Featured Blog Posts (3,064)

Wig help please:)

im on the verge of getting a wig. i think bald is beautiful, i just dont think its the right option for me. anyways, i just have all of these questions about wigs and i cant seem to find a straight answer online.

how does a wig feel? is it itchy? do you have to wear a cap under it?

how secure does it feel? how do you keep it from blowing off in the wind? is gluing recommended? can i swim with a wig on? how did you feel transitioning into a wig? can you sleep in it? can you be…

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Added by neverthoughtidenduphere on February 8, 2013 at 2:00am — 5 Comments

Total regrowth

Hey everyone

I hope you are all well. I haven't been on here in a long time.

I felt it was important I wrote this blog to let you know how I have been and how my Alopecia Universalis has 'changed'.

Those of you who read my previous blog will know that I experienced my hair loss at quite a fast pace, literally within a few months I had gone from having a tiny bald patch at the top of my head, to having complete hair loss all over my body.

My last blog in 2010 spoke…

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Added by Sarah McA on February 7, 2013 at 9:00am — 4 Comments

New “bald” friend of Barbie causes controversy

U.S. toymaker Mattel created a “bald” friend of Barbie doll named Ella and donated a limited quantity of the dolls to the National Alopecia Areata Foundation (NAAF).

However, the bald doll has created some controversy in the alopecia community because Ella is packaged with a wig on.

Some feel that it is not a real representation of a person with alopecia and…

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Added by Cheryl, Co-founder on February 5, 2013 at 11:00pm — 54 Comments

How to explain to a 10 yr old?

It's been very hard for my son who is only 10 yrs old. how do i answer his questions?

Added by Iris Mendez on February 5, 2013 at 1:00pm — 6 Comments

My daughter

Hi my name is Krystal and my soon to be 14yr.old daughter has A.A.she's losing her hair at a faster rate than we anticipated. I don't think the full aspect of what's to come has hit her yet and I want to shelter her from it but I know that I can't as much as I want to.when does the feeling of utter uselessness and not in control go away or at least fades and gets Better? Please help an emotionally behind closed doors mom.any and all advice welcome.

Added by Krystal on February 3, 2013 at 12:30am — 4 Comments

Bald and burning scalp sensation

Help - anyone who has experienced this place respond.

It is almost two years since I had the little bit of hair I had left cut, shaved and I began to live my life as an alopecian (I barely had hair). Last week I developed a burning sensation on the back of my head. It looks like I have a sunburn. Initially it looked like a rash, but that went away in two days. It burns like I have a sunburn. I went to my regular doctor thinking perhaps I had shingles. I had chicken pox at 34 years of…

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Added by Lili Añel (aka Eulalia) on February 2, 2013 at 2:18pm — 8 Comments

Genetics

Hello...

Wondering if anyone has this auto immune disease and had it passed on through their family? I have been dealing with this all my life off and on since I was around nine years old. Then things became even worse, where I've had to wear a wig for the last 18 years. But I don't care about me, its my daughter. She's a beautiful 21 year old with gorgeous long hair and yesterday she showed me a bald circle on the nape of her neck the size of a 50cent piece. I instantly became sick to my… Continue

Added by Hope on February 2, 2013 at 12:58am — 4 Comments

My head is cold

WOW it's suppose to be summer here in Sydney Australa. Woke up this morning and it's raining NO problem went outside and oh my goodness my poor little head is fresszing I had to come inside and get a beaney to cover it up. I don't usually feel the cold but wow my head is not used to being bare. So much for global warming!!!!!!! I hate to think what my head is going to feel like in winter. But because my hair is growing back I might have enough to keep it warm by winter. You don't realise how…

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Added by Annette on February 1, 2013 at 4:30pm — 3 Comments

Alone in Alopecia World

I've never "blogged" before so be patient as I must learn as I go.

I feel like I'm an outsider in Alopecia World, which saddens me because I thought here was a place where I'd find people who would be more accepting and understanding than anywhere else. Please don't misunderstand; I'm not making accusations, nor am I criticising anyone in here. I am "different" from most people with or without alopecia. I've always marched to the beat of another drum, not concerned with what others…

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Added by Larry Barbee on February 1, 2013 at 2:56pm — 3 Comments

Stare

When people stare I makes me so sad and stressed I learned to ignore it but when your a bald girl with patches all over your head it gets hard. I wish I had the alopecia where your hair doesn't grow.because I get so use to my hair I get happy and excited.not that many people stare.but then it grows then falls out again I always wonder why me?

