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Is there a support group in Cincinnati, Ohio?
Added by Dolphingirl on February 2, 2018 at 9:39pm — 1 Comment
Hi, i'm usually going "topless", with no wigs or scarfs, for years. And for the first time I want to emphasize my head on our annual costume party. Do you, dear friends, have ideas for "bold" costume? The only one I found it is about dragonmoon superhero, and it won't be familiar to my colleagues :)
Added by olkabul on January 25, 2018 at 7:39am — 2 Comments
Hi, so glad to have found this forum, just before Christmas I went to have hair cut and my hairdresser was in shock at the loss of hair on my scalp since the last cut. Needless to say he was pretty blunt and filled me in with horror stories. I promptly went home and search Ed for a dermatologist in Melbourne who specialises in hair loss and managed to score an appointment on a cancellation. Fast forward I had my appointment and apart from my diagnosis have been prescribed : aldactone,…
ContinueAdded by Plf on January 25, 2018 at 12:48am — 2 Comments
Hello!
I have Alopecia Universalis and had been taking Xeljanz consistently for about 3 years. Once totally bald, with Xeljanz, ALL of my hair returned. It was a miracle!
4 months ago, I got pregnant, and stopped taking Xeljanz. About 3 months in, my hair started to fall out (seemingly overnight!). As someone who has been down this difficult road before, it is quite terrifying. :(
Post-pregnancy, once I return to Xeljanz, I am hoping and praying…
Added by LauraL on January 21, 2018 at 12:23pm — 3 Comments
Follea is giving away a free hairpiece!
(Click the link below for all the details and to sign up.) You need to sign up by 2/1/18.
Also - please follow the Follea Direct Sales Team on Facebook for styling tips, and other fun Follea fare!
The Follea Direct Sales Team on…
ContinueAdded by Divoicer on January 20, 2018 at 12:29pm — No Comments
Hello everyone,
A friend gave me a bottle of shampoo called Lambdapil. I looked it up and it is a whole line of products for hair loss. Have anybody used Lambdapil? Let me know... thanks! Mari
Added by Mari1116 on January 14, 2018 at 11:48pm — No Comments
"You can't even see it", the line you get when you first tell people about your alopecia. My mum first noticed my bald spot on my head, she didn't want to tell me at first due to my hair being my favorite thing about me. She worked up the courage over a week to tell me, I remember exactly what had happened in the moments leading up to this. I'd just finished work, mum was cooking tea in the kitchen and I was brushing my hair getting ready for a shower. A few weeks before I had asked my mum…
ContinueAdded by sunnysideupsoph on January 3, 2018 at 4:30pm — 3 Comments
Hello everyone,
March 2016: I got AA 9 years back. It slowly developed into AU. I tried many doctors, many treatments and nothing worked. I started accepting my condition after joining this group and learned to live with it, which is a good thing. At the same time, I was starting to give up hope.
Two years back, I thought I'll try my last shot with Dr.Richard Strick. At first I was skeptical with the treatment. I have tried a similar one where the cream irritates the scalp and…
ContinueAdded by Surya on December 28, 2017 at 5:30pm — 18 Comments
anyone out there have experience with permanent makeup? I’m thinking of getting my eyebrows done. I’m tired of having to draw them on each morning. Micro blading seems the way to go. More natural looking. Any thoughts?
Added by Anne Williams on December 27, 2017 at 4:28pm — 3 Comments
Hello. I have been diagnosed with alopecia areata. I have only had it for about a month and have many patches all over my head. I was just put on prednisone for 24 days and a topical cream. I was hoping someone here has had experience with prednisone and if it did any good. Also, if you have many patches, at what point do you know if you might lose eybrows or go totally bald? I am in need of support, This is just happening so fast. Thanks.
ContinueAdded by Sam on December 26, 2017 at 4:38pm — 3 Comments
I am here to ultimately say, that yes shaving my head was one of the hardest things I have had to do, but I have gained a lot of self confidence since. I no longer want to turn away in the mirror but have never seen myself as beautiful as I do now. My alopecia has motivated me to get more active and healthy in my lifestyle and become more outgoing. Although sometimes, days can be hard and of course firsts are always hard. Your first time shaving your head to start and following, your first…
ContinueAdded by Christinarose on December 19, 2017 at 8:30pm — 2 Comments
I thought I would write a quick blog about my experience. I am currently 38 years old. I had a full head of hair for 37 years. I lost my older brother three years ago and was severely depressed as he was my best friend. Shortly after I noticed my beard was thinning out then about a year later I had a bald spot on the back of my head that my barber noticed. Very quickly I progressed to universalis. Needless to say I was shocked at losing my hair and how fast it progressed. I work as an…
ContinueAdded by OrthoDoc on December 17, 2017 at 5:29pm — 3 Comments
Please post or inbox your experience.
My Wigs and Weaves is based out of Memphis, Tennessee and many people have paid them hundreds and thousands of dollars and never received their wigs (myself included) and can not get anyone on the phone or through emails.
If this happened to you, please share.
Added by Hairvenly on December 15, 2017 at 5:02pm — No Comments
berberine, curcumin, cordyseps, red yeast rice and salacia are all natural JAK1/2/3 inhibitors
I'm going to be taking these for three months...will get back with results
there is a microbiome connection ...video mentions antibiotics checking rat induced…
ContinueAdded by Mike Staffieri RHN on December 13, 2017 at 10:00am — 2 Comments
Added by Pat D on November 22, 2017 at 10:12pm — 4 Comments
So I know I shouldn't be shock or numb but for the past 4 yrs I have been so blessed with a lil one who know no different when it come to someone with or without hair. he runs around like nothing is wrong and I'm so grateful for that.
Added by stephinee L Dawson on November 21, 2017 at 12:26am — 1 Comment
Please send me a message or a reply if you would like to help me with an art project. I only need your answers (no biographical information tied to you or your name).
1) About how long ago were you diagnosed with Alopecia and about how long has your hair loss been noticeable?
2) Have you ever been bald in public? If so, what gave you the courage to leave your home bald?
3) Have you ever been bald in public? If not, what would give you the confidence to do so?…
ContinueAdded by Lynn on November 13, 2017 at 12:30pm — No Comments
Added by Angenetta Whites on November 11, 2017 at 11:31am — No Comments
(https://www.ncbi.nlm.nih.gov/pubmed/28884378) Here is the link on the study that honestly lead me to this website. I am extremely pleased with the way the research was conducted and the detail to which it was conducted. It was published by an MD/PhD which if you dont know gives them even more credibility. Basically in America our brightest minds go into the medical field but in Asia their brightest minds go into biomedical research…
ContinueIt will be a year now since i have shaved my head. Well the few patches of hair that still stood strong. And i can say this year has been a crazy train. I was getting steroid injections every 4 weeks last year up until the point i shaved my head. Soon after, i noticed a hump on my upper back. I also gained some weight. Came to find out i developed Cushings Syndrome from the steroids. Long story short i am still battling weight loss and still have the buffalo hump......
Other than that…
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