All Blog Posts (5,829)

Everyone please watch this video!

She is just amazing. It brings tears to my eyes every time I watch it.

Added by Megan Bry on November 29, 2012 at 8:30pm — 56 Comments

Well life has changed!

WELL AFTER TWO YEARS AWAY IM NOW A MOMMY, AFTER ALL MY NIGHTMARE DATES I GOT BACK WITH MY EX AND AFTER A YEAR, IVE HAD A BEAUTIFULL BABY BOY BOBBBY, MY HAIR HAS GROWN BACK AND FELL OUT AGAIN, AND TO TOP ALL CAUGHT MY LITTLEONES DAD CHEATING ON ME, HOWEVER THATS ALL IN IN THE PAST AND IM NOW VERY HAPPY WITH BEING A SINGLE WORKING MOM, NEW HOME AND GREAT JOB.

IM LOVING LIFE, DONT CARE WHETHER MY HAIR GROWS OR NOT AS IM PROUD OF MY DOME !!! AND THERE ARE MORE IMPORTANT THINGS TO WORRY…

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Added by claire on November 29, 2012 at 4:30pm — No Comments

Lace front wigs and shaving

Please can someone offer me any advice. I have been suffering from alopecia since 2007. My hair constantly sheds a lot thins out grows back. Trouble is I have to keep it very short as its not in long before its shedding again. Prior to this I had long hair. I hate the constant shedding and uncertainty. I have been diagnosed with a chronic TE. I have decided because I get so depressed and hate taking my wig off that ive ordered a custom made lace front wig. Apparantly I can keep this on for…

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Added by Karin Fitzgerald on November 29, 2012 at 9:34am — 1 Comment

Research summit

Alopecia Areata Research Summit November 29 & 30, 2012

From Basepairs to Bedside: Innovations in the Immunology & Clinical Science of Alopecia Areata

The purpose of this summit, sponsored by the National Alopecia Areata Foundation (NAAF), is to unite a variety of people within and outside the field of alopecia areata to develop research avenues in immunology and clinical science and to advise NAAF on spending its research dollars strategically in both areas. The National…

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Added by Tallgirl on November 29, 2012 at 12:30am — 1 Comment

12 year anniversary

Today marks 12 years from the day that I found my first bald spot. I distinctly remember being 14 and my mother was blowdrying my hair when she found the dime sized patch.

A year followed of doctor's dismissals, then creams, then cortisone injections before I quit all treatments. By Nov 27 the following year I was nearly bald and began wearing a wig within a month. I was completely bald all over within the new year.

I have never had regrowth beyond maybe a tiny patch that lasts…

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Added by Casey on November 27, 2012 at 11:30am — 4 Comments

Why so much emphasis on hair and not other style changes?

Every winter I change my hair extensions out and wear a wig. With my puny hair, I feel it is best to give it a rest from extensions, and also at the ranch my own hair with extensions does not hold well in the wind and rain.

I love my wigs, but every year it is the same process of getting used to the comments others make about my new hair. Some people are very kind, others not so much. I have learned from past experience that this goes with the territory.

I can't help but wonder why…

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Added by chris for hair on November 26, 2012 at 11:00am — 8 Comments

At the doctor

Ive been to see the doctor finaly. She didnt tell me anything that I didnt allready know.
So I keep up my good mood and go on.
Its geting closer to x-mas and I look forward to that. I love x-mas.
Have a nice december all of you.

Added by Renée on November 25, 2012 at 1:30pm — No Comments

John seriously ill

Hi all, for those of you who know my husband John he is seriously ill right now in the ICU at hospital. He's made some good friends here and I thought you all should know. I haven't been on AW much lately so I may not be here again for a few days. Love to you all....

Added by Pat on November 25, 2012 at 3:40am — 12 Comments

Tattoos and alopecia

Hey guys, I would like to know if there is any problem doing tattoos if you have alopecia, due to the fact that it is an autoimmune disease.

Thanks

Added by Giovana on November 23, 2012 at 7:00pm — No Comments

If my head is covered in white fuzz...

does that mean my hair is coming back? should i keep shaving it ive only shaved it once. so confused i am also finding patches of hair missing on my arms and legs. i don't know if any one can answer these questions. just looking for some insight thanks.