Added by Mercedes Maria Butler on January 27, 2013 at 3:51pm — 8 Comments

Is there a comfortable wig?

I have had alopecia for over a year now. I am a healthcare professional and encounter patients throughout my 12 hour shift each day. I spend the day assuring my patients that I am not sick and keep the moment light with a short explanation of AU. I have tried wigs and the most aggravating part that I cannot seem to get past, is how the hair feels against my face or when it gets in my eye. The wigs I have worn are synthetic and I was wondering if the real hair wigs felt this way. It feels…

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Added by april on January 26, 2013 at 12:00am — 6 Comments

Me and AU

I have lived with Alopecia Universalis since I was two years old. Without this disease, I probably would be a completely different person. I consider myself a little stronger, more compassionate, and less judgmental because of AU.

I am scared to show everyone who I really am though. I have hid underneath a wig for almost 13 years now. I'm not afraid to not have my hair on around my close friends and family, but I am very scared to walk out without it. I am trying to build up…

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Added by Catherine on January 25, 2013 at 11:35pm — 6 Comments

It is okay to replace what's missing

When we can't see: glasses or contacts.

When we need a lift: bra.

When our teeth break or get strange: braces, caps, whitening, bridges.

When a heart fails: stent.

When arches drop: shoe inserts.

To cover nakedness: clothing.

To not be animals: toilets, deodorant, condoms, houses, sweet scents.

To improve color: make-up.

So...why stress over wearing anything new on a head? Seriously! You've already agreed to the inventions of humans, so why not one…

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Added by Tallgirl on January 23, 2013 at 12:30pm — 5 Comments

Proud

Today my son in law turned up unexpected with a friend and because I only shaved my head 3 days ago I didn't run and hide I was proud to just stay as I was in all my bald glory. This is who I am and I have no shame about the way I look love me the way I am because I am still the same person. I thought I would never feel proud of being with out my golden main but you know what I feel ok if people see me like this now. And actually my beautiful son in law loves my hair this short I challenged…

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Added by Annette on January 22, 2013 at 6:30am — 5 Comments

College life - Black sheep

So over the past 6 weeks I have been off college. During that time My alopecia has started and taken over.. to the point where I have had to shave my head. Its tough, crazy tough to get your head around and come to terms with. It takes time, support and self confidence. But I have done it. I have come to terms with my alopecia and the fact that I have no control over it. I don't mind that I have bald patches or that I have had to shave my head, that's me and I am PROUD to be who I am. But…

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Added by Ella on January 21, 2013 at 8:30pm — 4 Comments

Big step

So after much thought I finally shaved my head ahhhh feels so much better and looks a whole lot better no scagally bits its all nice and even now a little cold but I can sneak in with the humans I don't look like something out of a horror movie should have done it weeks ago. New start!!!!!!

Added by Annette on January 19, 2013 at 2:30am — 2 Comments

Just want to express my anxiety

Hello all. As the title says I just want to express my anxiety to those who would understand most. I personally know no one with this condition and as supportive as everyone I love is, there is a part of me that feels they do not fully understand. My wonderful girlfriend and I are expecting a baby girl in early April. We are very excited and look forword to raising a child with all of our Love. My anxiety arises from a fear of passing along my Alopecia Areata and/or its related conditions,…

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Added by RonaldStone on January 18, 2013 at 11:30pm — 5 Comments

Just joined Alopecia World

Hello. I feel so happy to have found this site. My Androgenic Alopecia is worsening to the point I went to a wig shop today. I am scared and feel so alone. Looking for advice and struggling with acceptance.

Added by Missy on January 16, 2013 at 4:30pm — 12 Comments

Five years already?

I lost all of my hair shortly before my first year of high school and now, here I am today with short hair. Sure, it is falling out again but who would have thought that after four years of treatment with no results that without anything, hair would grow? It amazes me. Anyways, as I was thinking about my one year anniversary with hair, I started thinking about what I am going to do once I have lost it again and what my new college friends, who know but do not understand Alopecia, will do in…

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Added by Megan Bry on January 16, 2013 at 1:33pm — 2 Comments

To shave or not to shave

Not sure if anyone else has been through this. You only have very sparce hair but you try to hang on to the little bit you are still sporting on your head. After loosing 95% of my hair in just 11 weeks I am now growing new hair all over my head but I still am clinging to the very few long bits I have. Why is that ? you know it look awful but you just keep hanging on to it, what the hair fairy is going to come while your alseep an put it all back LOL I don't think so some how so why do I keep…

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Added by Annette on January 16, 2013 at 2:40am — 3 Comments

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