All Blog Posts (5,832)

Autoimmune systems?

What type of foods should we be eating? And what type of foods should we stay away from???

Added by Latina Sethman-Benthall on October 2, 2012 at 7:30pm — 4 Comments

Dating?

Why do we have to feel like the world is going to end when we tell our date's in the begining about our disease. We have to go in looking at weeding out the bads ones, What is your opinion?

Added by Latina Sethman-Benthall on October 2, 2012 at 7:00pm — 1 Comment

A beautiful day

I woke up this morning and the sun was shining, I have a day of and wanted to do the most of it.
I went shopping some things to the horses, then I started to clean the stable.
In the afternoon I took a ride with my pony. Its very nice to do all those things, and my loss of hair doesn't matter.Except that under the helmet I have to wear a cap.
My day was altogether really very nice.

Added by Renée on October 1, 2012 at 1:30pm — 1 Comment

Wig consultants in NE Pennsylvania

Does anyone know of any wig consultants in NE Pennsylvania or surrounding areas?

Added by Becca74 on September 30, 2012 at 8:48pm — 1 Comment

My AA Story

I was pretty young when I found out I had AA. My mom noticed a small spot of hair missing on my head when I was 11 years old but didn't think too much of it. We started to notice that my hair continued to fall out and we went to see my doctor, who thought I was intentionally pulling out my hair. We went to numerous dermatologists who tried treatment after treatment for two years until I had decided I couldn't take it anymore. I was sick of spending two hours of my time every day having…

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Added by Jessica on September 29, 2012 at 2:21pm — 3 Comments

To live in a cold country and have alopecia

I have alopecia and I just recently accepted my situation.
I'm feeling beautiful without my hair, but it's cold in my country so I never go out without anything on my head.
In the beginning I was extremely tired and sad that I lost my hair, but during the summer it changed.
My family is very supportive and so is my work friends to.
I hope to continue to write on the blog here.
Love from Sweden

Added by Renée on September 29, 2012 at 8:00am — 1 Comment

Getting positive comments and feeling better about myself

So an update of what's going on with me. My hair is still falling out, though I have hair growth growing in patches.

I got my first wig in July 12, only a few people know about my alopecia.

This week I have had some amazing comments.

I went back to the lady who I purchased my HH wig, she was happy to see that I have been taking care of the piece and that it suits me.

I wanted her to trim her a bit and take some of the heaviness out which she did.

Today I went…

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Added by Blue tulip on September 28, 2012 at 7:56am — 4 Comments

I'm back

So it's been a long time since I've been on here, at least been active on here. I was diagnosed with AAU last October. My hair was falling out so fast I didn't think I would have any hair by December.

Around Thanksgiving I went in for a "cute boy cut" (I was tired of my son pulling hair out of his mouth everyday) and the lady who cut my hair took a number 8 razor and shaved my head! I was so not ready for that but it was actually a blessing in disguise because it forced me to face the…

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Added by aggiewife22 on September 27, 2012 at 1:30pm — 2 Comments

College

I started at Everest College yesterday. I had a blast yesterday and today :D haha I'm learning in a Massage Therapy Program. So far I'm enjoying it and can't wait to go back. haha My friends think it's weird that I'm enjoying school, but then again some are still in high school. I'm the youngest one in my class of 7 people for now, there's mostly older adults. I'm really liking it and hopefully I make some new friends through out the months.

Speaking of college does anyone know some…

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Added by Julie on September 26, 2012 at 6:29pm — 3 Comments

Where can I donate my hair??

I was going to post in a group this question but i don't know what group to post in!

But i want to donate my hair in Canada and I was wondering if there is any organization that i should be looking into? I got about 10-12 inches to spare... I would love to Help as i am a parent fo AN AU Child.

Added by Jordan's Mom on September 24, 2012 at 4:00pm — 6 Comments

Wiggin out

Since my hair is beginning to fall out even more now, I reluctantly went into my bathroom closet and pulled out one of my wigs that I had retired. As I fought with my inner self about wearing this wig, I just simply had no choice. No matter how much I try to fight AA, it always seems that AA gets the best of me. The day that I had to pull out my wig was also a day that I was going out with friends. I noticed that they kept staring and trying to figure out if it was my hair or not. The…

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Added by Jasmine Harrell on September 24, 2012 at 9:00am — 8 Comments

I DID IT!

