Hello friends!  I'm Lina and I've had alopecia universalis now for almost 7 years.  The first 3 years where a period of shock, suffering, depression with some hope that I'd have regrowth.  That didn't happen but  with some support, love, great wigs, nice skin, and some make-up, I look and feel normal.  It does not define who I am but it is a part of me now.  I've accepted it.  It took years to learn the magic of make-up but now most people are SHOCKED when I tell them I'm bald :D.  I get a…

Hi everyone, 

I found out three months ago that I have female pattern hair loss. My hair had been disintegrating for over a year but I didn't know what was causing it. I'm in my mid twenties and have a brother a year younger who's losing his hair too. I knew my dad went bald at a young age, but never in a million years would have guessed I could inherit the hair loss as a girl. 

My dermatologist has me taking 200mg spironolactone and using the 5% minoxidil foam. I'm still…

Hi everyone,

I've never written on a blog before so I am hoping the I can learn from reading about other peoples experiences but also get some thoughts regarding my own.

In the last 3 months my hair has gone from having one small 10 cent piece patch missing behind the right ear to multiple patches across my scalp and hair loss on my arms and legs (patchy).  By the time I saw a dermatologist on April 18th (with a complete battery of blood tests having just been…

Hey,

I'm new to this so it feels weird to be typing my first blog post as an unidentified person but here we go...

I'm a natural blonde which people have told me is the weakest and thinnest hair type, but back in school my hair was thick and healthy like both my parents. It was only until around age 24 that I noticed how light weight my hair had become and before I knew it, my hair had definitely thinned to half of what it was. My part is much thinner now and my…

hi everyone 

Iam new here :) ,, I feel really very comfortable here.

I have alopecia near universalis ,, married & we love each other som much . Recently we discovered that my husband has Ulcerative Colitis which is an autoimmune disease affecting colon causing bleeding per rectum & diarrhea but his case is not that severe .

now we R consenrned about having kids. we R affraid that our kids would inheret one or both of these autoimmune diseases . I dont want to…

Hi everyone! I'm new to the group here. After years of fighting with thinning hair and hair loss I finally gave in and bought a wig this week.  My mother has Alopecia and I knew at a young age there was a good chance it would happen to me but never expected it this quickly.  My youngest daughter died 13 years ago and that's when I noticed it getting worse. My Dr. confirmed it was Alopecia and that the stress I was under triggered it. I was amazed at how emotional I felt over losing my hair.…

Hello everyone,

I wated to ask if anyone had an experience with their child loosing eyebrow hair too in alopecia?my son has had it since more than a year, will his hair come back,Anybody knows anything that works?

Well, what can I say? I hang my head about my shameful, childish behaviour today. What a tantrum I had. Even threw my wig over the balcony into the garden 2 floors below. The reason? I have washed it 3 times in the last week trying to get it not to bunch up in the back. I don't know why it is doing this, it rarely happens. It is a remy hair wig and usually I don't have this problem. I am over it!

Since I lost (and found) my virgin Freedom hair wig I have felt so insecure about myself.…

Hi I am new to this group. I am looking to meet like minded people that can support me, I experienced hair loss, bald patches due to the use of treatments etc and launched the hair heals campaign. Really looking to get a group of people that understand me together and assist in raising awareness here in the UK.