Imagine this: Years of dedication and hard work towards my first masters degree. With the finish line in sight, my heart filled with nothing but excitement and bliss for what my future holds, only to wake up to spots of bare skin where my hair would usually be. I had interviews and meetings that I was prepared for. I had no doubt in my mind these meetings would open doors to the future I had dreamt about for the past 8 years. Now I felt nothing but self consciousness and anxiety. How…

I love this community. It is helping me to accept my Alopecia Universalis. While I strive to get healthier in hopes of regrowing hair, I've found so many wonderful and caring people on this website who have helped me to accept the condition. I still hope that the autoimmune disease cures itself, but I'm not stressing out over it anymore. 

Today, I created a vlog on doing my make-up and getting ready in the morning. I don't bother with fake eyelashes. I don't have real ones to…

"You can't even see it", the line you get when you first tell people about your alopecia. My mum first noticed my bald spot on my head, she didn't want to tell me at first due to my hair being my favorite thing about me. She worked up the courage over a week to tell me, I remember exactly what had happened in the moments leading up to this. I'd just finished work, mum was cooking tea in the kitchen and I was brushing my hair getting ready for a shower. A few weeks before I had asked my mum…

Hellooooo everybody!

Wow it's been a long time since I've been on the site.  I have missed seeing all the smiles and reading all the stories,  but my prayers and positive vibes have been sent continually.  

I lost my hair in a quick fashion 17 years ago.  It was a 3 week whirlwind of hairloss and wow, it was scary.  Doctors didn't know very much about Alopecia then (well, at least my doctors didn't) and they kept telling me it was just stress.  Sigh.  Have you heard that…

Hi there,

I'm not sure if you are aware, but the FDA announced a public meeting and an opportunity for public comment on “Patient-Focused Drug Development for Alopecia Areata.”

The public meeting is intended to allow FDA to obtain patients' perspectives on the impact of alopecia areata, including on daily life.FDA is also seeking patients' views on treatment approaches and decision factors taken into account when selecting a treatment.

Could you please help…

Dear all,

I just discovered this webpage.

I am AU for about 2 years. And just recently I started losing my eyebrows... one of them is half gone...

I feel as if it is easier for ladies to draw eyebrows... But it sounds really different to me, perhaps, harder to digest as a man...

Can you please advise me what to do or link with other men with similar problem?

Thanks!

Charity Bailey, co-host of RightThisMinute.com, is helping spread the word about women and alopecia by featuring the powerful story of her own sister's battle with the hair loss disease.…

Just last year my daughter, who is in elementary school, lost all of her hair. She's had alopecia areata for a few years but we always managed to cover her bald spots. All of a sudden all of her hair was coming out. It turned into alopecia universalis. At first she wore hats to school, then we got her a wig. Kids immediately made fun of her for not having hair and then for wearing the wig. When school got out for the summer she was so relieved. She had a great low stress summer but just…

Been struggling with AA for twenty years. For me it never ever quite went away. It would move around the back of my head away from my direct view where it’s easier for me to ignore. Once in a while I’d get energized and want to fight it, so I’d start a cortisone and Minoxidil treatment course where for a few months I’d get shots every six weeks. No significant improvement happens, and I’d start fretting over the impact of all the cortisone and so I’d eventually give up and stop the treatment…

i feel really alone, isolated & left out.

my almost 5 year relationship hurts me because I am always to hurt.

its so hard to let someone love you when you don't love yourself. 

i don't know what hurts more.

losing someone you love because of this

or 

loving someone who let you lose yourself.

I've been seeing a psychiatrist for the past few weeks because I felt like I just had too. My anxiety picked up sometime last month, it became a physical thing to me & it's not always about my alopecia (so I think). Lately I've been getting anxious in my dreams, hearing my troubled thoughts as I sleep so when I wake up I'm still anxious and being anxious is all I could think about.

I understand its an internal thing, my subconsious, my stresses and worries, dreams of suicide,…

Has anyone gone to Mexico or the Dominican Republic to purchase the xeljanz?  The name of the pharmacy where the drug was filled.. Can you buy multiple packages of the xeljanz?  Thanks, margaret

EGGHEADS vs A CLEARER HEAD: Mission Accomplished with Bonus Miracle

This blog, written on 9^th August 2105, will be published immediately after the show is…

According to an interview with Vulture that I found on Bet.com, actress Viola Davis struggles with alopecia. 

Many have noted that there seems to be an error in the article: The fact that stress does not cause alopecia, but may trigger it.

Viola Davis is a natural beauty, but there was a time when the actress really struggled with revealing what was…

It has been a while since I have been on the site. The holidays and school took me away for a while but things have settled down again and I intend to do a lot more posts on Alopecia World in the coming months.

I have much news to share, where shall I start. . . .

It was a wonderful holiday season for me, one of the best in years. I had a house full of people for about two weeks straight and I loved every moment of it. Anyone that knows me knows that I love the holidays…

Him: "Girl you are wearin' that bald head, is that for a reason or just for style."

Me: First I give him the side eye, then I reply "its because I look so good wearing it, as you just pointed out."  I continue what I am doing and pay him no extra attention.

Him:  "Haha, your sassy; I like you!  Do you shave it yourself?"

Me: Thinking to myself, really dude?!?!  "I don't have to shave it"  I decide to take the educational route and tell him…

Hello Everyone! I need to vent...

Not only am I loosing my hair, my image, my self-worth, my sense of femininity, at 29, but no one seems to understand. I finally told my mother after several months and she said "well, things like cancer happen as you get older. Its not that bad. It could be worse." My sister in law is belittling the situation too. I feel like no one is LISTENING. Just HEAR me. This is HARD. I know it would be hard for them if it happened to them too!

I needed…

I wrote this blog post on my art website about a year ago, and having just discovered the Alopecia World website, have decided to share it here for fellow alopecians.  Any comments are welcome.

This post is a departure for me, in that I normally limit my musings to those directly related to the subject of art or teaching. But to some extent, my art has always…

For the first time in the 15 years that I have had Alopecia Universalis I started to grow hair. It started a few months ago in July, I noticed a little stubble here and there on my head I kept an eye on it not wanting to get too excited because I do have a condition that refuses to let hair grow. A few weeks passed and it kept growing in to these "fuzzies" , so I decided to take pictures of its progress. Now more weeks have passed and the once stubble had turned into short strands of hair in…