All Blog Posts (5,829)

My marriage story

If you read my previous post, you would know I was born and raised in a Islamic country with mandatory scarf from government, so I used to be pretty natural like other girls with my wig and scarf on it, tattoo brows and fake lashes. As I told, heavy make up for girls in very common and most of the girls and women in the street, shops, university and everywhere have very heavy make up so I was very natural.

When I was 19, very young! I met a guy at university and we talked together,…

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Added by sabina on January 19, 2014 at 8:30pm — 4 Comments

Freedom wigs

Has anyone in the United States bought a Freedom Wig from one of the dealers here? I'm really considering a custom wig and am thinking of contacting them.

Added by Stephanie on January 17, 2014 at 7:28pm — 1 Comment

Thank you

I am a 27 year old woman who has had AU since 13 years of age. At the moment I have no complaints because I am living a normal life with my loving husband and my two month old baby boy. This was not the case all my life.

To begin my story I start by saying in Trinidad and Tobago there isn't an awareness of this condition known as Alopecia, even among the doctors.

When my hair fell out both my mother and I were scared and didn't know what to do. Within a year we visited…

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Added by ria on January 16, 2014 at 6:00pm — 2 Comments

Wishing the mirror would lie

Tough week. I see it, I decide to take it in my stride, I figure the less I stress about it the less will disappear. Can't quite manage to convince myself. Wish I was as brave as alot on here. One day, but not today. Today is a day for tears .

Added by Luisa Maria on January 16, 2014 at 5:30pm — 2 Comments

My life

Hello, 

I am 27 Iranian girl, beautiful but bald.

In Iran, wearing hejab(scarf) is mandatory from government for women because of religious issues and religious government so I had the chance to hide my scalp easily like all other women in my country.

I was really busy with school and uni most of my life. 7 years ago I decided to start wearing wig, false lashes and tattooed my brows so I looked…

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Added by sabina on January 15, 2014 at 6:34pm — 1 Comment

Support group, Charlotte, NC

Good Morning ALL -

I am in the Charlotte NC area and am a support group Leader for the NAAF.  I recently relocated here from Texas.  My daughter is 15 and was diagnosed with Alopecia Areata at the age of 13.

When we moved here, I couldnt find support groups and since I was a leader in Texas I decided to form one here. 

Well if you are in the Charlotte NC area and are interested in coming out to the meeting this month, please contact me directly for the meeting info and I…

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Added by Carla on January 15, 2014 at 9:00am — 3 Comments

White "baby hair" type fuzz

Hi all,

Has anyone else experienced white very fine baby hair growing where previously bald? and if so does it thicken up, or change colour etc? and more importantly mean the hair is starting to regrow.

Any experience gratefully received :)

(I am not letting this latest development excite me at all by the way.)

 

Added by Emma on January 15, 2014 at 7:00am — 9 Comments

I have the diagnosis, what do I do?

Hi, my name is Crissy. In August 2013 I noticed a patch missing in my hair, went straight to the doctor, did all the medical tests and diagnosed my with Alopecia A. and then sent me on my way not able to help with anything or give me advice or coping strategies. Every strand of hair I lost came with fear, tears and confusion. Does anyone really know what alopecia is and how to make it stop? I now have almost complete baldness, my eyebrows and the rest of the hair on my body keep…

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Added by Crissy on January 14, 2014 at 3:30pm — 4 Comments

Alopecia recovery story and some advice!

Hi Folks,

I'm just popping by to pass on my experience of Alopecia Areata, I won't be hanging around as I'm not too social but I promised myself that if I recovered then I would post up how/what I did to help myself in case it helps anyone    - I hope it helps some of you. I know this will not be relevant to all of you.

I lost 2/3 of ALL of my body hair last year in June. It happened at an incredible rate and scared the living crap out of me. Looking in the mirror I felt like a…

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Added by Nj on January 14, 2014 at 3:00pm — No Comments

Seek and hide

Everyone loves a good game of hide and seek well me and Al' have rewritten the game to seek and hide.

I don't get the satisfaction one should get with the seeking part of this game but at least, for the moment, the hiding is quick and painless.

I'm Hoping this time I'll have my skills all down and covering up the evidence will be alot quicker. I guess I should be hoping that this time I care less about it especially as I'm loved so perfectly by someone that just loves me…

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Added by Luisa Maria on January 13, 2014 at 11:00am — No Comments

I'm taking control of my alopecia- it's not controlling me! Head shaved

I was having a routine hair cut in July 2013, when my hairdresser noticed a bald spot the size of a pea. I was upset but tried to put it out of my mind. Within weeks it had grown to the size of 10p then an egg size, soon bald patches were sprouting all over my crown and merging together!