Added by jayme sue on November 21, 2012 at 9:30pm — 7 Comments

FFA

Hello Celia, thank you for your support. I'm not Spanish, but I'm Portuguese.
I know of cases of FFA in Portugal or Spain.
There are no blogs or websites Portuguese about this disease. What I know about the FFA, was through a dermatologist and through Brazilian websites.
Sorry my English.

Added by Anabela on November 21, 2012 at 3:18pm — No Comments

Thaddeus Stevens had alopecia! (Movie: LINCOLN)

Interview: Tommy Lee Jones of 'Lincoln'

'Language is life's blood for actors ...'

By James Rocchi

As Thaddeus Stevens, Tommy Lee Jones' rich voice gets to boom out the principles of equality and also utter, with quiet conviction, of the human needs and feelings that make equality necessary. He's a scene-stealer, in Steven Spielberg's "Lincoln," but he's also portraying a figure of American history whose record of leadership, moral courage and eloquent verbal feuding should…

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Added by Tallgirl on November 18, 2012 at 11:56pm — 2 Comments

New to this site.

Just discovered this site and decided to join. I am a 56 yr old male and lost my hair 4 yrs ago when my Dad died. I tried all the injections and acid treatments and steroids with obviously no effects. The good thing about the alopecia is that when I got it I was depressed about losing my Dad and during this time I quit doing the things I loved and got heavy and depressed. One day when getting out of the shower I looked in the mirror and saw a fat, bald guy and I got pissed. I thought I can't…

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Added by tim s. on November 18, 2012 at 10:22am — 7 Comments

Hair up treatment?

Hey guys,

I'm trying to find out more about this i've seen videos and good responses on this. I was woundering if anyone had any info on this and could tell me where to buy this at?

Added by Ryan on November 17, 2012 at 9:32pm — 1 Comment

Does anyone know anybody with alopecia that has signed with a modeling agency?

My daughter, who has Alopecia Universalis, has been trying to get a modeling contract. Does anyone know anybody who has Alopecia and signed? If so, I'd like to know...

Added by Gabrielle Villagomez on November 15, 2012 at 9:00pm — 3 Comments

Wig use?

it has been really hard for me to take the big step and wear a wig i was diagnosed back in 2007 with androgenetic alopecia and to this day my hair is thinning out and you can now see my scalp even worse.. how did you make the decision and how did you feel. please help :(i have support from my spouse but i just feel like he just doesn't understand :(

Added by Bianca on November 14, 2012 at 11:00pm — 4 Comments

Cortisone injections. Should I go for it? Please comment :)

I have tried pretty much every cream out there to try and get my hair back and the one that i'm using now doesn't seem to be doing much either, I've almost given up! The last option that i really have is multiple cortisone injections into my scalp. I don't know much about them and would much appreciate any information or feedback on them...are they painful? I'm not very good with needles but i'll try anything! PLEASE comment if you have any experience with them or even just a bit of info!…

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Added by ☆Emily☆ on November 14, 2012 at 6:00pm — 14 Comments

How to be attractive

From an online article:

How to Have an Attractive Personality

By an eHow Contributor

Being attractive does not start with outer beauty as many people think. Approachable people often garner attention because of their attitude and demeanor, not their clothing or good looks. With an attractive personality, one can get positive attention from people regardless of physical attractiveness.

1. Exude confidence. By projecting a confident and self-assured…

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Added by Tallgirl on November 14, 2012 at 1:30pm — 1 Comment

A pink shirt oughta cover the pain

Years ago I was in a changing room at a gym and a woman walked in and thought I was man because I was not wearing a wig to cover my alopecia and had my back to her. When I turned around she could obviously see that I was a woman, but I still felt shame after I saw the look on her face and she apologized for mistaking me for a man.

That was very painful experience for…

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Added by Cheryl, Co-founder on November 13, 2012 at 1:59am — 4 Comments

Using my head

Last week I was grocery shopping and, when I went to check out, a woman approached me to say she thought I was beautiful and that she wished she could do what I do. She went on to explain that she lost most of her hair due to alopecia. I told her I was familiar with alopecia and, in fact, have it myself. She was fearful of what others might say if they knew about her condition, but she really liked my look.

She was wearing a wig and said she normally wears one, so I suggested she…

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Added by Cheryl, Co-founder on November 13, 2012 at 12:51am — 13 Comments

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