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I'm sorry my condition doesn't suit the dress code!

I have been informed this week that my parents and i have got to have a meeting with the headteacher at my school because I refused to take my hat off in a lesson, even though I've had special permission to wear a headscarf/hat for about a year. I couldn't believe it! I'm being punished for wearing a hat..I don't want to wear it! If I didn't have to then I wouldn't...it's hot and it's itchy but they'd complain even more if I walked around with my patches hanging out! This is basically just a… Continue

Added by Keeley Tomlinson on April 22, 2010 at 3:46pm — 9 Comments

Permanent makeup

So it looks like my AT is turning into AU. I've lost the hair on my arms, legs (not so bad!! haha) and the lateral half of my eyebrows. I've been penciling my eyebrows in now for about 2 months and they look really natural but I've come to the point where I don't want to worry about whether or not I've smudged my eyebrow off or not! Has anyone gotten permanent makeup before? If so what was it like and how much was the approximate cost?

Jess

Added by Jessica Frankland on April 21, 2010 at 4:27pm — 8 Comments

revlon vs amore....any advice????

Hi all!!

I am stuck between ordering the amore Codi wig and a new one called Ease by Revlon. Does anyone have any suggestions or luck with either of these brands more than the other? I know I have seen tons of you that wear Codi by Amore. Thank you for the info!

Donna

Added by Donna DeHoog on April 21, 2010 at 2:35pm — 2 Comments

Stable times

Well, it's been a while since I posted my last blog. I've been busy with school and not so busy with my hair... or without my hair, haha.



I'm still bald and my legs are still becoming smoother, as well as my arms.

In general, I don't really care for my almost hairless arms and legs. What I do care about are my eyebrows. Those I don't want to lose, and I'm taking measures to prevent to let them.

I still use the fluid 'DPCP' on my eyebrows, and it works! Sometimes they fall… Continue

Added by Lionel on April 20, 2010 at 4:54pm — 3 Comments

Virgin Blogger - be gentle!

Hi Guys



I found this site through twitter and thought I'd give it a go. Friends/family are understanding to a point, but noone will truly be able to know what you are going through unless they have been through itthemselves - hence why I am here.



It's actually painfully ironic - as a child I had trichotillamania - I pulled out my own hair and had to wear a wig when I was 8 years old. As I got older, my confidence grew, I had good friends, so by the time I got to college I… Continue

Added by Rachel on April 20, 2010 at 2:31pm — 5 Comments

I'm not that old!

So,taking into account Thea's baby steps programme(trademark?) I took my daughters shopping with no wig or scarf! A little girl saw me and said "Look Mum it's Jade Goody's Mum". For those that don't know Jade was a British Z list celebrity who died last year of cancer and lost all her hair from treatment. Now I don't mind the bald reference but I am NOT old enough to be her mum!!!!!!! The little girl must have forgotten her glasses that day? :)

Added by Sam G on April 20, 2010 at 1:13pm — 3 Comments

The new kid on the block

Hello everyone. I have read alot of stories from people with Alopecia. I can't tell you how proud I am of my little Cate. She and her brother are adopted. I miscarried 9 babies and lost 1 foster/adopt baby when he was 8 1/2 months old. Now with my 2,that I have had for over 5 years, Alopecia! I wanted to be so angry at first. Ok, I was. Why her? Why us? Everyone has issues. I just do not understand.

To get back to Cate, she developed Alopecia Areata about 6 months ago. Her long hair is… Continue

Added by Rhonda Pillard on April 19, 2010 at 6:53pm — No Comments

Chat and chat leaders on Alopecia World:-)

There are two ways to access Alopecia World's chat feature.

Simply go to the following web page:

http://www.alopeciaworld.com/chat

NOTE: This page is also accessible via the navigation menu that appears near the top of every page on Alopecia World.

Or, you can use the chat bar that appears at the bottom of every page on Alopecia World.

Alopecia World Chat Bar

If you would like to become a chat leader on Alopecia…

Continue

Added by Alopecia World on April 19, 2010 at 3:30pm — 1 Comment

I want to be remembered...

In the (what seems like never ending) endeavour to convince my mum to let me shave my head she said she was worried because hair is symbol femininity and she doesn't want me to lose that. But that got me wondering...pondering if you will over society.



I don't want to be remembered for my hairstyle! I believe that femininity isn't skin deep. Women should be remembered for their ideas, intellect and their creativity. I go out in the evening to the bars and the clubs and I see women… Continue

Added by Keeley Tomlinson on April 18, 2010 at 6:13am — 5 Comments

In control and loving it

4 months ago, I was in such a different place. My hair was dropping like crazy and I could no longer go out without any head covering. I was miserable and full of self-doubt and definitely not confident. I had just been laid off and admittedly a little afraid of getting back out into the workforce because of alopecia. I was worried and concerned. "How would I go to interviews?" "How would I take people looking at my wigs and wondering if it's my hair?" Such and similar questions permeated and… Continue

Added by Clara S. on April 17, 2010 at 8:03am — 7 Comments

First Time

Ok - I'm feeling pretty low at this moment. I have papers piling up all around me, this week has just been insane for classes and work. I knew it was coming and I planned accordingly accomplishing what I expected to. For that I should be really happy and proud but here I am sitting on my couch with a roll of paper towels crying because it's clear that I haven't come to terms with the fact that there is a really good chance I am going to lose my front hair line soon. I wear wigs everyday and you… Continue

Added by Jocelyn on April 17, 2010 at 12:36am — 9 Comments

The Perks

I’ve been so obsessed lately with the negative effects of my annoying condition; it’s no surprise that I’ve ignored the benefits. Yes, you heard me right. The benefits.



