All Blog Posts (5,825)

My life

Hi my name is Rose. I have had Alopecia for almost my whole life. It started in 3rd grade. My parents found a great Dr who put me on a steroid and it all grew back. I only started out with 2 spots on the top of my head. The worst episode I had was when I was a freshman in high school I almost lost all my hair, I used to cry myself to sleep. Again my Dr put me back on the same steroid and it worked he never used shots. It wasn't way after I got married and had my first baby that I noticed my…

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Added by Rose on September 21, 2012 at 2:03pm — 7 Comments

When something wonderful this way comes :)

I could not wait to return home & share what happened to me over this past weekend with my fellow alopecian sister's & brother's.

This January will mark the 5th year since loseing my hair to AAU, it was during my search for answers in those first painful weeks that I would read Leslie Ann Butler's book "If Your Hair Falls Out, Keep Dancing" which in turn would lead me to AW, my saving grace.

It is here I would find not only answers; but also,friends who were & are in the…

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Added by Pamela Rosse on September 21, 2012 at 12:30am — 17 Comments

Reporting issues and members to Alopecia World

We are committed to keeping Alopecia World safe for its members and visitors. This is why we take seriously every report of alleged offensive, illegal, or inappropriate behavior and deal swiftly and decisively with any member engaged in such activity.

Therefore, if you suspect a member of behaving inappropriately on the site, please go to the following page and report that member directly to Alopecia World:…

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Added by Alopecia World on September 20, 2012 at 9:11pm — No Comments

FYI LEGAL ACTION AGAINST MGA True Hope Dolls by Beautiful and Bald Barbie

RE: BOC legal action against MGA True Hope dolls

by Beautiful and Bald Barbie! Let's see if we can get it made on ·

It was brought to our attention that Beads of Courage is pursuing MGA with legal action due to the bracelets that are packaged with the dolls. To prevent any suspicion of rumor we are postings couple parts from the legal papers issued by BOC to MGA...

"It has come to BOC's attention that MGA is selling colorful beaded bracelets packaged with hairless dolls…

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Added by Bartrac on September 20, 2012 at 7:43pm — No Comments

Usually I don't care

Usually I dont care,
what people think or say.
I know it was god,
who made me this way.

But sometimes it gets hard,
when u let someone in.
When u give it your all,
when they see past ur wig.

I miss the man who held my soul,
in the palm of his hand.
Tenderly.
Wisely.

I pray I fall again...
for someone like you.

Added by Kimberly Grise on September 20, 2012 at 5:30am — No Comments

Here we go again

So my hair has been doing pretty well at least so I thought. I still have a lot of patches, however I have been able to conceal it with my own hair. I went to get my hair done by a stylist who claimed that he specializes in working with clients who have alopecia (I am convinced that those people don't exist). He used some Brazilian technique to put some tracks in to cover my patches. That was a huge mistake. It was so uncomfortable not to mention I had just gotten injections the day before.…

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Added by Jasmine Harrell on September 20, 2012 at 1:30am — 5 Comments

Letting people know what happened

Until June 2011, to me the word Alopecia simply meant thinning hair. Well, was I ever wrong! In June 2011, my own hair started to thin and within three weeks I had practically no head hair. At first, it was all like a bad dream. You look in the mirror and for a moment you don’t recognise the person looking back at you. Then you recognise yourself but your scalp feels different. Your head feels cold even though you know there is no reason for the cold, except of course that there are large…

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Added by Paddy on September 19, 2012 at 3:00pm — 9 Comments

Gaining confidence

I've had alopecia for 8 years now. First, it was come and go areta alopecia. Then it went universalis. The eyelashes were the worst. I would look in the mirror and say, "I look like a lizard." My mom used to say I was as mean as a snake when I was little and got in trouble, so it shouldn't have come as any surprise. The hair loss was hard, but the self-esteem loss was devastating.

The first time I went to buy a wig, I made sure I was the last scheduled appointment. I went alone, in…

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Added by Bonnie on September 19, 2012 at 9:30am — 5 Comments

I'm at the point where I need to make up my mind! Lace wig help!

I'm not sure what to do!!! My hair is almost too bad to go out without a wig. I want to get a Freedom wig but I'm still saving up for it.I was hoping my hair would hang on till then but it's not. In the meantime I need something that looks natural that I can work out and figure skate in. I know I can just shave and go all natural but I'm not comfortable with that yet. :/

I'm thinking about trying a full lace wig and glue it or tape it on. I just wanted to have a little feedback from…

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Added by Elaine on September 17, 2012 at 9:32pm — 6 Comments

So you think we have it tough having no hair?

Please read this and watch the video in the story, then take a look in the mirror.

http://shine.yahoo.com/women-who-shine/tisha-unarmeds-inspiring-everyday-life-no-arms-no-152100526.html

This is not to deny our very real, life-impacting, and serious issues associated with our hair loss. But, this sure puts my baldness in perspective for me.

