I sat at work and and realize I am having a tougher time with her AA then she is... Is it wrong to be a parent who wants their child to get better? I wrote this to my child in hopes she will one day know what I felt as she went through this ordeal.
Everyday I fight to be the person she needs me to be
When deep inside I feel like I am dying
Lost in a world between life and reality
I sit and hope she is stronger than me
Added by Trina on March 31, 2008 at 1:52pm —
It's really interesting, how easy it is becoming for me to forget about Tracey's alopecia! When he was first diagnosed 3 years ago, I couldn't think of anything else! I would look at him and see it, and always wonder what people thought when they would look at him as well. I remember being so sad for him that I would cry! Now, I just forget! My husband and I signed him up for Tae Kwon Do this week and forgot to inform his instructor of his alopecia. When we went for his second class, she pulled… Continue
Added by Tracey & Tammie on March 30, 2008 at 8:08pm —
Well, I haven't posted a blog yet, so I thought I'd share a story. I went to a tattoo parlor with my roommate today to get a piercing. I had been there once before (about a year ago) and the guy recognized me, but then again, how hard is it to not remember a bald girl? Anyways, being curious, he said "So, you don't have any body hair?" I was like, "no," and then preceded to tell him about alopecia and what it was. Needless to say, he had never heard of it (not many have), but was definitely… Continue
Added by Kristen Ridenhour on March 28, 2008 at 11:37pm —
Last Year for the Month of September I collected Donations through my work to send to the NAAF. This Year Im taking it up a step! I have ordered 500 Alopecia Awareness bracelets that I will sell to my customers @ $2.00/ each. My Co-Workers donated the money to buy them so we will get a %100 profit :) I hope to sell them all! Anyone Else doing fundraisers?!? I find it almost exhilirating to be doing something to help further the research. Every little but helps. If you recieve newsletters from… Continue
Added by Chandra on March 27, 2008 at 3:06pm —
In high school I had a really hard time.People treated me badly because of how my Alopecia made me look,I just couldn't win with them.I tried covering it up with wigs and that made them talk behind my back and tease me,then I tried wearing bandanas and hats and it didn't change a thing.I never went to school without my head covered because I was scared of what everyone would say and how everyone would act.After high school I would run into a lot of them and they were all nice to me and some of… Continue
Added by Sarah McIntosh on March 26, 2008 at 5:30pm —
At the age of 23 I already of a great life,I'm bald and beautiful to my handsome fiancé Jacob,we have a beautiful son Mason,we're still working our way up financially but our bills are paid and we always have some extra cash for something extra.I get to be a stay at home mom which is the best job ever,I get to see my son grow up.My fiancé is supportive and tells me I'm beautiful all of the time,I really feel I have a charmed life.I still have other hopes and dreams but right now I am just… Continue
Added by Sarah McIntosh on March 23, 2008 at 8:30pm —
My hands are shaking as I try to type this blog post. Not because I'm upset or scared about anything, but because I'm elated. I've just finished an impromptu dance party with my girls, and I'm exhausted. I was surfing this site, and decided to let my playlist run through all 16 songs. The three of us turned it up loud, crammed into the tiny computer room, and danced ourselves silly. I'm so glad that we had time to be crazy together! I'm so glad that I took the time
to be crazy with… Continue
Added by Janna on March 23, 2008 at 12:13am —
My first encounter with Alopecia was back in 1993 when I was dying my hair and perming my hair like crazy. And I got a brillant idea to try this crap I saw on a late night info-mercial about a hair care product call “Rio Hair”, it was suppose to be an all natural product to relax curly hair. Yeah well, silly me bought into that “infomercial” and purchased a kit. I put this “all natural stuff from Brazil” in my hair and guess what happened...
The spots started a few days later and I… Continue
Added by Yvonne~Yhoney on March 22, 2008 at 3:00am —
I'm currently sitting at work - on what should be a wonderfully long easter weekend - however - I am instead spending my time in an un-airconditioned office, waiting for some people to complete their work so I can do mine. Yay.
Lol - enough of the complaining - it has however given me the time to make my first blog post ever.
