I just returned from a trip that my husband and I have been planning for a long time. I was out of Internet contact for most of the time, and I missed the AW community. I'd like to share a few moments from the trip, particularly some that involved my baldness. I've posted one photo on my page, and will probably put some more up eventually, as well as videos on YouTube of the wildlife.
Yesterday was the two-year anniversary of my shaving my head. I've been publicly "out" as a bald… Continue
Added by Mary on January 31, 2010 at 8:07pm —
so after trying for two years to get pregnant we stopped trying in november...
i found out i was pregnant in december... what they say is true! stop trying and it happens.
Well it came as a bit of a surprise because we were in the middle of selling our house and packing to move!
and i didnt realise morning sickness is so bad!
so many people have said to me that there is a chance my hair will grow with all the hormones and things happening to my body. so far i do… Continue
Added by Alison on January 31, 2010 at 5:10am —
Last night I went on my first date with a wig on. I was nervous and a little self concious, but it was fun and I felt comfortable pretty quick. Im not sure what will happen with this one, but at least now I know that my alopecia is not necessarily a roadblock to finding someone. I can meet people and date and be confident and that's a huge step for me. Every little step I take is another sign that my alopecia is not a death sentence. I can still do everything I wanted to do, and I can do it in… Continue
Added by Andrea on January 28, 2010 at 1:14pm —
Every now and then signing on to Alopecia World allows me to reflect.
To share, also connect with people who's life has been thrown into a spiraling pool of loss, isolation and sadness.
Where the only way to feel accepted in the outside world, is to cover up with head covering.
So here at Alopecia World we are free to shed our wigs, our hats, bandannas and head coverings, that hide our sorrows.
Here we can unwind, disrobe, to tell our stories, pains and… Continue
Added by MiNAH on January 27, 2010 at 11:43pm —
Hello Alopecia Friends,
My daughter Kimi is getting married in September and I, of course, am absolutely thrilled. Her fiance' is a wonderful man who I absolutely love. My dilemma is, as the "Mother of the Bride," I will be in the spotlight quite a bit at the wedding. As a lot of you know, I have a headful of tattoos and do draw attention to myself pretty much wherever I go. I, however, do not want to draw attention to myself at Kimi's wedding because she deserves the whole spotlight. My… Continue
Added by Dotty on January 27, 2010 at 2:19pm —
I just wanted to start out saying that you are really a bunch of beautiful people! With and without hair! I’ve been admiring you’re photo’s and reading your blogs, and I’m really drawn into you’re openness. I’m truly amazed by some of your willingness and creativity to try different things. Whether it’s baring it all, wigs, tattooing, etc… Just illustrates how ones true beauty is really not skin deep!
I truley appreciate reading everyone’s blogs. Especially… Continue
Added by John on January 26, 2010 at 1:58pm —
Hi, if you have read my other two blogs you know I am pretty good with my AU, that I actually in some ways like it at this point. Here are some reasons why
1. I am stronger- this is kinda obvious, we are all stronger because of this, we go through a life changing thing really, especially in our culture where looks are so important, where hair is a billion dollar industry, we are thrown into this and we must deal, we must be ok, and we are. it is only hair. I repeat that to myself… Continue
Added by Erin on January 25, 2010 at 1:00pm —
it's been a year since this problem stared again!! and i'm really scare because it's getting worse!!! the first bald spot it's already full of new hair :D it was really big!! but i have new ones!! and they are not that big, but they are big!! and i notice that i have like 3 new littles spots, and i don't like it, on the big spots i can notice some regrowing, and i some of the old spots are getting bigger, and don't like it, but i'm really scare because i can still cover it, but i don't know how… Continue
Added by brenda j on January 25, 2010 at 1:00am —
I'm not the kind to put much stock into horoscopes, but I checked mine today, and it made me smile.
From Real Detroit Weekly.
