All Blog Posts (5,829)

3 year old noticeing

my daughter is noticing that she has no hair and her sisters do, she spent a good 2-3 min. petting her older sisters hair and telling her she liked her hair, and mommies and her oldest sisters hair. She even asked where hers was, she calls her headbands and pretty much anything she puts on her head for the 5 min. she does her hair, she is so dang cute I tell her all the time that she is and that she is beautiful and I love her. She is breaking my heart with this newer behaviour but I know as…

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Added by kittspin1 on May 21, 2013 at 6:31am — 4 Comments

Who's attending NAAF 2013 conference?

I don't know if anyone has started a blog about this, but since I just registered to attend my first NAAF conference in St. Louis June 27-30, I'm curious which of my AW friends are attending.

Who's going?

Added by Mary on May 20, 2013 at 6:30pm — 47 Comments

Now or later

I am almost finished with sixth grade I only have five more days. The thing is I am contemplating whether or not to shave my had now or wait until August I was wondering what you guys think. I was thinking wait so I don't get a sunburn on my head but also if I waited I could get teased and made fun of behind my back, but that would be okay with me as long as they didn't do it to my face. On the other hand though, I could shave it now and risk getting it sunburnt and have hair when school…

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Added by Jessica Hoschouer on May 19, 2013 at 2:30pm — 6 Comments

Cyberhair

I tried a full piece cyberhair. Worst mistake ever. Anyone who is used to real hair and quality pieces will not like going to synthetic no matter how much money or how much time you will save. Just my personal experience and want to share with others considering the same.

Added by Shannon Hyden on May 18, 2013 at 12:33am — 4 Comments

Just diagnosed

I was diagnosed with alopecia areata a few weeks ago. I noticed a bald patch on my crown when getting ready for prom, which was a huge shock. I went to the dermatologist the next week, and he found 3 other patches. I got the steroid injections, and hair is starting to slowly come back in. Unfortunately, more hair is falling out near the patches, in the places that I did not receive injections (they only did about 15). The patch on my crown is growing to the size of a large palm, and I can no…

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Added by Madeline on May 17, 2013 at 3:30pm — 6 Comments

The employment issue

Hi everyone. I have AU, which developed after I left the working world due to a disability. I am considering trying to go back to work, but realized when it came time to thinking about interviews, that I am going to have to explain my disease in order for the interviewer to not think I am sick with cancer. I know that it may not sound like a big deal, but I am really not happy that I don't have much of a choice if I want to continue to live free from binding, headache producing wigs! I feel…

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Added by Tracey on May 17, 2013 at 3:30pm — 3 Comments

Options for wigs - opinions?

I haven't been on here in so long, but since I have, I've come a long way with the acceptance of my alopecia. I'm in a much better place, even though it still sucks at times...

I got married last September :) and had a beautiful custom made wig for my wedding. I loved it! I wanted long hair and the guy I go to charged me approx $1250! I know , that's alot of money :( but it was a full cap (and I don't have to wear any tape, which I love, because I HATE using the tape!) I previously…

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Added by Nikki on May 16, 2013 at 11:00am — 4 Comments

Fashion ideas

Hello everyone,does anyone have any ideas to promote fashion with alopecia? Just because we lost our hair don't mean we have to look a hot mess.your suggestions are needed.

Added by Lavonia on May 16, 2013 at 10:30am — 2 Comments

Parents of New York kids with alopecia

Hello everyone, my name is Lavonia I am searching for children with alopecia to possably make a new friend with alopecia. My daughter has AA and I want her to meet other kids with the disease so they won't feel alone. She is seven years old.I feel meeting other kids with this disease wiil incourage them to be themselves.this will better them in many ways . So what do you say parents? We are all in this together.

