I've been busy; been in the world as an alopecian; a woman with alopecia. A woman who was laid off August 2008 when the law firm I worked at closed their doors, due to their own greed, but that's another story.
I felt lucky. I felt lucky because I felt relieved; no more worries that my spots would show; I was a clean slate, a bald head. I felt comfortable. I was most worried about my audience. I'm a musician, a singer/songwriter. I have presented myself with hair pretty much my whole…
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Added by Lili Añel (aka Eulalia) on December 17, 2012 at 10:30pm —
10 Comments
Last week I was grocery shopping and, when I went to check out, a woman approached me to say she thought I was beautiful and that she wished she could do what I do. She went on to explain that she lost most of her hair due to alopecia. I told her I was familiar with alopecia and, in fact, have it myself. She was fearful of what others might say if they knew about her condition, but she really liked my look.
She was wearing a wig and said she normally wears one, so I suggested she…
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Added by Cheryl, Co-founder on November 13, 2012 at 12:51am —
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"The phrase “Once upon a time” promises something: a story of adventure and romance, a story of princesses and princes. It may include tales of courage, hope, and everlasting love. In many of these stories, nice overcomes mean and good overcomes evil. But perhaps most of all, I love it when we turn to the last page and our eyes reach the final lines and we see the enchanting words “And they lived happily ever after.”
"Isn’t that what we all desire: to be the heroes and heroines of our…
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Added by J. Adams on June 19, 2012 at 1:22am —
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I don’t know if it is just me, or if there is a real shift happening in the world. I just know I have not blogged lately because I really have a difficult time thinking of something to blog about.
Few things in my everyday life remind me that I have alopecia areata. I can’t remember the last time that someone asked me why I am bald. I seriously cannot think of one instance in 2012. In fact, these days I find myself looking for opportunities to share.
My husband saw a woman with…
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Added by Cheryl, Co-founder on June 13, 2012 at 5:19pm —
34 Comments
It's been 3 years and 6 months. Unemployment came and went. I had to file for bankruptcy, no money in means no money to go out; no choice in the matter. Difficult to maintain a home with one income where it needs two. I had to give my car back. I managed. I survived because I'm married and my husband works. We cut back as far as possible, even moved into a lesser rent apartment. We were lucky the complex we live in worked with us. While my husband was good with everything we had our moments.…
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Added by Lili Añel (aka Eulalia) on February 12, 2012 at 9:30pm —
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My husband has been working on material for a class on character that he is teaching at a prison. He found himself researching Aleksandr Solzhenitsyn, who spent 8 years in an unfathomable labor camp for writing a derogatory comment about their country's leader in a letter to a friend. Solzhenitsyn later went on to write the classic book - The Gulag Archipelago: 1918-1956 -…
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Added by Cheryl, Co-founder on November 23, 2011 at 8:00pm —
15 Comments
While I am a musician (Singer/Songwriter), I don't exist off the air I breathe. It would be nice. When I was signed to a label in the mid-90s I toured, made very good money. Long story short, my contract with my label was not renewed. It meant "start over". Back to a day job. I burned the candle at both ends, working to support myself, pursuing my musical endeavors, writing performing.
Like millions of other Americans I was laid off in 2008. I work as a temp whenever afforded the…
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Added by Lili Añel (aka Eulalia) on November 19, 2011 at 9:30pm —
14 Comments
My husband and I had an unexpected date night. While I waited for our table, he went next door to the bookstore. He took a bit longer than expected and I waited patiently at our table. He later snuck behind me and handed me a greeting card with a glass heart on it. The envelope read “Just Because!”
The card inside read:
When I think of… Continue
Added by Cheryl, Co-founder on October 8, 2011 at 12:30am —
7 Comments
Here is the video to the interview I did on the NBC 10! Show with the head of Children's Alopecia Project, Jeff Woytovich and his daughter Madison. I commend NBC 10! for having us on and helping me spread awareness by highlighting the upcoming Musicians for Children's Alopecia Project Benefit Concert.
Click
HERE to see the video!
Thank you!
Lili
Added by Lili Añel (aka Eulalia) on September 9, 2011 at 10:30pm —
4 Comments
I'm thrilled that the courier Post a New Jersey newspaper has run a feature in their health/wellness section in today's newspaper about Alopecia.
I contacted them in the hopes they'd do a piece talking about alopecia and the Musician's Alopecia Project Benefit I organized raising funds for the Children's Alopecia Project taking place September 16, 2011 at World Cafe Live! in Philadelphia.
