my husband…

March 2013:

I literally woke up one morning and got ready for work and while brushing my hair I noticed that my brush felt strange on the right side of my head right behind my ear. I started feeling the area and felt that there was NO hair in that entire section. I frantically moved my hair aside and looked at it closely in the mirror. There was about a 3 inch rounded section of baldness. I immediately began to cry and wondered what was happening to me.

I didn't know what this…

I call it strange as it's strange to see. I first noticed that was some regrowth towards back and side of my normally 99.9% bald head (some reason I have always kept a very small patch of hair right at back of my head I never shaved off).

I ran my hand over my head and felt hairs never felt before. I couldn't see them in the mirror so took a photo and yep there was fine hairs appearing towards back and sides. I wasn't going to get too excited as I've seen this happen a number of…

I've been through so many stages of this disease in the past 12 months.  And each has been harder to accept and deal with than the one before.

First, last summer, I watched my little soul patch be whittled away to nothing.  But it still seemed to be locally confined to my face.  I hated the random patches where whiskers still persisted, and explored permanent removal of lingering hairs and endured hundreds of shots, but the fight was a losing one.

Then, this January, I was…

I have been experiencing a great amount of regrowth lately and have come to realize that after all my praying and wishing to have hair I don't really want it. I have lived my whole life without hair and it just seems alien for me to have long hair. I realized that I actually prefer being bald to having hair. I am actually scared to have hair. The idea of no longer being bald scares me. I do not want my hair to grow back in I want to stay the same.  I mean it is exactly what a lot of us have…

Hi there: We have a question about the best way to care for a natural (non-synthetic wig).  My sister has conflicting opinions from the two different places where she has purchased wigs and has them cared for.  One place says the wig should not be blown dry, but should dry naturally - the other place says they have a special wig dryer which they use and does not damage the wig.  THe problem is that the wig must also have alopecia because the hair is beginning to fall out. . . The place where…

Three years ago today, I finally got my head AND sideburns shaved off, just to see what it was like. Very free-ing, kind of exotic, funny. What the heck, eh? I spent parts of that summer with nothing on my head for road trips or at home, and am grateful for the understanding friend who helped me go through that first process. Even though I still wear wigs to work and a funky cloth hat at other places, I intend to go wigless at my alopecia support group meeting today…

Please how do I except this I'm like a freak , I used to be beautiful now I'm a different person. How do I get past this ???

I know this is hard for a mother..  my Mom always wanted to "give me her hair"  hold your daughter in your arms and let her feel your love and encouragement. It will be O.K...  don't be sad Mom she feels it..  it is beyond anyone's control...  yours or hers..  be happy you have a sweet daughter.

I have AU..  no hair anywhere..  my friends and family still love me.. maybe even more.  It is a bonus she has an outgoing personality.  It is a rough road no doubt..   but with love and…