Added by Lavonia on May 16, 2013 at 10:28am — No Comments

Going BALD for my daughter

Hello everyone, my seven year old daughter was diagnosed with AA on both sides of her temple and nape she is balding. She has long hair so we can cover it with her hair and head bands for now.because Alopecia is unpredictable i do not know if all her hair will eventually come out. But I don't want her to feel like she has to cover her balding spots or her bald head for that matter. She also lost most of her eyebrows and eyelashes.i dont want her to have a low self esteem because of her…

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Added by Lavonia on May 16, 2013 at 10:00am — 5 Comments

My story

it started off when my sis saw a bald spot in my hair when i was 13 and we were going to swim at the hotel pool.

i was surprised and didnt know what to make of it.. it started getting worse as time went on and no one really did anything about it.. now I'm 19, its so bad that i had to get a wig.. alot of peopledont really know about it but some saw it and some i told about it. my ex best friend calls me patches and tries to make my life hell, and this one girl tried pulling off my…

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Added by Fatimah on May 16, 2013 at 8:56am — 2 Comments

My hair regrowth effort

I have diffuse hair loss and logitudinal ridges in my nails (along with other symptoms of anemia) due to low ferritin levels... I tried Rogaine and it didn't work for me. I can't go on Propecia because I'm a female. I've been losing my hair since I was 12 because my low ferritin, but I never did anything about it until this year at age 22. The reason I tried rogaine was because doctors told me it's genetic (even though everyone in my family has thick hair!) until one doctor did some blood…

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Added by Sar90 on May 16, 2013 at 1:00am — No Comments

Sick and tired of being sick

It's been a while since I posted on here, and I felt its about time I do. Since September I have been in and out of hospitals, different specialist, and I think my PCP and I see each other more than I see my best friend. LLLOOONNNGGG story short, I have been diagnosed with Fibromyalgia (OUCH!), POTS, and a severe case of restless body syndrome. I am currently on Short Term Disability, have been since January, with currently no sign of me going back to work any time soon. Because of the POTS…

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Added by Tamara on May 15, 2013 at 11:00am — 2 Comments

Photographer's stunning images of alopecia sufferers as part of project to create awareness about the condition | Mail Online

It's a hair loss condition that often robs sufferers of their self-esteem and confidence.

Now a photographer has taken this stunning gallery of images of people with alopecia to raise awareness about the condition.

Click here to read more at DailyMail.co.uk.

Added by rj, Co-founder on May 14, 2013 at 1:35pm — No Comments

Sorry I'm not on a lot and I don't really know how to use the website but I just need a few friends out there :)

Sorry I'm not on a lot and I don't really know how to use the website but I just need a few friends out there :)

Added by Sam on May 13, 2013 at 4:57pm — No Comments

Job interviews

After several job interviews, some were successful, I manage baldness now by explaining the situation very simply and quickly at the beginning. Two minutes of explanation are enough to enable my interviewer to focus at other, really important subjects for the job.

Added by Christa M. on May 13, 2013 at 4:35pm — 4 Comments

:-)

2 weeks after finding another bald patch, I decided had enough of having 'hair to hide' so went for a very short cut as not having it run my life.......2 weeks later I can feel the itching tell tale sign, and feel my hair starting too grow back on the area :-)

Added by Jo-Anne on May 13, 2013 at 1:45pm — 2 Comments

Seeking some advice

Really struggling tonight, looking back at me before I lost my hair, and I was so damn beautiful I can hardly believe it. I feel like growing hair is like winning the lottery... does anyone know if people who have been completely bald have grown their hair back? I feel incomplete... I am afraid to go ahead with life, I feel fake without hair. 

Added by Keshia on May 13, 2013 at 1:24am — 2 Comments

Help!

Hi!

I'm almost 19 years old and I've never had a boyfriend. It makes me sad because I feel lonely and I'm afraid a guy won't want to date me or love me because of my alopecia/wearing a wig. It seems as if guys are so into look these days... I don't know what to do! Please help me, I could really use some cheering up at the moment!

Added by Devon on May 12, 2013 at 10:21pm — 5 Comments

Day 2 - May 9th, 2013 - The Cancelled Appointment

Day 2 -  May 9th, 2013 - The Cancelled Appointment

My boyfriend and I both work on the same project on nightshift. We took half a shift off so that we could get home by midnight and go to my 10:30 am appointment, which was an hour away from our house. On the way there, I noticed a missed call from an unknown number but i didnt really pay much attention to it.

When we got to the office, we found out that the Doc…

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Added by User306 on May 12, 2013 at 9:11pm — 1 Comment

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