All Blog Posts (5,826)

My insurance covers a wig

I called my health insurance to see how it works for them to pay for a wig for me. They said I make an appointment and the doctor prescribes me a wig. Does anyone know if there is like a specific list of places I can choose from or can I get it from anywhere? If I can get it from anywhere, I'd like to get the best wig possible. I do have hair that's like 1/2 inch thick so any suction wigs will probably not work.

Added by Jennie on July 24, 2014 at 11:00pm — 2 Comments

Should you feel that you have to explain? NO but I do

A couple of years ago I was on holiday in the Dominican. One night,in the restaurant, the man on the table next to ours started asking me about my hair! Wig. He asked me how I had got it curly and if it was permed. I replied that it wasn't naturally curly and smiled hoping that would be that. But his wife kicked him under the table and apologised to me for her inquisitive husband. He told her 'shut up -you don't know it could be a WIG', enough was enough so I said 'well yes actually it is a…

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Added by wisteria on July 23, 2014 at 10:00am — 37 Comments

Help!

Hi! I was diagnosed a few months ago and recently my head has become more itchy and I don't know whether ya paranoia but I believe my patches are getting bigger - are they any warning signs I should look out for incase this starts to turn into Totalis?

Added by Chelsea on July 22, 2014 at 12:02pm — 4 Comments

ITCHY!

Hello everyone!

I was wondering if anyone could help me out! The bald spots on my head are SUPER itchy. Is there anything i can do to stop it from itching? 

Thanks,

Sara

Added by Sara on July 22, 2014 at 8:00am — 1 Comment

What's the cure?

Or should I say, what am I trying to cure? My hair started falling out when I was 9. I've lost "love", been angry, been depressed, been there... I'm done with that. I don't care if there's a cure for hair growth anymore. I can only hope that there's a cure for insecurity, shallowness, and feeling left out. Self acceptance? Emotional growth? It would be like trying to find a cure for a dysfunctional society. I wonder who made these crazy rules anyway. Stupid rules about how everything should…

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Added by CandiiP0w3r5 on July 21, 2014 at 9:11pm — 1 Comment

Keranique

Anyone ever see the info out there about Keranique products to regrow hair ??????

Added by Kat on July 20, 2014 at 7:20pm — 3 Comments

San Diego area International Alopecia Day event on August 2

If you're in Southern California, join us for an International Alopecia Day luncheon in San Diego on Saturday, August 2. Bonus: I'm planning on going on a Bald Mannequin Project photo shoot in the nearby mall after our lunch for those who would like! Celebrate the 5th annual IAD with us from 11:30am - about 1:30pm at Cozymel's in the north part of San Diego near I-805. Private room, party! Please RSVP to me if you would like to come. Family, Kids, Friends are welcome. Bald is optional -…

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Added by Mary on July 20, 2014 at 1:52pm — 4 Comments

Random upset

As I've had alopecia for ever I feel really strange to find I'm crying over a loss right now.
I'm unsure the trigger but just been thinking how sad I'd feel to loose the random patches of regrowth although there is no guarantee it will even stay. But what has caused it to come? What was the trigger to cause it to grow? Why can't I work out what I've done differently to keep it growing? Why am I even bothered? And why right now do I feel so sad over it.... not a good alopecia day :(

Added by KFlame on July 18, 2014 at 2:00pm — 4 Comments

Sad in Chicago

Just found you guys....I was diagnosed with FFA last year after going round and round to docs looking for reasons I was losing my hair, only to be told I had female pattern baldness, but it proved to be a much more specific diagnosis and I hate it.  Losing from the front to back is just weird and there does not seem to be anything to do about it.  I have lost most of my eyebrows, all my face fuzz, arm hair and leg hair, as well as my ridiculously receding hairline front and by my ears.  I…

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Added by Sad in chicago on July 18, 2014 at 1:10pm — 7 Comments

Dyeing a wig?

I have a black lace front wig and it's not the colour I want. It's real hair.. Has anyone ever dyed a Black wig like stripped it and then coloured it the colour they want. I'm thinking a chocolate brown colour but I don't want to go ahead and do it as if it messes up that's a lot of money ruined..

Added by Natasha on July 17, 2014 at 10:30am — 5 Comments

I'd like to offer support for anyone!

