All Blog Posts (5,829)

Alopecia - Awesome baldness

About 2 years ago, I noticed a bald spot on the front of my scalp. Little did I know, this would be a life changing moment. I am Italian in ethnicity so naturally I was quite the hairy man. Once my bald spot started growing, I decided to get it checked out. I found that I had Alopecia Areata. That soon turned into totalis, which then turned to universalis. Once losing all of my hair, I was a little shocked to see it just fall out in the shower, but upon further experience, I realized how…

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Added by Vince on September 4, 2013 at 6:00pm — 3 Comments

Back-to-school list for alopecians

Small mirror in a case for the purse or backpack

Sharpener for eyebrow pencils and liner pencils

Eyebrow pencil and/or brow powder (get demo at fine cosmetics counter)

Eye liner

Wig salon appointment to try on styles, see colors indoors and in sunlight with hand-mirror, find wig with ear-tabs that work with glasses

Hat store trip to try on styles (bring favorite outfit and coat to match)

Make-up appointment at mall or home party to see how to enhance…

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Added by Tallgirl on September 3, 2013 at 9:00pm — No Comments

Rogaine, clobetasol, plaquenil or steroid injections?

Okay so after reading a vast amount of your blogs I have come to a conclusion. It seems there is no simple answer as to what works best for people suffering with FFA. I started using Rogaine back in February 2013. This was before my doctor started treating me for FFA. Once I had seen my doctor she put me on Clobetasol cream. I know Rogaine take about 5 to 6 months too see any results. I just noticed a few days ago that I started getting very small hairs growing mostly on the sides of my…

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Added by LittleRhody on September 3, 2013 at 8:00pm — 26 Comments

Today I met a guy

today was one of the most exciting days i had in a very long time i spent my whole day at the mall i never fell so comfortable ii rocked my bald head today but i was looking at scarfs and hats trying them on and from behind me i heard a voice say "you don't need neither one of those hats or scarfs , you are hiding your beauty" its been a while since a guy has hit on me nd all i could do was smile and blush i was so bashful we exchanged number nd havent stopped texting yet im not the one to…

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Added by butta on September 2, 2013 at 9:00pm — 3 Comments

Celebrating three years of liberation

September 3, 2010... this was the year that I took the first steps to liberation. Liberation from myself, liberation from disease and liberation from society's perceptions of what I should look like and how I should be. This date was the day that I shaved my head. 3 years ago I did the one thing that I never thought I would have the courage to do. I picked up a pair of clippers and shaved what remained of my hair. Alopecia Universalis had taken most of it and I finished the task. Its…

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Added by Bald and Fabulous AKA Terri on September 2, 2013 at 8:30pm — 2 Comments

One of my brother's football coaches!

Ok so exactly a week ago me, my sister, my mom, my dad and one of my sisters friends went to bring my brothers football team some Peanut Butter Bars that we made. While we were there one of the coaches asked my brother does your sister have Alopecia? Of course my brother said Yes the coach then continued that's what I though because she looks to healthy to be on Chemo I though it was pretty cool and thought you guys would like to here about it.

Embrace it:

<3/Jessica…

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Added by Jessica Hoschouer on September 2, 2013 at 1:00pm — No Comments

What to do

I go to school every day, not sure what to expect. I look at all the other girls with a head full of hair and ask myself, What did I do to have Alopecia. Is this a punishment. Why did this happen to me. But I can't answer any of these questions. I hear people laughing at me, but I don't understand, people laugh at people who do stuff, but I didn't do this.

Added by Hanna on September 2, 2013 at 12:23pm — 2 Comments

It gets better

I would like to share my story with some readers who might have just recently received a diagnosis of alopecia. This spring I noticed to my horror that I had several bald patches in the front of my scalp. I couldn`t believe it - I actually went and checked it out in several mirrors of my house. I went to work with about a can of hairspray on my head to glue the strands in place and cover the spot.

Over the course of a few days the spots grew bigger and joined up so I was looking at a…

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Added by Second time on September 2, 2013 at 9:00am — No Comments

I am not alone!

I was so excited to find out that the guy I go to school with but don't even know has Alopecia I am so excited to know that I am not the only one who has Alopecia and is going to a new school. Ok so here is what I know about him... His name is Alec, he has Alopecia and he is on the same bus as one of my best friends Emily or Jane Ere as she goes by here on alopecia world. I am so excited to talk to him about it, that is if I can get up enough nerve to do it.

Added by Jessica Hoschouer on September 1, 2013 at 7:00pm — 3 Comments

To do treatment or not?

Okay I just joined this website a couple of days ago. I have seen so many positive and inspiring stories. This is just what I needed. However I have been reading as many of your blogs as I can. It seems that everyone has been given different treatments from their doctors. Some a topical steroid, injections and oral medication. It seems positive. However it seems like the success rate is very small.

