Hellooooo everybody!

Wow it's been a long time since I've been on the site.  I have missed seeing all the smiles and reading all the stories,  but my prayers and positive vibes have been sent continually.  

I lost my hair in a quick fashion 17 years ago.  It was a 3 week whirlwind of hairloss and wow, it was scary.  Doctors didn't know very much about Alopecia then (well, at least my doctors didn't) and they kept telling me it was just stress.  Sigh.  Have you heard that…

I recently came across an article on QC.com and pulled a few excepts:

 "Justin Hopwood's perfect looks helped him land a perfect career, traveling the world to model for Ralph Lauren. Then he was diagnosed with alopecia. What do you do when you lose your money-maker? Especially when that money-maker is a perfect head of hair? He's trying to figure that out."…

The Snowy Day-Zak Reynolds

This is a link to my write up for Denver Center for the Performing Arts, The Snowy Day. Sept 21-Nov 18

Come see !

I just found out that I have FFA.  I'm really hoping someone with tell me a success story and what they did to keep their hair from falling out.  It's really hard to have something like this happening.

I deactivated my Facebook account. Not forever just until I’m in a good place mentally. I was spending too much time looking at my forehead in pictures trying to gauge when my hairline first began receding. I also found myself looking at everyone else’s hair and forehead thinking she has beautiful hair and a perfect hairline. Facebook was hurting me. I could feel myself slipping into a deeper depression. I look forward to one of these two things in the future: the feeling of relief because I…

My son first developed AU within 3 months of starting Pre-Kindergarten at our elementary school.  it continued through the 4th grade.  In 5th grade they go to another school and that school had mobile classrooms that were built in 2000.  His hair started coming back and by the time he entered the Middle School for 6th grade he had all of his hair back.  for 6th, 7th, and 8th grades in the middle school he never had a problem.  The middle school was built in 1997. 

Then…

Hi everyone!! I just want to take a moment and talk about my experience with Joli Chameleon. I wear the Joli Dancer Wig almost everyday of my life. I also workout almost everyday of my life, so that is a lot of sweating and washing done to my hair. I am so thankful that my Joli Dancer has been able to withstand my lifestyle and I've been able to live comfortably and confidently.  Joli Chameleon is a company that truly puts you first and wants to make sure you are able to live your best life.…

I have had Alopecia Universalis for 45+ years. While anything is possible, I have heard more so called cure claims than I can remember. The only thing predictable about this condition is its complete unpredictability, unless you have it to my extreme. I took Prednisone, as prescribed by a dermatologist not an endrocronologist, way back the late 60's and almost all my hair came back, for about a month. When I stopped taking it, like our standard doctor told me to, because of all its side…

Hello....has anyone converted to a raw food lifestyle?

Has you seen any significant changes in your hair or alopecia?

I would love to hear your thoughts.

Thanks,

Vickie

When I see a strand of my hair, I pick it up right away and check to see if it has the root attached. If the root is attached my heart hurts for it. If it’s broken then I’m a little relieved because it means the other half with the root is still on my head.  This is a never ending emotional roller coaster. It’s really a nightmare I want to wake up from but the truth smacks me in the face several times a day when I see a strand on my desk, floor, bed, chair, counter, etc. I have lichen…

I personally have 3 SNP's on my VDR gene which makes is harder for me to convert sunlight into Vitamin D..I also have a gene that make me prone to skin cancer...hence my dilemma

Vitamin D receptor regulates intestinal proteins…

Hello Alopecia World Community, 

It has been over 5 years since I've been active and here I am again. I was reading through some of my old blog posts and it was at a time when I was lonely, not feeling accepted, and losing most of my hair for the first time. Since then, I found love and got married! He doesn't have AA, but he did lose half of his hair from regular male pattern baldness at some point in our marriage so now he shaves his head bald too =p

I even had my…

Hello, everyone I am pretty new to this site but I do have one question if anyone can help me out.. so about a month ago I found out I had alopecia areata. I have a rather large bald top on the top front part of my head. Over the past few days I have noticed that the bald spot and the area surrounding it has become flaky with the skin just flaking off. I can take my finger nail to it and peel it off. I was wondering if anyone else has experienced this? it might just be two separate things…

Having body hair is loaded with social judgement for women. For men, it's a sign of traditional masculinity that is still alive and kicking. These days, more and more men are trimming or completely getting rid of their body hair but for some guys, not having that choice is a big influence on how they feel as men.…

I have been taking Xelganz for about a year just this month my insurance approved my coverage. It has worked great on hair regrowth all over my face and body (except for male pattern baldness). The issue I have had with this drug is the numerous upper respiratory infections and chronic coughs. I also have many dysplastic nevus on my back and upper abdomen which puts me at higher risk for skin cancers.

My dilemma is I have a two year old beautiful baby girl. I love the way this drug…

Hi there,

I'm not sure if you are aware, but the FDA announced a public meeting and an opportunity for public comment on “Patient-Focused Drug Development for Alopecia Areata.”

The public meeting is intended to allow FDA to obtain patients' perspectives on the impact of alopecia areata, including on daily life.FDA is also seeking patients' views on treatment approaches and decision factors taken into account when selecting a treatment.

Could you please help…