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I haven't been on here in so long, but since I have, I've come a long way with the acceptance of my alopecia. I'm in a much better place, even though it still sucks at times...
I got married last September :) and had a beautiful custom made wig for my wedding. I loved it! I wanted long hair and the guy I go to charged me approx $1250! I know , that's alot of money :( but it was a full cap (and I don't have to wear any tape, which I love, because I HATE using the tape!) I previously…
ContinueAdded by Nikki on May 16, 2013 at 11:00am — 4 Comments
Hello everyone,does anyone have any ideas to promote fashion with alopecia? Just because we lost our hair don't mean we have to look a hot mess.your suggestions are needed.
Added by Lavonia on May 16, 2013 at 10:30am — 2 Comments
Hello everyone, my seven year old daughter was diagnosed with AA on both sides of her temple and nape she is balding. She has long hair so we can cover it with her hair and head bands for now.because Alopecia is unpredictable i do not know if all her hair will eventually come out. But I don't want her to feel like she has to cover her balding spots or her bald head for that matter. She also lost most of her eyebrows and eyelashes.i dont want her to have a low self esteem because of her…
ContinueAdded by Lavonia on May 16, 2013 at 10:00am — 5 Comments
It's been a while since I posted on here, and I felt its about time I do. Since September I have been in and out of hospitals, different specialist, and I think my PCP and I see each other more than I see my best friend. LLLOOONNNGGG story short, I have been diagnosed with Fibromyalgia (OUCH!), POTS, and a severe case of restless body syndrome. I am currently on Short Term Disability, have been since January, with currently no sign of me going back to work any time soon. Because of the POTS…
ContinueAdded by Tamara on May 15, 2013 at 11:00am — 2 Comments
After several job interviews, some were successful, I manage baldness now by explaining the situation very simply and quickly at the beginning. Two minutes of explanation are enough to enable my interviewer to focus at other, really important subjects for the job.
Added by Christa M. on May 13, 2013 at 4:35pm — 4 Comments
Really struggling tonight, looking back at me before I lost my hair, and I was so damn beautiful I can hardly believe it. I feel like growing hair is like winning the lottery... does anyone know if people who have been completely bald have grown their hair back? I feel incomplete... I am afraid to go ahead with life, I feel fake without hair.
Added by Keshia on May 13, 2013 at 1:24am — 2 Comments
Added by Devon on May 12, 2013 at 10:21pm — 5 Comments
For the last two weeks I had seen very small hair growing in my left eyebrow, I didn't believe myself and I didn't even wanted to talk about it to anyone, and now I am seeing hair growing in my right eyebrow also my eyelashes, but so far still there's no progress in my head hair, hopefully it will grow back... And the other thing is that I am scoring high marks in my school, I feel so energetic and very overwhelmed these days... I really hope that we are will have some good news in the very…
ContinueAdded by Yuri Kim on May 12, 2013 at 5:30pm — 6 Comments
I hate the way I look sometimes. I look in the mirror and think ugly. I do wear a wig, and I can't decide if it is the alopecia that is indirectly making me feel bad, or just a natural female thing to do. I sometimes see myself in my wig and think I look like someone in drag, I don't know if I see the wig for what it is, fake, but I see beyond the wig and look at my face and hate it...
I look at my body and this is something I can control yet I seem out of control and just see myself…
ContinueAdded by KFlame on May 11, 2013 at 6:00pm — 11 Comments
Well i have not been on here for a while. Nor have i made one of these for a long time. So lets just start by saying if you do not want to be depressed or feel bad then you might not want to read this. There are many things in one's life that people cant change and Alopecia is one of them. Many people on this site find happiness. Many people on other sites find happiness. What happened to me wasn't because of this site. Ever since i was a kid i had Alopecia. Doctors told my parents that my…
ContinueAdded by T on May 11, 2013 at 3:30pm — 10 Comments
Granddaughter is having a hard time when other people come to her and tell her they are sorry that she is going though cancer. She also had a lady come up to her and say to her "isn't that a wig?" And then she pulled it off her head. It was in a mall! This devastated my 11 yr old gd and she left the mall.
What would you do?
Added by grandma concerns on May 11, 2013 at 12:22pm — 14 Comments
Everytime I talk to mom about my state, she goes like "why are doing this to me? Why are you making me suffer so bad?" But I am not making her suffer, I just don't know why is she thinking like this, ever since my father had died two years ago, she started acting so nervous and putting blame on me having this disease... She has this weird thought that I am making my hair fall on purpose to get her attention and to make her suffer. I just don't see the point in this, instead of feeling less…
ContinueAdded by Yuri Kim on May 8, 2013 at 5:00am — 19 Comments
I had these grand plans to get my hair to grow and I have failed at it.I've watched as these spots have roamed around to different areas. Now \\I'm beginning to see patches on legs and on my arms. Iguess I just have to accept this. My depression in not complete and i have left work, not wanting to venture out of my home.people hear have been so cruel.What do we have left? what do i have left anymore? I am such pit of depression that i acnt get myself out of.
Added by michael on May 8, 2013 at 1:00am — 4 Comments
Today was the first day that I ventured out without a hat or wig. Enjoyed wandering through our local garden store and gift shop and then dining at a Mexican restaurant. I received the courage to do this after reading "Boldly Bald Women" by Pam Fitros. Although I have suffered with Alopecia Areata for many years, I only recently lost all my hair to AU. It has been a tough adjustment but have had wonderful encouragement from family and friends.
New to Alopecia World, but thankful for…
ContinueAdded by Janet on May 8, 2013 at 12:30am — 6 Comments
I have had Alopecia for over 20 years, since I was a little girl. So I consider myself a "seasoned veteran" of this disease. For the most part I'm pretty use to it. The unpredictable nature, wearing wigs, the occasional explanation to someone, etc. However, one thing that had always given me anxiety was dating with my alopecia.
I thought that would never be an issue again once I got married, however I find myself back in the dating world and the anxiety is right there with it. Not…
ContinueAdded by Dame on May 6, 2013 at 11:30am — 42 Comments
Last night on Jay Leno he did a bit about why products at the 99 cent store might be 99 cents. He showed a "fashion doll", somewhat like a Barbie, and after he opened it, showed why it was only 99 cents.
The doll only had long hair around the outline of its scalp, and was otherwise bald. He joked perhaps one could do a Donald Trump comb over...the usual yuks.
Then he stated "Maybe its an Alopecia doll I don't know".
I found this incredibly insensitive and insulting. I…
ContinueAdded by Mary on May 4, 2013 at 2:00pm — 7 Comments
Hi!
I've had AA since I was six but recently I've started losing hair all over my body, including my eyelashes and eyebrows. You can't really notice that my eyelashes are falling yet, I think, and I use eyeshadow to fill in my eyebrows but I'm scared it's going to get worse and won't know what to do... What do those of you who have no eyebrows or eyelashes do to conceal this hair loss? I would love to get some advice :) Thank you!
Added by CMF on May 2, 2013 at 12:22pm — 14 Comments
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