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Ha-ha hair

Now my hair has been growing, yes I was kind of happy, but not for long...It's falling out again, I know everyone had this kind of thing happen to them, but for me it's the first. It always grew back and stayed for years, but not now...

I'm a bit lost on how I am supposed to feel. I used to be optimistic but I guess alopecia tends to wear out a lot of optimism...

Now I'm thinking if I should just shave it off again or wait a bit. I'm sooo frustrated and tired of looking like this,… Continue

Added by Calipso on July 28, 2011 at 6:00am — 14 Comments

Looking for "Shawn?" from England (Disney World)

Recently I went to Disney World and while waiting in line at a water ride at Typhoon Lagoon I turned around and saw a woman my age who I could tell was an alopecian sister. I debated asking her, but finally got the nerve to ask her (I hate when people ask me so I wanted to be sensitive and told her I thought we might have the same condition). At first she seemed taken back when I first asked her, but when she realized we had the same condition we got talking and talked and talked until we made… Continue

Added by Rodeli on July 27, 2011 at 11:55pm — 2 Comments

Desiderata

Go placidly amid the noise and haste, and remember what peace there may be in silence.



As far as possible, without surrender, be on good terms with all persons. Speak your truth quietly and clearly; and listen to others, even to the dull and the ignorant, they too have their story. Avoid loud and aggressive persons, they are vexations to the spirit.



If you compare yourself with others, you may become vain and bitter; for always there will be greater and lesser persons than… Continue

Added by Tallgirl on July 27, 2011 at 10:32pm — 7 Comments

hair extensions

hi i really need some help i am 19 and have had alopecia for the past 8-9 months. It started with on patch which grew back but now have 5-6 really big ones and it is making me feel very down. I have been looking into the specialist hair extensions you can get just to cover it up so i feel a bit better about it but not sure if they will make it worse or not have tried looking on the internet but cant seem to find the information i need. It would really help me if anyone has tried them or knows… Continue

Added by boo. on July 27, 2011 at 6:33am — 2 Comments

How it all began?

As maybe you have seen on my profile it all started when I was 11, starting what we call in Mexico Junior High School or Middle School I guess.. so I was having this Instruction course before classes, you know, to meet other students and see how it all works at this new level. So it was kind of harder for me because I studied for 6 years in the same school and I loved it, I didn't even want to accept that I was growing up, you see when you start puberty you're only caring about how your face… Continue

Added by Gabby on July 27, 2011 at 4:30am — 3 Comments

Insensitive comments

I have been wearing the bald head for about 1 month. It still takes a lot of courage to face the looks every day. 7 out of 10 comments from people are they like the way I look or the way my hair is cut. The other times I have received comments said is jokingly fashion "You need to change your shampoo", or"Who scalped you?". I am trying to become not so "thinned skinned" about the comments. It is hard. I normally reply quickly with "you must be jealous" or "you have jokes today". I can imagine… Continue

Added by Ericka on July 26, 2011 at 8:35pm — 7 Comments

Feeling beautiful :))

Today I was amazed when I went to my psychologist for the first time and we spoke and I told her of my alopecia, it was sooo nice that she knew what it was and she just looked at me and said, why are you covering your beauty? I love your hair peice but you are soo pretty i'm sure you'd look stunning if you had no hair, you know what? my heart just melted i've never had anyone tell me this before and this woman I just only met. I for the first time left and felt soo wonderful about myself and… Continue

Added by Lisa-Lynn Marini on July 26, 2011 at 7:50pm — 3 Comments

Longing for a cure - Defeated by alopecia

It is amazing how many emails and messages I get about other organizations dealing with alopecia. My canned response has always been, "We are stronger together then we are apart." I mean this, I am not just saying it to be politically correct. When I founded CAP I did so because I wanted more for my daughter then what was out there. The oldest and largest is NAAF and was the only thing I could fine in 2003. They had the annual conference but that was all until they incorporated Charlie's… Continue

Added by Children's Alopecia Project on July 26, 2011 at 6:00pm — 3 Comments

Interesting experience

I was in Florida for vacation with family this past weekend. We rented a condo by the beach. We decided on Saturday to have a shrimp boil. We had to go grocery shopping for everything to make it. My Mom and Aunt were going to the store to get everything. At first, they were just going to go by themselves. I wanted to make a dessert so then they decided to have me go along also.



We went to the register to check out. We had bought a 24 pack of water, and the employee asked us to hold… Continue

Added by Alliegator on July 26, 2011 at 10:30am — 9 Comments

Can we really alter genetics?

A well-known gal on TV, who is known for her great looks and famous family (mostly names starting with K) just found out she has psoriasis. Here's what was said about it in a news story:



It’s largely believed to be genetic and related to the immune system.



“I’ve heard of it before, because my mom has always had it. She didn’t have red flaky dots all over,” K said.