Anyways long story short AU since 96. So I've been through a whole lot. I found myself to be a strong person and AU has never really stopped me, the people I've met here tells me they wish they had my spirit.

Feel free to message me I do check this quite often.

 Remember you are not alone!

Added by Nammer on July 16, 2014 at 12:00am — No Comments

Can arthritis treatment trigger hair growth?

I have suffered from Alopecia since I was about 9 years old. It hasn't been easy for me. I am 35 years old and still am not comfortable with my appearance.

Well, I am currently being treated for Rheumatoid arthritis. My current medications are Plaquenil 200mg twice a day and Neurontin 300mg three times a day(For nerve pain). I've been taking medication for about 3 months. As per web MD, "Plaquenil is used, usually with other medications, to treat certain auto-immune diseases (Lupus,…

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Added by Vivian N on July 15, 2014 at 8:00pm — 2 Comments

Having a really hard time adjusting

Having a rough time adjusting after being diagnosed, I've been through so much that last couple of months I've kinda been a wreck. Just didn't know if there was any support groups out there, I've always been the type of person to give someone the short off my back if there in need. I'm trying to stay positive and make the best out of the situation but it seems impossible , I've never heard of it till now nor did my family have history of it, is it really hereditary ?? Or is it stress ?

Added by Travis Tirrell on July 13, 2014 at 1:28pm — 5 Comments

My first time blogging on here & I don't even know where to begin

Been going through a lot of emotions lately, with myself and the others around me. Comin' up on 7 years in the fall. Man, I hate saying that. Just so tired of saying that, tired of myself and the efforts I feel like I must put forth just to feel pretty, natural and comfortable with myself around other people. I've been so tired of my hair, my locks of love wig piece. I've seriously had the same hair style for my entire high school career. Feeling so deprived and degraded a bit. I just don't…

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Added by Lishah on July 12, 2014 at 12:17pm — 2 Comments

It happened for a reason?

Seven years ago I finished chemotherapy for breast cancer. I waited for my hair to grow back, waited some more and then some.

To my horror and disbelief I realised I was waiting in vain. I spent the next 7 years trying to discover the truth, why my world had been turned upside down. Actually not only my life but that of my family too. I finally discovered I have become part of a dirty little secret of the drug Taxotere.

By now I was desperate for closure on this nightmare so I…

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Added by wisteria on July 12, 2014 at 10:48am — 1 Comment

The Fifth Annual International Alopecia Day is Coming Soon!

What are you going to do to celebrate International Alopecia Day this year?

Be a part of the fun as people all around the world celebrate and raise awareness.  Wherever you live, plan a party, an event, or just take a photo of your beautiful self on the first Saturday in August - August 2, 2014.  

Last year we had over 105 people from 22 countries - will your hometown be represented in the annual YouTube video?

Here's all you need to know:…

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Added by Mary on July 11, 2014 at 11:18pm — No Comments

My 7th anniversary

I"m just a little late on this post but it's now year number seven. Going on eight.

How time goes by so quickly. It seems like it was just yesterday when my alopecia came into my life. 

So tough those first few years. 

It gets easier day by day. Year by year.

Hugs to all,

Jeff

Peace!

Added by JeffreySF on July 11, 2014 at 2:00am — 8 Comments

I believe (alopecia can...)

I believe that Alopecia can kill us on the inside and leave us a physical shell with a defeated spirit. It almost did that to me. We MUST nurture and pamper our emotional selves (well, too much pampering is bad of course, but go easy on yourself for at least three years) during the transition from possessing hair (and, no, I don't mean owning a wig lol) to not anymore - of course, that is, if we don't come up with a no-side-effects cure - which would be totally kick ass. Then, being bald…

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Added by Laura Adams on July 9, 2014 at 11:00pm — 1 Comment

An Alopecia Poem by Laura

I, myself, have just no time to spare,
To fret, mope, or worry over hair.
But WHY are some compelled to stare? -
It's JUST a scalp! So what, it's bare?

 

- Laura Adams 6-8-14

Added by Laura Adams on July 9, 2014 at 6:00pm — 1 Comment

Another spontaneous Laura poem

The year was 1995
I had long hair;
I felt alive.
The hair was lost-
I ceased to thrive.
To accept the loss
First failed but strived.
And in the end 
Well, I survived!

 

- Laura Adams, July 9, 2014

Added by Laura Adams on July 9, 2014 at 6:00pm — No Comments

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