Added by Mary on September 17, 2012 at 9:00pm — No Comments

Men's baldness in history

From the Hairloss Learning Center:

Even 4,000 years ago, the ancient Egyptians were searching for a hair loss cure. One “cure” used around 1500 B.C. in Egypt called for reciting a magic spell to the sun god and then swallowing a mixture of onions, iron, red lead, honey and alabaster.

Around 1100 B.C. in ancient Egypt it was popular to rub the fats of various animals onto the scalp, including those of the lions, hippopotamuses, crocodiles, ibex, serpents and geese.

Another…

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Added by Tallgirl on September 17, 2012 at 12:00pm — 2 Comments

Getting this off my chest

Its crazy how losing my hair never crossed my mind before and now is only thing on my mind now. I think other People think its a VAIN worry. Thats because their not going through it.Your hair is apart of you and its a hard thing to lose, especially for women!Its part of our femininity. Its what you and your girlfriends do at sleep overs, its what you let your nieces play with when they want to give you a make-over.

I just dont think people see the…

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Added by Trisha on September 16, 2012 at 8:00pm — 5 Comments

New to alopecia areata

Hello, my name is Trisha im 21 and have recentely been diagnosed with AA. This is the most current picture. I first noticed a spot a in april that was a quater of this size. Its been very difficult for me considering i do not have health insurance AND my hair was my favorite physical feature about myself. Any words of wisdom would be great, advice, stories. Also, my biggest question is......Will i lose all my hair? does AA always spread? how long would it usually take for all to fall out...?…

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Added by Trisha on September 16, 2012 at 12:00pm — 6 Comments

Aaah help me please!

I am 14 and i have alopecia areata, my real hair is very thin now and i have to wear a wig...i have told everyone at school that its just a few extensions. I am worried they will find out, say if i went to a sleepover or something. so do i tell them or not? and if i do then how?! please help me, thankyou xx

Added by ☆Emily☆ on September 15, 2012 at 7:30pm — 6 Comments

Bald Fashion Fair model

I was at the mall last night looking for some MAC lip glass and I noticed a bald model on the Fashion Fair billboard. Of course I was delighted to see a bald woman. The clerk told me the woman was discovered sitting in Starbucks and offered to model for Fashion Fair. I could not hold back my 2 part emotion; beauty is in the eye of the beholder, but also being in the right place at the right time.

Here is the link for you to see this beautiful model…

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Added by kymkym on September 15, 2012 at 11:30am — 3 Comments

My new update

Hi...haven't been on here in forever. Hope everyone is doing well, I posted some pics to show you that you can have fun doing any hair style these days!! I started losing my hair when I was pregnant with my son 18 years ago, well I don't know if this lovely auto immune disorder figured I had enough fun for my lifetime or what? But I now have eyebrows, all my eyelashes are back, and now I'm going to stop shaving my head since it looks now like a full head of stubble coming in. Anyway...so weird,… Continue

Added by Hope on September 15, 2012 at 1:49am — 3 Comments

My alopecia story in pictures (Part 3)

March 2012

I am now head shaved and getting permanent make-up. I have also noticed I now lack arm and leg hair - so there are a few perks to alopecia universalis i guess

I decided that if I was going to get brave and try to go wigless and scarfless then vacation in the Caribbean was a good place to try it out. I still wore my wig to dinner every night…

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Added by ASRN on September 15, 2012 at 1:30am — 13 Comments

My alopecia story in pictures (Part 2)

So here is the rest of my story

The last picture in Part 1 of this story was October 2011. I had MUCH thinner hair but people still didn't really notice unless I moved my upper layers of hair showed them my bald patches. I still had all of my facial hair. As a woman I never thought I would be happy about that! Haha - now that I have none I would be so happy just to get back there!

November 2011 - this is the month I decided to look into a wig until I got it I decided I better…

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Added by ASRN on September 15, 2012 at 1:00am — No Comments

My alopecia story in pictures (Part 1)

I am not a regular blogger. In fact, I have never blogged about anything. When I started losing my hair I looked to other people's stories for comfort, guidance and to help prepare me for what was still yet to come. I wanted to see real pictures - not text book pics. I write this so maybe someone like me can get the information I was looking for. Some of the pictures will not be pretty but I always try to remember it could be so much worse.

May 2008 - "pre" alopecia…

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Added by ASRN on September 15, 2012 at 12:30am — 3 Comments

"Stop staring and start learning!"

Take a look at this article about a woman with a rare medical condition that only two people in the world are known to have. Once dubbed "The World's Ugliest Woman", she has risen above her challenges and has become a motivational speaker and author. I think this story has a lot of relevance for those of us who feel like freaks due to our hair loss, particularly if we're bald in public.…

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Added by Mary on September 13, 2012 at 8:30pm — 3 Comments

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