Cancer: You can't fix everything all at once. Just because you've seen the light, it will be awhile before it starts reflecting itself in your outer reality. For the moment, all you can do is trust the fact that the seeds for change have been planted and try to keep them watered. Don't look for results or think that the results from this will be what you… Continue
Added by Andrea on January 23, 2010 at 10:07pm —
So about one year to this day I found my first spot...I remember being in complete shock, getting verification from the hubby and thinking "What the heck is this?" I remember going to my 1st doctor is somewhat of a panic and being told "alopecia" and thinking alowhat??? I remember a second spot starting while we were at the cabin and this is where the story turns ugly. I remember that weekend just bawling as I had more and more hair fall out and felt tingling all over my body. I remember just… Continue
Added by Jennifer Krahn on January 22, 2010 at 10:52am —
Joined the gym here in Spain, went swimming this morning, after 2 lengths got called over by the lifeguard. He said "This might sound absurd but you need to wear a swimming cap. It's the rules of the pool." Erm...what? What would be the reasoning of this rule? I would hazard a guess at the fact that hair gets trapped in drains and they want to avoid that. So why would I need to wear one? I looked at him a bit perplexed and he said "I've got one here you can borrow." So I sighed and said "OK"… Continue
Added by Hayley Burton on January 22, 2010 at 9:56am —
Hope is a very powerful ingredient in one's life however so is a realistic point of view. I can hope that today will be a sunny day, I can hope that I'll find the greatest man on earth and I could certainly hope that my hair would come back BUT (and that's a big but) reality must come into play at some point here. Hope will not change the forcast for the day or bring me that great man and hope has nothing to do with making my hair come back. Hope is like daydreaming or wishing. Now I'm not… Continue
Added by Carol on January 22, 2010 at 9:27am —
Last week I attended a meditation workshop. I've meditated for several years on my own accord and figured the workshop would teach me something new. First off we sat around and talked about stress and meditation, something I was already quite aware of. Stress is generally the source of changes in diet, sleep patterns and tension which lead to other health problems such as obesity/malnutrition, fatigue, heart attacks, and weak immune systems which make us prone to infections and disease. Knowing… Continue
Added by Carol on January 19, 2010 at 4:44pm —
I don't really enjoy using the the wig. I find that it uncomfortable. I always feel like it going to fall off or someone's going to pull it off. I used to be able to not wear a wig because I had enough hair to cover but now it can be noticed. So I am considering shaving off what's left and just being natural. My mother thinks i should invest in a different type of wig that will fit better. Am not sure what to do. Any ideas ?
Added by chani trav on January 19, 2010 at 9:44am —
I figured if i start off by listing all the things i hate about alopecia, then it can only get better right? Sure i can learn to accept it but maybe i just want to go on hating it for a little while longer.
Things I hate about Alopecia
1. I cannot wear my hair in a high pony tail.
2. My hair style of choice is a low pony tail or a loose plait
3. I feel i cannot get my hair trimmed because i don't want to go to the hairdresser
4. The way it grows back… Continue
Added by Nicole on January 19, 2010 at 2:00am —
Hey you guys, It's been a while since i have talked to you guys. but since i got the human hair i have gotten my life back. But when i shaved my head last year it felt better getting a fresh new start just like the new 2010! But my hair has been growing back over time and most of my bald spots are covered now and its looks nicer then it ever did.
Well you guys its time to go.
See you next NAAF meeting(:
So remember when you fall hard make sure you come back strong!
Added by Aja Eliazar on January 18, 2010 at 10:51pm —
If Madison Avenue ever created a slogan for life, that should be it. One of the things I learned through dealing with Alopecia (and having my husband suddenly drop dead of a massive heart attack), is that you can't wait until things are perfect -- or even better -- to meet life full on. If you do, you will always be waiting instead of living, and life is short. Like art, your passions are revealed in the process, not the product.
An analogy (and example)… Continue
Added by Marie on January 18, 2010 at 4:00am —
I thought that it was about time that I updated my regrowth blog. I'm really happy to say that the regrowth of hair on my head has been pretty impressive. I've gone from having 20+ patches to them all filling in. Some have still to thicken up a bit.
This is the patch on the back of my head near my crown.
This is the first patch which appeared a year ago. Strangely, it has been the slowest to fill in. It is still filled with… Continue
Added by Robert on January 16, 2010 at 12:20pm —
I just found out that the Minnesota Center for Book Arts has selected one of my pieces, "Autotomy", for their Quantified Aesthetics exhibition that will run from March 12th to June 20th. MCBA is the largest book arts center in the nation, and I couldn't feel more validated!
THANK YOU! The confidence I have gained from being a member of this online community has contributed greatly to my artistic endeavors. As always, I urge you to go out there and find something… Continue
Added by Marie on January 15, 2010 at 7:37pm —
Hi there I was just wondering if there are any with Alopecia living here in Switzerland? I am South African and living here 1 yr already and think it would be nice to hear from you if so. Peharps we could start our own Breakfast mornings or have get togethers like the AW in the States. Look forward to hearing from you soon.
Added by Farial Michaelsen on January 15, 2010 at 11:24am —