A type of white blood cell called a T cell fights off infections in the body. T cells attack… Continue

Added by Tallgirl on July 25, 2011 at 5:30pm — 1 Comment

Venting

So only three months ago I had a small patch, the size of a quarter missing from the back of my head. I was undergoing extreme emotional stress at work and when I went to the doctor, she expressed her concerns that this stress has triggered my hair loss and that I have Alopecia areata. A few weeks go by and more and more hair starts falling out. I finally get an appointment with the dermatologist and by this time the patch size has tripled and expanded to other parts of my head. I have started… Continue

Added by Missyannemissy on July 24, 2011 at 6:00pm — 8 Comments

Advocacy vs. Acceptance: Why the Two ARE NOT Mutually Exclusive

If you know me, then you knew it was just a matter of time before I put my $0.02 cents in on this subject.



I have been on various alopecia support websites and communities from the beginning. I have blogged, discussed, emailed, phoned, written about, given speeches to, and chatted with thousands of people over the 29 years that alopecia has been in my life. Not once during that time have I sugar-coated what I thought of alopecia, how I felt about my looks, or my level of acceptance… Continue

Added by kastababy on July 24, 2011 at 1:09pm — 4 Comments

Have a little compassion

I have heard from people with Alopecia that we need to be strong. Stop being so weak minded and move on. It may be easier for those who have had to deal with this condition for most or all of their lives. Of course they have adjusted and moved on. For some, Alopecia is all they know. Let's have a little compassion for those that have went their whole lives with a full head of hair and then lost it within a few short months. In my eyes there is no comparison. I consider myself to be an extremely… Continue

Added by Michelle on July 23, 2011 at 9:00pm — 17 Comments

"Teach Your Children Well; An Alopecian In The World, Still

I went on vacation. I was lucky. My Aunt put together a family reunion cruise. A cruise to Bermuda. A 5-day cruise. I roomed with my twin sister, which is an extra bonus - sister time together.



This was my first cruise. We boarded and went through customs, and met up in the dining room for lunch. It was served buffet style. I've never seen so much food in my life. I was sitting at the table as all of the family met up.



A table next to us, a large family with about 4… Continue

Added by Lili Añel (aka Eulalia) on July 23, 2011 at 3:33pm — 2 Comments

Soap Actress Amy Gibson On Supermarket Tabloid Cover - Bald!

The tabloid in question is U.S. publication "Globe".

Noticed it at the grocery store today. It is a small picture but since bald women are not generally on the cover of magazines it kind of popped out at me.

There is a blurb inside about her wig business on a section talking about soap actors and "where they are now."

Added by Donna on July 23, 2011 at 2:26pm — No Comments

always also difficult to live

in spite of time, I do not arrive at living with l' olopécie… the glance of people… the glance in the ice… that is too difficult… I am not me… with when the miracle… I want to retrogress, to even find me… soon I will have to turn over to work or to find another employment and I cannot plan to be surrounded like an animal, of malevolent glance… I work with the public, commen to make not to undergo this situation, to manage to look at people without seeing surprise or pity?

Added by coccinelle on July 23, 2011 at 10:37am — 1 Comment

Weight gain?? and Wigs

Ok so i've gained an extra 40 lbs i'm not complaining of my weight is I love seefood= I see food I eat !!
But my problem now is finding the right wig to go with my face.
I have the short one and I dislike it as it makes me look too pudgy, I have the curly one and I still look pudgy anyone have any ideas how I should go about what looks good and what doesn't?

Added by Lisa-Lynn Marini on July 22, 2011 at 5:14pm — 3 Comments

My first trip out au naturel

Hiya all...its been a while since I have written anything



I wanted to share with you, my AW family the next big step I took on my alopecia journey. The other day after work I went into a store without anything on my head. Normally I wear a scarf while at work and I remove it upon entering my jeep at the end of the day. Well this day I needed to pick up a few things at the drug store and instead of putting the scarf back on for a 10 minute trip inside, I kept it off. I was still… Continue

Added by Bald and Fabulous AKA Terri on July 22, 2011 at 12:20am — 9 Comments

Looking for guidance when I am so clueless!

Hello to all of the fabulous role models I so strive to become one day :)

This is most first post on the site, although I have read through some of yours whenever I need a pick me up. I am a 32 yr old woman who has alopecia areata for almost 2 years. I was blessed enough to have lived my life with hair, that I used to dye all types of colors and was constantly changing styles. This has been a very difficult 2 years, and although my husband has been the best possible support, there is only… Continue

Added by zoitsa theo on July 21, 2011 at 6:31am — 10 Comments

Run away from me?!

There's a line in the movie Eat, Pray, Love that really hit me. It is when Liz is walking away from a boat trip to a private island. After the Brazilian man says this, he follows with, "You are going away from the great possibilities of your own life." This was significant, because she had been searching for her life, and balance, throughout her whole three-country exploration of food, faith and personal peace.



It made me think of the chances one takes to follow dreams,… Continue

Added by Tallgirl on July 20, 2011 at 4:30pm — 11 Comments

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