My question is do I take steps to proceed further and try to stop what is going on with…

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Added by LittleRhody on September 1, 2013 at 5:30pm — 15 Comments

Frontal fibrosing alopecia

Hi I am brand new to this site. I joined because I was looking for people I can relate to. I recently found out that my doctor thinks I have Frontal Fibrosing Alopecia. I have had so many test in the past four years. That is when I started to notice my hair loss.

The first time I noticed a slight bald patch was after a hair cut appointment. I thought my hairdresser had maybe put the blow dryer on a little too hot. I did not go back to get my hair done for one whole year. The hair…

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Added by LittleRhody on August 31, 2013 at 10:00am — 6 Comments

Losing hair from my left side

Hi everyone..
I seem to be having a peculiar problem.I have been losing hair continuously for 8 months now and it is very limp,thin and the scalp can be seen.However i have noticed that it is thinning much more from the left side of the scalp..I have a slanting wide part and it keeps falling from the left side only.Also the hair i feel pain in the roots,like someone is tugging them.
This is bothering me alot.Has anyone else had the problem?

Added by sup on August 29, 2013 at 11:30pm — 3 Comments

September is Alopecia Awareness Month

What special activities do you have planned for Alopecia Awareness Month? Please be sure to list them on Alopecia World's events calendar. We also welcome you to make suggestions and discuss your plans in the comments section below.



Below is information on what the National Alopecia Areata Foundations has planned for the month.

NAAF - Team Up for Alopecia Areata…

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Added by Cheryl, Co-founder on August 29, 2013 at 5:30am — 3 Comments

Dreams We Sew

Some day,

We'll stop looking for the answers,

And maybe,

Wear our hearts out on our sleeves,

But it's hard to make them see, and—

Just look at who are we,

Don't judge us as you please, we aren't weak,

Oh no.

 

And the dreams we sew,

We'll start to move mountains—

The world will be in the know,

And the more we grow—

The more they will see us, and greet us

We'll…

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Added by Amy-Rose on August 29, 2013 at 12:20am — 4 Comments

Alopecia , you don't hear much about it

i never knew what it was till i experienced it myself and still don't know much about it but this website has helped me alot.... but i was wondering is there a month for Alopecia awareness ?? a friend of mine sent me a pic of a ribbion and asked "does this support Alopecia" (it was royal blue) do we have a ribbon

Added by butta on August 28, 2013 at 9:50pm — 1 Comment

Relationships, why can't I find one?

Sure I'm only 18 years old and have most of my hair but when I really think about it, what girl would want to date a guy who has bald spots. I mean mine are covered but there's others out there who don't have them covered or have a third of their eyebrow left. It certainly keeps me up at night wondering if I'll have one. Actually does more than keep me up at night, sadly. So my question is where do I start? How do I go about bringing up my alopecia? Or is literally every guy and girl shallow…

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Added by Connor013 on August 28, 2013 at 9:30am — 28 Comments

Talogen effluvium and stress

So.. after seeing multiple doctors, I think we have figured out what I have and what is causing it. I have Talogen Effluvium. I have a new shampoo and lotion to help with the itching.

Here's the bad news: Its stress related, I'm doing everything I possibly can to reduce stress (i.e. eating right, exercising, meditating, multivitamin, etc) but the stressor seems to be my husband's job. The worse news is that we are under contract for another 2 years. So I dont' know what I'm doing to…

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Added by Amelia33 on August 27, 2013 at 1:00pm — 2 Comments

See what you're missing!

When is the last time you checked out Alopecia World's homepage at www.alopeciaworld.com?

It always features the latest and greatest content in our beloved community.

New blogs. New videos. New forum discussions. New group activity. Fabulous photos. Top content and much more!

It's the quickest way to find out what's happening not only in Alopecia World, but in the lives of our wonderful members.

Visit it daily. Visit it…

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Added by Alopecia World on August 26, 2013 at 4:55pm — No Comments

Waiting waiting

Sitting at the dermatologist office... What will the verdict be? Waiting is the worst, especially when you have to pee. ;)

Added by Amelia33 on August 26, 2013 at 3:12pm — 3 Comments

How do you feel physically?

Before I found my first spot a month and a half ago I was having migraines lethargic nauseated and dizzy/light headed. I still feel that way to the point sometimes I can barely make it through the day because I am so tired. Is that normal? Is there something else wrong with me? I have wondered about lupus and my husband thinks I need to take gluten out of my diet. He is tired of coming home to a lethargic wive. I just don't know if this is part of the AA or what? Please tell me your experience.… Continue

Added by Mindy on August 26, 2013 at 12:18pm — 6 Comments

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