Hey Everyone!

So just a brief history.

I've had AU since June 2014. It started of as AA to AT to AU. All my hair fell off, from everywhere, including eyelashes and eyebrows. I've tried all forms of treatment, be it steroid tablets, injections, mynoxidal solutions, UV therapy, you name it. None of them worked. My eyebrows and eyelashes did grow back. In 2016, my hair grew back for around a month and then it fell again. 

After that, I sort of gave up and went off all…

Greetings, I have Frontal Fibrosing Alopecia. It is an insidious disease. I am on meds, but I want to stop. I have so much anxiety about my hair. Watching the slow progression of my hair loss and wondering when the next flare will occur and how much it will take causes me to despair.   I have started to wear my hair up. I want to wear this with pride. I feel like shaving my head will rid me of some of the anxiety of waiting for it to go. Tell me about your experience of shaving your head. I…

For the last two years I've successfully received reimbursement for my wig once a year for $350. It's always been a fight, the first time I had my states attorneys office step in, the second time I was able to do it on my own even after the claim was initially denied. This time I am completely unsuccessful. I contacted the states attorneys office a while back but never got a response. Now I was just told that my claim would not be granted because it is "cosmetic". Which is BS on its own…

""Bald is beautiful" isn't just a motto for one Gilbert Middle School student— it's a lifestyle."

I recently came across this article on wxlt.com that I thought I would share with the community.

"Gracie Ann Roland was diagnosed with alopecia, a condition that causes hair loss from some or all areas of the body, a year ago."

"Rather than letting her…

I been diagnosed with Alopecia universalis since 17 years old, I am 25 now and I am still the same. This year is my first year I am barley starting to feel a little more comfortable with telling people about my condition. It is extremely still hard for me to be open about it, because deep down I still feel very different from everyone else.

Hello everyone, I finally have had the courage to speak up and say I HAVE ALOPECIA! Since the age of 11 till now going to be 20. It has been emotionally painful  having to loose my hair at such  a young age. Also, I came to a point where I hardly came out the house because I felt really uncomfortable for everyone to notice the patches on my scalp. I have also tried and experiemnted on various different treamnets and all have failed. I have now lost more than 80% of my hair and my eyebrows…

Hi everyone! I am a new member here. Are here people who tried treatment with NAC and methyl forms of vitamins B?

I have alopecia since 2010 when I was 19. It became universalis in 2012. I never tried immunosuppressant therapy, however I know it could help if I try. But I believe that it could make things worse after treatment cancellation.

I am trying not to inhibit my immunity, but make it work on right way.

I tried different things, and last…

Is there a support group in Cincinnati, Ohio?

Hi, i'm usually going "topless", with no wigs or scarfs, for years. And for the first time I want to emphasize my head on our annual costume party. Do you, dear friends, have ideas for "bold" costume? The only one I found it is about dragonmoon superhero, and it won't be familiar to my colleagues :)  

Hi, so glad to have found this forum, just before Christmas I went to have hair cut and my hairdresser was in shock at the loss of hair on my scalp since the last cut.  Needless to say he was pretty blunt and filled me in with horror stories.  I promptly went home and search Ed for a dermatologist in Melbourne who specialises in hair loss and managed to score an appointment on a cancellation.  Fast forward I had my appointment and apart from my diagnosis have been prescribed : aldactone,…

Hello!

I have Alopecia Universalis and had been taking Xeljanz consistently for about 3 years. Once totally bald, with Xeljanz, ALL of my hair returned. It was a miracle! 

4 months ago, I got pregnant, and stopped taking Xeljanz. About 3 months in, my hair started to fall out (seemingly overnight!). As someone who has been down this difficult road before, it is quite terrifying. :(

Post-pregnancy, once I return to Xeljanz, I am hoping and praying…

Follea is giving away a free hairpiece!

(Click the link below for all the details and to sign up.)  You need to sign up by 2/1/18.

Follea Giveaway

Also - please follow the Follea Direct Sales Team on Facebook for styling tips, and other fun Follea fare!

The Follea Direct Sales Team on…

Hello everyone,

A friend gave me a bottle of shampoo called Lambdapil.  I looked it up and it is a whole line of products for hair loss.  Have anybody used Lambdapil?  Let me know... thanks! Mari

"You can't even see it", the line you get when you first tell people about your alopecia. My mum first noticed my bald spot on my head, she didn't want to tell me at first due to my hair being my favorite thing about me. She worked up the courage over a week to tell me, I remember exactly what had happened in the moments leading up to this. I'd just finished work, mum was cooking tea in the kitchen and I was brushing my hair getting ready for a shower. A few weeks before I had asked my mum…

Hello everyone,

March 2016: I got AA 9 years back. It slowly developed into AU. I tried many doctors, many treatments and nothing worked. I started accepting my condition after joining this group and learned to live with it, which is a good thing. At the same time, I was starting to give up hope.

Two years back, I thought I'll try my last shot with Dr.Richard Strick. At first I was skeptical with the treatment. I have tried a similar one where the cream irritates the scalp and…

anyone out there have experience with permanent makeup?  I’m thinking of getting my eyebrows done. I’m tired of having to draw them on each morning. Micro blading seems the way to go. More natural looking. Any thoughts?

Hello. I have been diagnosed with alopecia areata. I have only had it for about a month and have many patches all over my head. I was just put on prednisone for 24 days and a topical cream. I was hoping someone here has had experience with prednisone and if it did any good. Also, if you have many patches, at what point do you know if you might lose eybrows or go totally bald? I am in need of support, This is just happening so fast. Thanks. 

I am here to ultimately say, that yes shaving my head was one of the hardest things I have had to do, but I have gained a lot of self confidence since. I no longer want to turn away in the mirror but have never seen myself as beautiful as I do now. My alopecia has motivated me to get more active and healthy in my lifestyle and become more outgoing. Although sometimes, days can be hard and of course firsts are always hard. Your first time shaving your head to start and following, your first…

I thought I would write a quick blog about my experience. I am currently 38 years old. I had a full head of hair for 37 years. I lost my older brother three years ago and was severely depressed as he was my best friend. Shortly after I noticed my beard was thinning out then about a year later I had a bald spot on the back of my head that my barber noticed. Very quickly I progressed to universalis. Needless to say I was shocked at losing my hair and how fast it progressed. I work as an…

Please post or inbox your experience. 

My Wigs and Weaves is based out of Memphis, Tennessee and many people have paid them hundreds and thousands of dollars and never received their wigs (myself included) and can not get anyone on the phone or through emails.

If this happened to you, please share.