I was recently diagnosed with FFA . The Dermatologist gave me a topical for my scalp, prescribed 200mg of Hydroxychloroquine , set up a follow-up appointment for six weeks , and told me to find a support group.

And then 1 week later , corona virus happened !

so all my appointments were canceled and also a Second opinion appointment I was able to set up, was also…

I have not logged on for a while, now I have been furloughed I’ve got time on my hands, how is everyone coping at the moment with this horrible situation, be good to chat with people 

A few people have asked about the new Coronavirus (Covid-19) and if we are at more risk because we have alopecia.  I did a search and found this:

Alopecia UK asked two alopecia experts, Dr Matthew Harries and Professor Andrew Messenger for their thoughts:

“Alopecia Areata itself does not compromise the…

In life and alopecia, there are lessons and blessings. Unfortunately, some lessons are harder to swallow. Prom was one of those lessons for me. I'm still learning to let go of the anger and guilt I feel because I wasn't accepting of my appearance. I lost my smile. But through the lesson, I…

I have been AU for almost 15 years. I lost every hair on my body over a period of three weeks, and in the process, I lost almost everything. I lost my business because people refused to do business with me. I lost my day job because I no longer had a "professional appearance." I lost the vast majority of my family and friends, because no one wanted to be seen with me. I was told never to come back to the church I was attending because they thought it was contagious.

I fight…

Every day we look at the photos on Alopecia World and they are truly beautiful and, honestly, deserve to be shared.

Therefore, we are looking for photos that we can share on Alopecia World's Instagram Page.

If you have a cool photo that we can use, please post it here with your IG handle so that we can link it back to your account.…

Hair plays a vital role in black culture. Hair, for black people, has always stood as a symbol of self-expression and power. I wanted to be proud of my hair and proud of my culture.

I love how black culture can express itself through hair. I am fascinated with the precision and talent of professional barbers. The clean edges. The fades. The designs. I saw the movie Barbershop as a celebration of the black community and the support…

Hi Mikr and Others:

My diet is mostly vegan, although I slide and eat fish when vegan protein is not available.

I try to be  a good yogi and practice compassion and non-injury to other beings.

Sorry to say that my hair has not grown back, although my blood pressure and cholesterol are excellent.

Brandy

We weren't born believing hair makes you pretty, but society has lead us to believe that.

In an empowering move, she took off her wig on the runway.

"Taking my wig off in front of hundreds of people will be a moment I tell my kids about someday!”  Christie Valdiserri told Sports Illustrated. “I was so nervous backstage leading up to the moment but knew in my heart I had to do it. I had to do it for myself, for all the tears I've cried about this…

I'm new to this. Is anyone from the greater Seattle, Washington area?

Hello I just started in this blog, I have been suffering from this condition for a few years now, my hair loss is on the front of my head so it looks like I have a very wide forehead.  I am just curious as what is the best shampoo to ti use for my hair so that I do not loose more hair.  Please help   Thank you

Just watched A.M. Joy and listened to Massachusetts Rep. Ayanna Presley share her secret of living with Alopecia. She bravely went on television without a her wig! Thank you Ayanna for showing the courage and bravery. I hope to get to that point someday! It has taken me many, many years to talk about it with close friends and family.

recently my son was diagnosed with a very, very bad immunodeficiency

doctors wave their hands and can't do anything about it

I'm confused

Hey Guys!

My name is Nick Moore and I have had Alopecia areata since 15 years of age. It has further developed into AU. (meaning I have no hair all over my body) I must admit, I have not struggled as much as other people, it was mostly an "oh well" moment, however, I have had my times where it has not been all smiles. 

My goal is to help create not only awareness of the condition but support for other people through my story. I have recently started creating music. My latest…

Does anyone have any new treatment for AU?

xeljanz is not an option. 
thanks 

lee

"Models removed their wigs to embrace their hairlessness to pose in a photoshoot which raises awareness of the condition."

Excerpts from an article on Metro.co.uk:

"Photographer Chrissy Sparks, 35, from Birmingham, has photographed thousands of women, of all shapes and sizes, since opening…

Hi All,

I began Xeljanz for my Alopecia Areata Icognita 1 week ago. About how long have most of you gone before you noticed the medicine taking affect? When will my shedding slow down? REALLY hoping this medicine works for me.

Thanks!

Dana

I came across this article on Refinery29.com and I am sure many with alopecia or children with alopecia will find it encouraging.

"Model Jeyza Gary has a rare, inherited condition that causes her skin to shed every two weeks. Two years ago, she decided to pursue a modeling career while completing her bachelor's degree in special education.…

I have no designated Coimbra practitioners here in Toronto Canada. I've had alopecia Universalis since I was 30...I am now 55.. Over two years ago I had my genome read and found out I have polymorphism in my VDR (vitamin D receptor gene) where I don't convert sunlight into vitamin D very efficiently. When I went to get my vitamin D levels checked at the time at I was under 30 (ng/ml) . …very low. Since then, I…