I heard of this site from my friend (and leader of the Queensland Alopecia Areata Support Associate) Angela, and thought - wow - I must… Continue
Added by Dominique on March 21, 2008 at 2:37am —
I am so excited!!! I am going to New York this Monday March 24,2008 to get my eyebrows and lashline tattooed on!! I have been living with Alopecia Universalis for 3 years and I am tired of penciling on my eyebrows and lashline every morning. This is going to be such a huge lifestyle change for me!! I plan on taking a ton of pictures so that I will be able to show you all exactley what the process is like for me! The man who I am going to have do the tattoos is a professional make up artist… Continue
Added by Nicole on March 20, 2008 at 11:00am —
Not to long ago I went with my fiance to get his hair cut,the hairdresser making polite conversation noticed that I was sitting near where the had place Jacob(my fiance) sitting.Being nice she including me in her conversation she was making with Jacob when she looks at me and says, it's so nice to finally see a woman in a salon who knows how to take proper care of her hair.Looking at her a little stumped for words I just smiled and said thank you and tried to move the conversation along.A few… Continue
Added by Sarah McIntosh on March 20, 2008 at 12:30am —
My name is Nicole and I have been living with alopecia since 2005. It started falling out in the Spring of ‘05 and by December of ‘05 I was completely bald and all my eyelashes and eyebrows had fallen out. I was devastated. I had grown up as “the girl with a ton of hair” my mom had always joked I had enough hair for ten people. So when my hair started falling out I felt like I was losing a huge part of myself. I remember when I developed several bald spots and had lost about 70% of my hair… Continue
Added by Nicole on March 19, 2008 at 12:30pm —
I had an interesting thing happen to me last night. I was out with my partner, Phil, and an old friend of mine, and we started talking about relationships. My partner and I started the conversation by talking about how we argue often and can both be difficult people at times - he has his reasons, I have mine. Then my friend joined in and started telling Phil that there's no way that I can be that difficult, because a) I come from a really supportive family, and b) I've never had to deal with… Continue
Added by Emily on March 14, 2008 at 11:30am —
I haven't so many beautiful bald people like this ever!!!! This is a big deal to me because people, especially in my own family would have me believe that I should be ashamed of what has happened to me, or my appearance for that matter. I would never forget when a relative said to me, "how can you be bald and be a stylist? I wouldn't let you touch my head!". but I didn't let that jerk the benefit of beliving anything he had to say and I'm glad I wasn't wrong! Just seeing you all makes me feel… Continue
Added by Porcia on March 12, 2008 at 8:27pm —
I'm a walking contradiction of sorts. When I was growing up, I was very comfortable with my alopecia, and got to the point that I would voluntarily shave my hair because I liked the weightlessness and comfort of not having to do my hair every day. However, I have noticed that especially in the last 3 years that I range more from occasional bouts of self-pity to just being all out enraged about the fact that I am 30 years old and I am still dealing with alopecia. Every time I start a new job, or… Continue
Added by kastababy on March 11, 2008 at 10:22pm —
So, we received the finally clips and wig tape for my daughter's wig. Now, we are just waiting until tomorrow to get her wig styled. She is so excited, and so am I. It took a lot to decide on the wig route, and now that it's here we are barely able to sit still. I think this route is going to be great, because regardless of what happens, she can feel confident in her wig, until she is ready to take it off. I hope that that day comes where she is not intimidated by others, or her self. I think… Continue
Added by Miranda on March 11, 2008 at 11:57am —
I had started writing a long, in depth exploration of several issues I have been thinking about since I joined Alopecia World over the weekend. My plan was to post it here, and for it to be insightful and interesting. It was going to include a social and psychological commentary on identity, beauty, and acceptance (or the struggle for it). I have the blog entry saved, and hope to rework it and post it at some point. I think it has potential :). But...it was simply taking too long to get out on… Continue
Added by Emily on March 10, 2008 at 11:27am —
Wow!!! What a great site! And how cool are social network sites! I think Alopecia World is using the same system that we just moved my company to www.CoCreatingOurReality.com. If any of you are following along with the New Earth book with Oprah and Eckhart Tolle you'll enjoy our site...come check it out when you get a chance!
But back to Alopecia World...this is awesome! What a great resource and place for people to meet, ask questions and feel a sense of community! I *LOVE* the… Continue
Added by Laura Duksta on March 8, 2008 at 8:15pm —
Well, I am a writer of sorts, if you've been reading and browsing along this site. I have jumped into this site feet first and I feel more at home sharing things here regarding my hair loss than I have anywhere ever.
Normally I spend my weekends off work watching TV or reading books or cleaning house, but so far I have spent my ENTIRE Saturday on this site browsing, commenting, and welcoming everyone that I have seen! I keep a regular blog on blogger and MySpace, with MySpace… Continue
Added by kastababy on March 8, 2008 at 5:51pm —