Hello everyone. I am so happy to find this online community. I was officially diagnosed with alopecia areata today and spent a lot of time crying. I am not new to auto-immune diseases with having Hashimotos and Celiac's already. My bald spots literally came out of no where and now I am trying to get my mind wrapped around what this means for me. The doctor prescribed a steroid to put on my scalp, and would like to hear the communities experiences and opinion on this. Thank you 

My name is Nicholas, I come from Cyprus and I want to share my alopecia story. Couple of years ago I started having alopecia signs, a bald patch on my beard near my chin. At first, I didn't even pay attention because it was quite small. Unfortunately things got worse. One more patch appeared on my beard and then another 4-5 patches on my head. Needless to say I got really upset, so I visited a doctor whose reaction was unsympathetic and not at all reassuring. He just said that it is alopecia…

Seems like an oxymoron, right? 

How could there be advantages to this condition? It makes us alopecians feel ashamed. It makes us feel different. And it makes us live in fear, a lot of the time...especially if we're still at the stage of covering our patches with stick-on pieces or wearing a full wig.

It can even lead to us feeling anxious and depressed – something I have…

I was watching the Dead last night, they have added a new character, It was a woman who Is the head of a clan, she Is bald, and no nonsense, and obviously shaved a full head of hair for this role, now my point, It would have been so cool If they had tapped lets say an alopecia site looking for aspiring actress with no hair, she could have kicked ass and got the word out, your thoughts, It dont happen all the time just every once In a wile something  just pains me

The 'This Is Me Foundation' is offering up to four $500 scholarships to graduating high school seniors in the United States who have/had alopecia and are pursuing advance level education.  Apply directly or download an application by clicking here -> http://www.thisismefoundation.com/national-scholarship/ ;

Email us at info@thisismefoundation.com with any questions!

Hi everyone, a lot of things have changed since the last time I logged on (6 or 7 years ago, I did it with a hotmail user); I had several turning points in my life, started a few projects, some are succesful, others failed miserably, but I still on my feet and quite happy.

I wish everyone a happy new year, success in your plans and love, tons of love.

This is a restart in the best part of my life.

Best…

Did anyone read the study about Columbia university had done with xeljanz, 

https://www.hairlosscure2020.com/columbia-university-alopecia-areata-study-volunteer-enrollment/

Please look this up

Hello all,

My friend is wanting to donate her hair to an organization that makes wigs for individuals who have alopecia. However, her hair has been dyed. Does anyone know of a reliable organization that will accept her hair? I appreciate any help and responses. 

Sincerely,

Lauren

Hey Guys,

I've had hair loss since July 2013 when I was 16, The hair loss started on top of my ears, and slowly started on my crown in circular patches. I've always had very long and thick hair so It was always something I could hide until it started on the back of my hair and more on the sides and became extremely noticeable.

Anyway, I write this blogpost because I'm confused. My hair will grow back in some areas, but always fall out again during Spring time (in Australia it…

74 year old white male.  Starting getting bald spots in hair and in beard about 13 months ago.   Looked on line and decided to heal myself.  Started taking Quercetin 500mg 4 per day and drink buckwheat tea 2 times daily.   My hair has started growing in and filling the bald spots on head and beard within the past 4 weeks.   I honestly do not know if this self curing process is the cause on new hair growth or not.  But it is not expensive and in my world it helped.   Also I lost all of my eye…

I have battling with alopecia since my early 20s. I continue to wear wigs because I’ve been embarrassed and a shamed for losing my hair. I decided to post this picture to help me face reality because I’m not alone. For a woman that is a very hard thing to accept , I have decided when I turn 50 I would no longer wear wigs but I move to Arizona that heat might make me change my mind LOL. I am 48 years old I single mother of four children, Hard-working person with a huge heart. The main thing I…

Hi,  Read about people using markers to make their wigs look "rooted," so I did -- not using Sharpies, but regular markers. Dumb.. All along the part now, the hair is broken and looks frizzled and fried. Took the scissors, cut off all the little pieces I could. but now it has that "wiggy" look that it didn't have before.

Have read about fixing frizzy synthetics on the net, but never about if there's a way to fix a frizzy part. So far, besides cutting, tried smoothing it with a…

20 years ago I bought my first Freedom wig and I was in raptures. The hair was absolutely beautiful with great movement and the fit was awesome. I did everything in it, but unfortunately I worked outside most of the day in the heat and after two years I decided it was just too hot to keep wearing it. So I put it away only bringing it out on rare occasions which I switched to lace wigs, then to thin skin wigs which became my favourite because it stayed on without glue or tape much like the…

I think it's funny how everyone categorizes Alopecia Areata ,Totalis, And Universalis as an Automune disease .  I'm not saying that it's not , but I was told by a number of specialists that it is just "believed " to be an autoimmune disorder.  I was told that there isn't 100 percent solid proof of it being autoimmune. I was told that the cause is unknown.  There are theories as to why it happens, autoimmune being one of them.  And I was told that research is still being done regarding the…

I am new to this site but dealing with AA for about half my life (25 years). My AA has suddenly acted up and I have lost more than 50% of my hair. I wear a headband but even then, my spots sometimes show. I was on prednisone for a while, which helped, but my doctor kept reinforcing what I know is true - that is not good to stay on that for long so I stopped. Well now I am trying squaric acid with no effect yet. I am sometimes just so embarrassed to wear head scarves and to know my spots are…

Imagine this: Years of dedication and hard work towards my first masters degree. With the finish line in sight, my heart filled with nothing but excitement and bliss for what my future holds, only to wake up to spots of bare skin where my hair would usually be. I had interviews and meetings that I was prepared for. I had no doubt in my mind these meetings would open doors to the future I had dreamt about for the past 8 years. Now I felt nothing but self consciousness and anxiety. How…

Hey everyone! My name is Allison and I'm new to alopecia world! I wanted to seek advice on my eyebrow. Recently, I lost half of my right eyebrow. I see some hairs growing in, and I was wondering how long it might take to grow completely back. Also, is there a way to prevent more eyebrow hair from being lost? 

Hi 

  I havent really been doing treatments for my alopecia areata right now and its been 10 years, since I have alopecia.  I was kind of seeing a hair specialist and told me my hair is going to grow back but don't know when.  I'm thinking of starting treatments again so the whole process can be faster.  I had thyroid cancer and got stressed out and lost my hair bacause of stress.  Does any one know of treatments that work…

Harvard Medical School is conducting a short survey about out of pocket medical costs associated with alopecia areata 

A research study being conducted by Brigham and Women’s Hospital is seeking to learn more about understanding the out of pocket expenses for patients with alopecia areata. …

Hello All,

What the journey we go through with this thing called alopecia areata.

I've just returned from the www.naaf.org conference and want to let you know that once again I had another, yes another wonderful experience of my life! 

I celebrated with old friends and met new friends. 

Thank you all for you being you!!!

Love and hugs!

Jeff