So, I am officially a member of Alopecia World....Just recently, Alopecia invaded my world.

It was a Friday, right before Christmas when I began complaining that my head felt sore (like it had been up in a tight ponytail). A few days after Christmas (Tuesday), I noticed an excessive amount of hair come out when I was rinsing the shampoo. The next day I noticed a single bald patch on my part. Thursday, when I was rinsing my hair, a CLUMP fell with a splat and I screamed for my husband.…

So I just started college and for the moment I'm wearing my wig full time (cos its gorgeous and short and its a little easier to get to know people). I plan to wear my scarf after a few days so that the alopecia card is introduced early. But I think I've met a guy who may become more than a friend. I don't want to scare him off, but i really don't like the idea of hiding my alopecia. I was wondering how other people handled similar situations or any advice?

(And yes, I know the whole…

By no means beautiful.

I am not 99% of the people out there.

Then again I never was.

No one ever is.

By mistake or design.

It hurts.

While all of the in betweens have always been hard.

I am still here

While my body can't express the thoughts of this world

My mind still lives there.

In before

Iam

In what could have been.

Hold on.

Hold on.

Iam

Maybe

Maybe

I…

I'm so terrible about updating on here. I know last year I said I started losing hair again, which I still am but on the bright side it hasn't progressed much further. I still avoid gluten because now I get stomach pains along with an ill feeling when I do eat it. Plus, I just feel better. My experience in uncovering the effects of what we eat affects our bodies has been a huge journey for me and I will continue to eat healthy to avoid gluten, processed foods, large amts of sugar, and stay…

Driving home tonight from work, something struck me. For the first time since I was first diagnosed with alopecia at the tender age of 8(28 years ago) I can actually feel the emotional scars fading. No longer do I feel restricted or ashamed of having alopecia. Yes the scars will always remain but fading they are. From all the years that I hid having alopecia, from the shame and embarrassment I felt, the lack of feeling "normal" or even "beautiful" and feeling totally alone. Of doing the…

Hi everyone,
So my hair loss is getting worse and worse by the day and I am thinking about just shaving it all off. the hair does nothing anyway and is disgusting. do you think that you feel better once the hair is gone and you dont have to deal with it anymore??

Thank you,
Jill

Yesterday at work I had to stay late to help unpack some new mannequins that we had received. So, at the store I work at our mannequins wear wigs.. and I thought since the store was closed it was the perfect opportunity to try one on! Hahahaha, it was just for fun, I would never actually wear a wig. But me and my co-workers sure got a kick out of it. :)

PS: My eyelashes are growing back!…

My daughter got AU at age 4 and lost all hair until we started her on probiotice at age 5. Then it almost all came back, and has been back and forth since. She probably has 30% now.

It seems to be going in the wrong direction right now. So we're adjusting her brand/dose. Has anyone else had luck with probiotics?

I looking to purchase a wig. Is there any wigsite/ stores that sell wigs for black women?

rather excited that i stumbled on this site i have been struggling with my AA for awhile now. nice to see people coping with it! i have actually only met one other person with alopecia. a young boy who was a fan of my band. hearing his story was really grounding for me. made me understand im not alone in what im going through. his strength really was inspiring. well i hope to meet many more people and get some support and hopefully give some in the process!

I've had AA for the past 25 year on and off. In 2004 my hair started to fall out again and I have not had a full head of hair since. In 2009 I had to start wearing a wig to cover up the spots. Last year I was pregnant and was hoping that would help with my hair. During my pregnancy it was at a stand still. Balding areas didn't grow and hair I had didn't fall out. Now over the past month (3/4 months postpartum) it has been falling out in clumps. My scalp even hurts to the touch. I won't let…

I've started back at my gym!! At first I was very, very timid. The hat I wear is from Lululemon and like normal ball caps it has a gap at the back where you adjust it. So, the whole gym can see my bald head (with the strands of hair that's left on my head). I'm onto week 2 and even though I get stares ALL the time, I could care less! I feel great. I'm not used to going to the gym decked out in makeup, but I am way more confident to face the world with my brows penciled on and my liner…

I went to the Dermatogist January 19th and got topical steroids to try, 2 weeks on 2 weeks off. I did it for first two weeks but then i decided im not going to bother anymore! Its not a for sure thing, and I really dont want the false hope of it growing back in and then fallling out again some time in the future, Im ok with being bald now. anyway... my roomate is doing nursing and for a project she is going to do it on Alopecia and have me speak, so today we started and she looked at my head…

for the last 3 years I have been conversing daily with a man in australia, whom I consider one of my bestest, supportest, friends. He sent me this a few weeks ago and this being Valentine's Day I thought it only fitting to share it with you all. For it is a wonderful sentiment at anytime to share.

"Only once in your life, I truly believe, you find someone who can completely turn your world around. You tell them things that you've never shared with another soul and they absorb…

I have had AU for 11 years now. I have had times where I get spots but they always fall back out. But in January I was hospitalized with a severe kidney infection. I have a staghorn calculous plus 3 kidney stones and 5 absesis all in my right kidney. My doctor says that the stag horn is almost as big as my kidney. A stag horn is a very larg mishapen kidney stone. Mine lookes like a two headed jalapeno. I still have a drain tube in my back draining out infection. But anyways, a few weeks…

It's been 3 years and 6 months. Unemployment came and went. I had to file for bankruptcy, no money in means no money to go out; no choice in the matter. Difficult to maintain a home with one income where it needs two. I had to give my car back. I managed. I survived because I'm married and my husband works. We cut back as far as possible, even moved into a lesser rent apartment. We were lucky the complex we live in worked with us. While my husband was good with everything we had our moments.…

I found this many years ago. And while going thru some stuff I came across it again.

MY DECLARATION OF SELF ESTEEM

I am me.

In all the world, there is no one else exactly like me. There are person who have some parts like me, but no one adds up exactly like me. Therefore, everything that comes out of me is authentically mine because I alone chose it.…

Not hair related but still alopecia related - I have spent awhile looking at my nails today, all ridges and flaky, I debate often about getting some expensive 'nail hardener' stuff from the shops, but then think is it just a ploy to spend more money.

I also heard that fake nails help real nails to grow as they don't get knocked, yet I also hear fake nails can ruin real nails. Do I stop covering them in nail varnish to recover? Yet colouring them helps me add to me feeling more female.…

Hi Guys,

Hope you are all well.

I am really really confused. I have been diagnosed with Lichen Planopilaris which results in scarring alopecia. In the past month I’ve lost a lot of hair from my crown area and have been wearing my hair back….sort of like a comb over for a girl.

Before the alopecia got bad I always wore my hair open, I’m scared people will soon start asking the reason as to why I wear my hair up especially at family occasions or nights out. My parents are…

i just moved to boston and i'm loving it so far but the air here is very dry. i just saw a picture someone tagged me in and my hair looks so dried out! i know this can be a problem with wigs because our scalp oil doesn't really get on the hair. does anyone have tips for how to deal with this? also, i have bangs and sometimes they get oily and I need to wash my hair but washing it too much dries out the rest of it. any advice is welcome!