I went out with no wig and went to my yoga class. I even went to put gas in my car and it w as liberating.

Added by pauline vargas on September 23, 2012 at 3:58am — 7 Comments

My life

Hi my name is Rose. I have had Alopecia for almost my whole life. It started in 3rd grade. My parents found a great Dr who put me on a steroid and it all grew back. I only started out with 2 spots on the top of my head. The worst episode I had was when I was a freshman in high school I almost lost all my hair, I used to cry myself to sleep. Again my Dr put me back on the same steroid and it worked he never used shots. It wasn't way after I got married and had my first baby that I noticed my…

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Added by Rose on September 21, 2012 at 2:03pm — 7 Comments

When something wonderful this way comes :)

I could not wait to return home & share what happened to me over this past weekend with my fellow alopecian sister's & brother's.

This January will mark the 5th year since loseing my hair to AAU, it was during my search for answers in those first painful weeks that I would read Leslie Ann Butler's book "If Your Hair Falls Out, Keep Dancing" which in turn would lead me to AW, my saving grace.

It is here I would find not only answers; but also,friends who were & are in the…

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Added by Pamela Rosse on September 21, 2012 at 12:30am — 17 Comments

Reporting issues and members to Alopecia World

We are committed to keeping Alopecia World safe for its members and visitors. This is why we take seriously every report of alleged offensive, illegal, or inappropriate behavior and deal swiftly and decisively with any member engaged in such activity.

Therefore, if you suspect a member of behaving inappropriately on the site, please go to the following page and report that member directly to Alopecia World:…

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Added by Alopecia World on September 20, 2012 at 9:11pm — No Comments

FYI LEGAL ACTION AGAINST MGA True Hope Dolls by Beautiful and Bald Barbie

RE: BOC legal action against MGA True Hope dolls

by Beautiful and Bald Barbie! Let's see if we can get it made on ·

It was brought to our attention that Beads of Courage is pursuing MGA with legal action due to the bracelets that are packaged with the dolls. To prevent any suspicion of rumor we are postings couple parts from the legal papers issued by BOC to MGA...

"It has come to BOC's attention that MGA is selling colorful beaded bracelets packaged with hairless dolls…

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Added by Bartrac on September 20, 2012 at 7:43pm — No Comments

Usually I don't care

Usually I dont care,
what people think or say.
I know it was god,
who made me this way.

But sometimes it gets hard,
when u let someone in.
When u give it your all,
when they see past ur wig.

I miss the man who held my soul,
in the palm of his hand.
Tenderly.
Wisely.

I pray I fall again...
for someone like you.

Added by Kimberly Grise on September 20, 2012 at 5:30am — No Comments

Here we go again

So my hair has been doing pretty well at least so I thought. I still have a lot of patches, however I have been able to conceal it with my own hair. I went to get my hair done by a stylist who claimed that he specializes in working with clients who have alopecia (I am convinced that those people don't exist). He used some Brazilian technique to put some tracks in to cover my patches. That was a huge mistake. It was so uncomfortable not to mention I had just gotten injections the day before.…

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Added by Jasmine Harrell on September 20, 2012 at 1:30am — 5 Comments

Letting people know what happened

Until June 2011, to me the word Alopecia simply meant thinning hair. Well, was I ever wrong! In June 2011, my own hair started to thin and within three weeks I had practically no head hair. At first, it was all like a bad dream. You look in the mirror and for a moment you don’t recognise the person looking back at you. Then you recognise yourself but your scalp feels different. Your head feels cold even though you know there is no reason for the cold, except of course that there are large…

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Added by Paddy on September 19, 2012 at 3:00pm — 9 Comments

Gaining confidence

I've had alopecia for 8 years now. First, it was come and go areta alopecia. Then it went universalis. The eyelashes were the worst. I would look in the mirror and say, "I look like a lizard." My mom used to say I was as mean as a snake when I was little and got in trouble, so it shouldn't have come as any surprise. The hair loss was hard, but the self-esteem loss was devastating.

The first time I went to buy a wig, I made sure I was the last scheduled appointment. I went alone, in…

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Added by Bonnie on September 19, 2012 at 9:30am — 5 Comments

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