All Blog Posts (5,829)

1 year anniversary AA

My title is actually misleading. My one year anniversary of diagnosis with AA was on Sept 17. But I've stopped letting AA control my life and have been TOO BUSY to post anything! :-) That feels really great to say. A few months ago I would not have been able to say that about myself. I thank the Lord above for giving me strength and confidence to get through this. I don't remember the day I decided to shave my head, but it was the best decision I have made so far. I am hopeful that my hair…

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Added by Sierra D on September 24, 2013 at 12:00pm — No Comments

Where to order wigs online?

Hi,
I thought I would try to order a wig online since I don't have many options for purchasing one at a store in my area. I placed an order with a website and never received the wig. I have been looking at other sites but am hesitant. I am not ready to go for the custom wig yet...still holding out hope that I am going to regrow. Any suggestions for a reputable site where I can find human hair full lace wigs at reasonable prices? Thanks.

Stephanie

Added by Stephanie on September 23, 2013 at 10:37pm — 5 Comments

Coloring the white regrowth?

I am having trouble with posting in the forums section and thought I would try here instead.

My question: Is it possible to successfully color the white regrowth?

In the past I have only tried Henna and it made my white hairs turn yellow, hence looking more obvious than the white regrowth. I have a large patch at the top of my head up front which has been preventing me from cutting bangs since I need every hair on my head to cover up missing patches at the moment. I use…

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Added by Georgie on September 21, 2013 at 2:51pm — 6 Comments

GAPS diet

Hi everyone,



I know there's been talk of the GAPS diet on this site but I have not seen if anyone has actually trialled it (religiously) and found any benefits. Dr Natasha Campbell-Mcbride (the founder- authour of GAPS) explains why gluten free and dairy free is not enough to heal your gut completely. My daughter 2 &1/2, with gut issues and AA is currently on GF and dairy free diet (it's only been three weeks and although I've seen improvement in her poo no change yet in AA- I… Continue

Added by Mayo on September 20, 2013 at 1:39am — 17 Comments

Finding your "LOOK"

I have "worn" hair for many years. My pieces are custom made and I use tape to secure them. I take it off every 7-10 days to clean and put on new tape. I want the freedom to wear pretty scarves and to feel the wind on my head again. I went several weeks without wearing hair and was shocked how many people asked me if I was battling cancer. I have not had eye leashes or eyebrows for many years, I suppose this makes me look like I am going through chemo to some folks. I wear trendy clothes,…

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Added by Vicki V on September 18, 2013 at 5:02pm — 1 Comment

New chapter in my life

First of all i wanna say that this is my first post on alopeciaworld. I am a part of this community only a few weeks now and while reading lots of posts and responses for the first time i felt like i am not alone.

Since i never met a person with alopecia i always thought than no one can know how i feel and how hard and sometimes frustrating it is to go out in the world with alopecia. Lots of times in these 6 years of battle with alopecia my family and friends told me that it is only…

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Added by Jack Sparrow on September 17, 2013 at 6:30pm — 13 Comments

It was so simple!

today I woke up with so much more confidence. I went to school and at lunch someone asked me why I don't wear my hair down anymore. I told them the honest reason. After I told them I felt 10 times better. if they have to say something they can this is me and this is who I am nobody can every change that.

Added by Ashley ingordino on September 17, 2013 at 3:00pm — 3 Comments

I want my hair back

Having this disease sucks im only 15 years old. I just started 10th grade. People found out that i had this andyhey laughed and made fun of me. It sucks. I wear my hair up every single day. Im gettig treated. Thank god theres something to help. I feel embrassed of it. I just wish it will go away

Added by Ashley ingordino on September 15, 2013 at 6:19pm — 7 Comments

GAPS diet and alopecia and wellness by Molly Vazquez

Hi everyone,



My daughter has been diagnosed with AA aged 2 years. As you all appreciate it is very confronting and I have been through sooo many emotions. She's had it for 6 months now and continues to develop new patches ( she now has about 5 patches on her head- 4 of which I can cover). I feel I'm Now ready to begin talking about it on this website and I have to say... My hat goes off to all of you. You are all such inspirational souls and if my daughters AA continues or gets…

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Added by Mayo on September 13, 2013 at 11:30pm — 19 Comments

Where is the play button!

I've been trying to handle my hair loss, taking the bull by the horns so to speak. Telling my self "I can handle this", "I'm going to be fine" (fine as in all right not as in it's going to grow back). Pragmatic, realistic, positive. It's very typical me.

But I'm fed up, tired, like i got the wind knocked out of me. I'm not fine, I'm sad.