During my son’s swim date with two friends, I decided to come clean to their mommies about why I was wearing a dark headband in the pool. Well, actually, when one innocently removed one of my hairs from my little guy’s swimsuit, an ideal time to broach the subject presented itself. ‘I’ve lost most of my hair,’… Continue

Added by Nadine E on April 16, 2010 at 5:06pm — 4 Comments

Hair is Growing back

I have heard a few blogs about some of you who have had your hair grow back only then to have it fall out again. I feel a miracle has happened because my 9 year old Ashly's hair has regrowth sinse her scalp injections. it's peach fuz mind you but it's hope. I guess we will have to wailt & see how it progresses!

Added by Michelle Isbel on April 16, 2010 at 2:59am — 4 Comments

The Beautiful and Misguided Youth

Thought I'd share an Alopecia based experience with you all.



I was walking down the street with my head band on and it was very windy. I was just minding my own business not knowing that my headband has slipped down displaying my affectionately named 'half fringe'. As far as I'm concerned it's not a big deal...It's a patch, I don't care. But it seems Chavs do care about my hair (not that it's any of their business)

It quickly escalated from insults being thrown to a can being… Continue

Added by Keeley Tomlinson on April 15, 2010 at 5:03pm — 5 Comments

Starting Alopecia Awareness / Acceptance Project

Hi all . . . new to the site but not to alopecia. I am working on a major alopecia awareness and acceptance project . . . we are out there but not OUT there, if you know what I mean.

This could be a great opportunity for healing if you are new to alopecia . . . or if you are comfy with the bald-thing, it's a fun project to work on.

Size, shape, age, gender, race, ice-cream preference . . . none of it matters.

Send me a message if you'd like to hear more . . .

Added by Kari M on April 15, 2010 at 12:52am — 11 Comments

Alopeciapalooza 2010 keynote speaker announced!

Hi Parents. Be sure to wish your Kids with alopecia a Happy "Children with Alopecia Day" Today!!



And what better day than today to announce our Key Note Speaker for Alopeciapalooza 2010!!



Staciana (Stitts) Winfield, fellow alopecian and 2000 U.S. Olympic gold medalist, will talk to us and our CAP Kids about Overcoming Adversity and Finding Your Life Passion, not to mention teach a swim clinic too in Camp Canadensis' olympic-size pool.



Don't Delay! Register for… Continue

Added by Children's Alopecia Project on April 14, 2010 at 2:24pm — 1 Comment

But what if your head gets cold?

This was an excuse given by one of my 'so-called' friends who said (in a round about way) she would no longer hang out with me if I shaved my head. To be fair I don't really care because she's a bit of a b***h and I hate her. (now)

But this got me contemplating my other friends reactions...and family reactions and general reactions (you see where I'm going with this).

I know anyone who doesn't hang out with me because I'm bald isn't a true friend but in this town...at my school, true… Continue

Added by Keeley Tomlinson on April 13, 2010 at 2:59pm — 3 Comments

My Thoughts on AA

General Info.



-Had it since I was 3.

-Have never received any treatment whatsoever.

-Hair was very thin when I was diagnosed. And was expect to be completely bald by puberty. That didn't happen.

-Hair has only recently began falling out in a mass quantity.

-Haven't been to a derm. in 10 years.



So, keeping that in mind... I'm sort of caught off guard by my somewhat recent hair 'fallout'. I've always had thin hair, and a few bald spots that I could easily… Continue

Added by Carissa on April 13, 2010 at 1:11pm — 1 Comment

Camp Discovery/Camp Knutson

"Where we learn the true meaning of strength and courage and where smiles, hugs and laughter, give hope to us all."



http://www.campdiscovery.org/



I'm going to chat a bit about my experiences at Camp Discovery/Camp Knutson in Crosslake, MN. I told a couple here on AW, and they recommend that I write a blog about it...to inform possibly parents or teens that want to go to the Camp or send their kids there.



"For young… Continue

Added by Carissa on April 13, 2010 at 12:29pm — 4 Comments

Deep, hard thoughts

I've been doing well with handling everything. I haven't had a horrible case of Alopecia in the last 10 years, until now. When I was in 1st grade I lost all of my hair a month after my grandma died. It started to grow back and it was all grown in in a few years, even though I had some hideous hair "cuts" in the meantime. I wore a wig in 1st grade, it couldn't have been more obvious. Needless to say, I hardly remember anything about my childhood. I only remember about 10-15 memories about my… Continue

Added by Tara on April 13, 2010 at 1:42am — 5 Comments

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