I'm very excited they did such a great job on the piece. As well, the Honorable Mayor…
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Added by Lili Añel (aka Eulalia) on September 5, 2011 at 12:30pm —
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It is amazing how many emails and messages I get about other organizations dealing with alopecia. My canned response has always been, "We are stronger together then we are apart." I mean this, I am not just saying it to be politically correct. When I founded CAP I did so because I wanted more for my daughter then what was out there. The oldest and largest is NAAF and was the only thing I could fine in 2003. They had the annual conference but that was all until they incorporated Charlie's…
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Added by Children's Alopecia Project on July 26, 2011 at 6:00pm —
3 Comments
Well its officially summer in the River City. We have had fires everywhere for months (southern Georgia, neighboring Florida counties to the west and south). Even on some days when it was
actually not too hot to don a wig I left it at home anyway, as I did not want to get that smoke smell in it.
Anyway, have a niece getting married soon. I already have me dress and hair (wig) picked out. I have always instinctively felt [pressured??? obligated??? i worry...] that for formal…
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Added by Laura Adams on June 26, 2011 at 3:41am —
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So, I am working at a Temp assignment while I look for a permanent job. I was on my way to an interview and was a little nervous, hoping that my baldness won't have a negative impact, that I get the job.
as I walk down the street, this man comes up along side me and says "looking good sis, looking good; I wish more women showed what God gave them and go natural like you; I'm tired of all these women with their horse-hair wigs and weaves; they ought to just wear what God gave them.…
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Added by Lili Añel (aka Eulalia) on June 17, 2011 at 8:18pm —
5 Comments
I've been away for a while. Busy, with all of those things and stuff, but thought I'd pop in and beam an update into the yonder.
I attended HairExpo2011 this long weekend with the lovely ladies (and men) of the Australian Alopecia Areata Foundation - I've been calling it the AAAF (pronounced "arf" :P ). It was fantastic! I met some of the nicest people, got to spread the good word about alopecia, and hugged some total strangers. A little exhausting, but awesome. It was also the first…
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Added by Georgia Gardner on June 15, 2011 at 7:35am —
3 Comments
A boss once said this to me, and I found it to be true quite often. Who is going to know you appreciate him/her if you say nothing and just wait like a bump on the log or a hopeful Cinderella behind a door? Be your own champion or magic godmother and GET OUT THERE! Make the first move and talk to someone in a friendly, not morbid, way. Everyone likes attention...to himself/herself...and will most likely come back for more. If someone at home is griping or sulking about your concerns with…
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Added by Tallgirl on May 1, 2011 at 5:30pm —
1 Comment
So I've blogged something similar to this before, but I really need some of my alopecian sisters to help me out, if you can.
I'm writing a piece of theatre about alopecia. I want to tell the real stories of people living with alopecia, who have it now, who have had it, whose children have it. I want to tell your stories. If anyone's interested, I would really live to hear from you (and thankyou so much to those I have heard from already). I want to know about when you first found your…
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Added by Georgia Gardner on March 20, 2011 at 7:00am —
6 Comments
I had my "coming out" for lack of a better term last night. One week ago yesterday I had what was left of my hair buzzed off. Alopecia claimed most of the hair on my head.
I am a singer/songwriter. I had a gig yesterday at Philadelphia's premiere listening room, The Tin Angel. I opened for Vance Gilbert. I've played the Tin many, many times, but never without hair. While I've been walking around bald for one week, this was the first time a large amount of people who both were fans…
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Added by Lili Añel (aka Eulalia) on March 13, 2011 at 5:24pm —
13 Comments
My new wig arrived Thursday. Absolutely gorgeous! very very long chocolatey brown colour. I'll post a photo at some point.
I got it, I loved it. It was brilliant.
And I was a total mess all day.
I'd be totally fine one minute, then all panicy and sad and angry the next. Then I'd be fine. I had no idea what was going on for quite a while.
Then it kind of struck me:
Imagine holding the thing you want most in your hand. Imagine getting that thing which will…
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Added by Georgia Gardner on March 4, 2011 at 11:09pm —
12 Comments
Acceptance is the biggest step. It would be easier if we did not need the acceptance of those we love. My husband is one of the people I fear will not accept my baldness. Next week what's left of my hair will be taken own - I can't wait. I ordered a wig in advance to see if even
like wearing wigs. Mostly I believe I'll be rocking my bald head with some funky scarves or hats when I feel like it.
My husband replies: "as long as you're ok with it, its ok" but never answers me…
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Added by Lili Añel (aka Eulalia) on February 18, 2011 at 1:22pm —
7 Comments
My mum hates the fact I'm bald. She's embarassed by it.
I was in Sydney for a few days with my drama class and had the best time in my scarves, not my wig. My friends dont mind talking about my alopecia and I felt - and, dare i say it, looked :P - great. Whenever we were just around in the hotel, I didn't wear anything, aound the girls at least, and everyone was fine with it.
It made me realise how much pressure I feel from my mum to wear my hair.
It's currently…
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Added by Georgia Gardner on February 18, 2011 at 5:45am —
7 Comments