It's been a year since I lost my hair and I feel like my life hit a wall. Someone pressed the pause button that day, and I can't find play. I…

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Added by Marinetta on September 12, 2013 at 12:00pm — 2 Comments

Get on with life

I also think that since this is an autoimmune disease it is better to live with it not change it. Good food, healthy lifestyle ,meditation and de-stressing activities will help .

I lost all my hair in my twenties(I'm now 56 ),got it back at 30 due to a combination of Ayurvedic treatment and just old-fashioned grace of God and parents' blessings. However, the good times are slowly ebbing as there are huge patches all over and postmenopausal period is not conducive for hair growth.…

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Added by shaila on September 12, 2013 at 8:00am — 1 Comment

New member

Hello everyone, I just wanted to introduce myself. I am very happy I found this group so I have people to talk to who actually knows what it is like to talk to people with alopecia and the way it effects you mentally and physically. Lots of beautiful people on the sight and I look forward to meeting everyone.

Added by Ken Johnson on September 10, 2013 at 10:27am — 7 Comments

This mom needs direction

Hello everyone. Amazing people on an extraordinary site! Wow is all I can for each and everyone's journey.



My daughter is 20 and comes from a family farm, A premed student at private Christian college in Nebraska, she is on an Academic Scholarship, she runs, loves her horses and riding, her family is her rock, her boyfriend attends the same college is on a track scholarship ( he looks like he belongs on an Abercocmbie and Fitch poster and he is just a darling and is also studying… Continue

Added by Candace on September 10, 2013 at 10:07am — 4 Comments

At what point did you decide to shave your head?

I have had AA for 2 months now. I have lost a lot of hair but by the grace of God he gave me a head full so it still looks like I have a ton of hair. I can cover my spots with my remaining hair but I have to zig zag my part and hair spray it like a helmet so the wind doesn't blow it to reveal my spots. The spots on top are coin size so "it isn't that bad" but I hate fixing my hair. It is torture. I do have a spot as big as my palm in the very back...and growing but that is covered. So do I…

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Added by Mindy on September 9, 2013 at 3:32pm — 13 Comments

Does anyone know how to change your profile pic on here?

If anyone knows how to change your profile pic on here, please let me know.

Added by Bernadette on September 9, 2013 at 1:18pm — 3 Comments

Having alopecia

When I think of the word Alopecia, I feel an intense feeling of loss. It’s more than a loss of hair; it’s a loss of self-worth. The discouragement it brings takes every breath of courage and suffocates it. I wanted to write about this disease so people will grasp the severity of what’s happening to over 5 million people in this world.

I started losing patches of hair when I was six. At this time I lived in a different country, Wales. I remember the kids teasing me, saying that a dog had…

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Added by Emily on September 6, 2013 at 8:30am — 7 Comments

The ugliest doll in the shop

Today at my blog, I wrote all about the Cabbage Patch Kid I got as a child and how, 30 years later, it's helped me to come to terms with my Alopecia.

http://theycallmemummy.com/2013/09/05/the-ugliest-doll-in-the-shop/

I'd be so thrilled if it helped someone to read this.

With love!
Michelle

Added by Michelle L on September 6, 2013 at 5:30am — 2 Comments

Vitamins and diseases

I have wondered if a study has been done into what conditions Alopecia sufferers develop in later life, as Alopecia may be an early indication of something going awry. And how many Alopecia sufferers take vitamin and mineral supplements? I have been taking zinc, chromium and Vit D for a few years. I have just discontinued these but it is too early to see if it improves things. I know accumulation of certain vitamins and minerals can be toxic.

Added by Sweet Pea on September 6, 2013 at 4:30am — No Comments

News! Alopecia evolution

Hi everyone! hope this blog find you all ok, maybe confuse or a litlte bit frustrated but ok...! I'm writing, because i've some good news that I want toshare with you... I was diagnosed with alopecia on May, by June i shaved my head, by end of July my lost was about 70%, i lost some parts of my eyebrows and the grow was instable on my pubic area. I decided not to do the corticoinjecions, i decided not to continue with the quimical medication. I began acupuncture, meditation, yoga and began…

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Added by Catia on September 5, 2013 at 12:30pm — 2 Comments

DAY 121 - AA...lactose intolerance..low iron...celiac?

Could Celiac be the underlying cause?

I went for a blood test to check Iron levels and although I am not anemic, my dermatologist did say my levels were on the very low end and that I should see my family doctor for supplements.

Some papers show a link between AA and Low Iron...but others show no connection. The conclusions are mixed!

But what if we are asking the…

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Added by User306 on September 5, 2013 at 8:30am — 5 Comments

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