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Hi Everyone! I'm new here and new to the whole alopecia thing. I was diagnosed 2 months ago with Celiac Disease. I'd suffered for over a year telling my doctors I was losing weight for no reason and I think they just thought I was nuts. I finally got a diagnosis when my daughter was diagnosed with Celiac. Now I feel lost and alone with alopecia. My daughter does not have alopecia and I think I'm confused. Can anyone tell me if my head will still itch even though I'm gluten free. I've been…
ContinueAdded by Brenda on June 11, 2012 at 12:44pm — 3 Comments
I've been a member of this site for a while now and always thought about writing something about my experience so far but never got round to it. In this post I am going to be as honest as possible.
I found out I had alopecia in February 2012. I had one large patch the size of a goose egg at the back of my head. To my dismay I never noticed it although my younger sister had when it was the size of a 10p piece back in December 2011 and she couldn't find it in her to tell me.
I'm…
ContinueAdded by Hayley on June 10, 2012 at 6:30pm — No Comments
we live in such a shallow world
appearances are so highly regarded. It is actually saddening.
If this condition has given me nothing else in the last 12 years- it is the realisation that beauty comes from within.
It really saddens me that some with alopecia are too afraid to even tell people about it because of being judged.
When we die- we are not remembered for our looks, but for the people we are !
As frustrating and upsetting this disease can be, I am thankful…
Added by S alopecia on June 10, 2012 at 12:00am — No Comments
I am planning on going to my first support group this Monday June 11. I am really nervous!!!!!!!!!!!!!!!!!!!!!.....
Added by You can do it : ) on June 9, 2012 at 11:52pm — 3 Comments
http://lifeasabaldgirl.wordpress.com/2012/06/09/1st-day-bald-work/
Please click the link to view the story.
Thank you!
Added by Alliegator on June 9, 2012 at 1:03pm — 4 Comments
Note: This is a theoretic piece of writing. Meaning the feelings were once mine....But seems they are now someone elses.
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Why?
Why is hair such a big part of society?
Isn't it just fur?
It feels silky, it feels nice to touch it right?
What about when someone loses their hair....
Is it funny to hurt them?
Is it right to ridicule them?
Or make…
ContinueAdded by Storm_Uchiha on June 9, 2012 at 2:30am — 11 Comments
About 9 years ago, about 1 year after moving to Atlanta, I started noticing patches of facial hair that stopped growing. I had always grown a winter beard when I lived in New England, but that was going to be a thing of the past. No problem, I thought. I can live without facial hair. Several years went by and I started noticing dime to quarter size bald spots showing up on my head. They'd show up and go away. No big deal. Now in my late 30's, I had alway had very, very thick and full head of…
ContinueAdded by swillard on June 8, 2012 at 8:22pm — No Comments
Has anyone taken Nutriferon, an immune boosting supplement that you purchase through Shaklee??
I recently was advised by a friend who sells Shaklee to give it a try.
Anyone thoughts? experiance?
Thanks.
My sister is called Renée.
Renee and I had a photoshoot last week.
We had lots of fun and the pfotographer got the photo's he wanted.
But when I look through all this picture's Im always a bit jealous of her gorgeous hair.
My hair used to be just like her hair.
When I was going to the barber she went with me and she was going to cut little dead point of while I was going to shave all my hair of.
We had lots of fun beeing there with each other but then The…
Added by Karlijn on June 8, 2012 at 8:30am — 3 Comments
Hello. My name is Justin Dawson. I am 15 years old & have had Alopecia for about 1 year and 4 months now. It all started in mid February of 2011. I was in my room texting some friends while chatting with my little brother, Brendan. You know how when you are texting, you look with your head down most of the time? Well, that's what I was doing. My brother Brendan pointed out a very small circular bald spot on the crown of my head. I looked in the mirror, but it was too inadequate to see. I…
ContinueAdded by Justin Dawson on June 7, 2012 at 8:30pm — 7 Comments
Today was the first day i didn't wear my wig at all at work. Sometimes i'm running late and its not brushed so i'll wait til i get to work to fix it and then put it on. Sometimes i'll just get way to hot and have to take it off. Today i just didn't feel like wearing it. I had a pretty dress on, pretty feather earrings, clear even skin and colorful pretty eye shadow. It was a pretty busy day at the salon i work at and only one person brought it up without me saying something first. He did it…
ContinueAdded by Sheena Tha Cody on June 6, 2012 at 12:52am — 5 Comments
hey!