Gutted is an understatement on how I felt. (Im 35years old.) But I was able to hide them by tying my hair up in a pony tail for about 4 months. In that time I never really noticed my hair falling out…

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Added by Emma on January 13, 2014 at 6:30am — 29 Comments

Any Los Angeles doctor recommendations?

Hi Hi All,

I am looking for a new dermatologist in Los Angeles, CA. Does anyone have any recommendations of ones they like and feel are very knowledgeable? I have had some great Dr.'s but they do not specialize or have too many alopecia clients. Any suggestions would be great and so helpful!

Thanks!

Added by KStew on January 12, 2014 at 6:30pm — 5 Comments

Lizzy Velasquez: She may change your life

Beautiful Women,

I just finished watching Lizzy Velasquez's Tedtalk video (she has been called the ugliest woman in the world.)  I think what she has to say is extremely powerful for women with Alopecia.  So many supportive people on this site echo her positive message, but she -- more than anyone I've ever heard -- provides the encouragement we need to see ourselves in a new way.…

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Added by Marie on January 11, 2014 at 4:30pm — 1 Comment

First wig

Hi All,

First post here... new member.

I joined because I was diagnosed with Androgenetic Alopecia when I was 18'ish (don't remember really).  Minoxidil was in trials then, and extremely expensive.  My parents provided me with it; and I hated it.  At $200/month, I just told them to stop it.  I was fine with my hair loss until recently (I'm 45 now).  About 2 years ago, I started investing in Toppik and lots and lots of hats... fortunately I wear them well.

My new year…

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Added by Coco on January 11, 2014 at 11:00am — 2 Comments

11-year-old daughter just diagnosed with alopecia areata

hi.my name is sian and i have a 11 year old daughter who has just been diagnosed with alopecia areata....only found out about 3 weeks ago so it is still sinking in...i saw this website and thought it might be useful to be in contact with people who have the same thing in common..

Added by sian on January 11, 2014 at 1:00am — 2 Comments

BREATHE

I'm new to this site, but not to this condition. I've been dealing with this solo for 20 yeas. As I'm reading some of the posts, I can only say WOW. Wow because for all of these years I've felt like I was the only one . I'm feeling so relieved and excited to be able to share my thoughts and feelings. Its as if I've been awakened from a long dream or should I say nightmare. I look forward to going through the healing process with others. As I look around I just haven't seen anyone who looks…

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Added by Jordan on January 11, 2014 at 12:38am — No Comments

In search of the underlying cause

My alopecia started about 13 yrs ago with a dime size spot on the back of my scalp. I had a few more patches over the next 10 years and steroid injections would get the hair to regrow.  About 2 yrs ago I lost 60% of my scalp hair. I went on an anti-inflammatory diet and treated the scalp with betamethasone and rogaine and my hair came back. After 6 months it started shedding again and now I am totally bald. To make matters worse, I have lost all facial hair including eyebrows and eyelashes. …

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Added by BOB on January 10, 2014 at 3:30pm — 2 Comments

New year, new challenges, new opportunities

As another year begins, my thoughts are on moving forward.  I don’t officially make resolutions but I do think of the past year and what changes I can make to improve my new year.

This year I’m going to continue working on three things:

Get off of auto-pilot.  Try to do things a bit differently every day.  For example, drive a different way to the store or anything that just makes me think before I act.

Be the change I want to see.  Many times I think of…

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Added by Cheryl, Co-founder on January 10, 2014 at 3:30am — No Comments

Back online again

It's been a long time since my last visit here, and a long time since my last blog post. A lot of other things have kept me very busy; my study at uni (which I am almost done with already), work, projects, friends and moving to Sydney and back.

In my last blog post back in 2011 I mentioned that my bald spots were returning again which could be confronting at times in a society and age where everybody is focused on looks. Fortunately, after a while my hair started growing back again…

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Added by Lionel on January 9, 2014 at 7:00pm — No Comments

Has anyone ever tried or considered micro-pigmentation?

Ive heard of this a number of times but don't know much about it. Is it pricey? Whats it about?

Added by Connor013 on January 9, 2014 at 3:07pm — 2 Comments

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