I am generally a very happy person with a great outlook on life... but I at times I get really down as everyone here does.. so I wrote a bit of a poetic piece to describe the pain ..
What it is like to have alopecia
Losing your hair, losing your femininity
Losing your normality
Years of teasing and feeling like you are being stared at
Having to realise that you will always feel ‘fake’
Hiding behind your wig, fake eyelashes and crayoned…
Added by S alopecia on June 4, 2012 at 8:01pm — 17 Comments
well where can i start firstly i would like to say this to everyone who suffers from this immune condition i feel for you and tottally understand i started as a small patch on my face then started a few more patches i have seen regrowth through using elcon a steroid cream but the side affects are great still using it i have had this for like 9 months now and just noticed about 3 weeks ago a small bald patch on the back of my head so far there has been a lil bit growth there all i can do is…
ContinueAdded by karlo02 on June 4, 2012 at 4:30am — No Comments
During a break, someone told a manager that they noticed dog fur/hair on clothes, & it made them feel uncomfortabale (concerned about it getting everywhere). Maybe I'm being self-conscious, but I'm wondering if it's really the baldness that bothered them. I mean, why would they not tell me but tell a manager? I haven't bewn wearing a hat/wig/scarf or anything lately because I haven't felt liek I needed to.
Added by Angie on June 3, 2012 at 3:03am — 6 Comments
hey everyone
i did a eight mile run on the 26th of may 2012 and i did a eight mile run it was fun and i raised over £800 all the money has gone to alopecia uks charity
Added by ilovethewayiam on May 31, 2012 at 2:46pm — No Comments
I had an interesting moment over the weekend. My daughter and I ran a 5K in my hometown. Her question was simple, yet lead to a more meaningful conversation about Alopecia. Her question, "Dad, why did you start running?"
My running life began at age 10, much like my daughter (who is now 15). In my hometown, I am known for running a lot and running fast. It wasn't always so. In fact, like many of you, I discovered at a very young age that I had Alopecia (age 5) and soon discovered the…
ContinueAdded by Tim Irvine on May 30, 2012 at 12:00pm — 3 Comments
I am sure you all have heard this comment by someone trying to get us Alopecians to see the bright side of not having hair. Well I dont know about the rest of you but this has been very expensive for me.
I was only diagnosed 4 months ago and lost my hair rather rapidly. I went from buying every scarf & hat i could find to hide the bald spots on the top of my head, only to find in a matter of weeks I needed a full wig.
I buy hats, scarfs,glues, combs, full wigs, halo wigs…
ContinueAdded by Klo on May 29, 2012 at 10:00pm — 13 Comments
I have had AU since January of this year. I was wearing a wig or wraps most of the time because I felt self concious but I recently decided to go around everywhere without anything. It was scary but I am so glad I did. I was out with my husband, who is also bald. We make a funny pair. A woman that worked/owned the restaraunt came over to us and asked me very nicely if I had alopecia or cancer. I said I had alopecia and she says, "Me too," and pulled off her wig right there!! I was shocked…
ContinueAdded by kathie on May 29, 2012 at 9:43pm — 11 Comments
Alright, firstly i must say that I'm really excited to be here. Because i want to share my story (on-going) with you..and i really REALLYYYY REALLYYYYY HOPE it might help you..somehow. Because i've been through HELL for the past 2 years.. it was worst last year. I've cried so much..and i practically spent every single day last year and half of this year, trying to figure out what caused my hair loss.. almost every minute,all i'd be thinking about..is my hair..and hair alone. even if i got…
ContinueAdded by Jamie on May 29, 2012 at 6:30am — 2 Comments
Added by Laurie Price on May 28, 2012 at 2:23pm — No Comments
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