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Crisis survival kit

Over the course of the week we were given an assignment to make a crisis servival kit.

So when your down over alopecia or whatever challenges you may face in your life, there is a box that I have now made for myself with different quotes on it, some music, some photos, etc,,,and you look at that as a distraction to help keep your mind distracted of wat is bothering you, and I found it amazing so far it is working for me. So when I'm down that I have no hair out comes my box.

I even… Continue

Added by Lisa-Lynn Marini on June 17, 2011 at 2:30pm — 6 Comments

My AGA started earlier than I thought

This morning I changed my profile picture on a social media website to a picture of my Dad & I in honor of Father's Day this weekend. It was taken when I was around 13. I was diagnosed with AGA around the age of 16. As soon as I saw this picture, I noticed the part in my hair. Some people would probably say it isn't bad, but in my mind a 13 year old shouldn't have a part that wide. I saw a school picture taken a few years before this one and my part was definitely not as wide. My AGA must… Continue

Added by Alliegator on June 17, 2011 at 1:00pm — 3 Comments

Nothing...nothing but compliments!

Okay, Ye Doubters! In the last two weeks I got the last of my white AT fuzzy hair shaved off, wore it like that in public places and among friends, took personal photos like that, and went out with no wig under my hat. I even took the hat off at my doctor appointment today. Responses? Nothing in public, compliments from friends, doctor (new) asked if I had had cancer (he didn't look at my file), and a strange lady complimented me on the hat...which was decades old, faded, and had crazy colored… Continue

Added by Tallgirl on June 16, 2011 at 11:00pm — 7 Comments

Survivor?

This is a funny story:



I was at the grocery checkout when a gentleman on staff came up to me and said "survivor?" I looked at him and said "survivor?" then we just looked at each other... you see I was preparing for my father's birthday celebration and I was so focused on getting everything that I needed that I never considered my baldness. As I'm looking at him all I could think of was Survivor the reality show! and what did that have to do with me? He didn't know me and I don't… Continue

Added by Susan P aka DGADBS on June 16, 2011 at 12:54pm — 2 Comments

Support...

Hey! I know this is kinda short notice...but in you live in North Carolina...in the Raleigh Area there is going to be a support group meeting on Thursday June 16th at 7:00 p.m at 7478 Creedmoor Road! This includes any type of hair loss...not just Alopecia! :) This group will hopefully encourage people to get through this struggle and give everyone strength! Hope to see you there

Added by Heather on June 15, 2011 at 10:50am — No Comments

things and stuff, with occasional poignant thought.

I've been away for a while. Busy, with all of those things and stuff, but thought I'd pop in and beam an update into the yonder.



I attended HairExpo2011 this long weekend with the lovely ladies (and men) of the Australian Alopecia Areata Foundation - I've been calling it the AAAF (pronounced "arf" :P ). It was fantastic! I met some of the nicest people, got to spread the good word about alopecia, and hugged some total strangers. A little exhausting, but awesome. It was also the first… Continue

Added by Georgia Gardner on June 15, 2011 at 7:35am — 3 Comments

My first blog... Alopecia WING!

Well I have had an eventful year... GCSE year has caused me much greef because they arn't just Grades they are my ticket to moving out of my messed up home and moving in to one which i can finally say is my own... My family is completly messed up, involved abuse, death, liars and mental illness.

This year has been the probably one of the worst I have ever been through and then the diagnoses of Alopecia to top it all off! I know so many people go through it but i still feel isolated like… Continue

Added by Autumn Leaves on June 14, 2011 at 9:30pm — 21 Comments

Received my "Codi" today.

I'm not so sure if I like it or not...the color is fine (toasted brown) but I just don't know about the cut, very long in the front. It's also super static & looks like it's glued to my forehead. I sprayed in some conditioner & hope that'll help. I'll post a picture soon!

Added by Sophia on June 13, 2011 at 4:54pm — No Comments

Joseph Paris~Heaven Sent!

My 7 year old daughter, Kaliyah, was diagnosed with Alopecia Areata a couple of months ago. At first it was the hairline at the nape of her neck...then it was small patches here & there...then within a month's time, 90% of her hair was gone. Being that she is a child, her head is small & the wigs were getting harder and harder to stay on. She was very insecure & also experienced an embarrassing moment when it fell off while she was playing. With nothing but prayer left....I prayed… Continue

Added by Lee on June 13, 2011 at 9:12am — 5 Comments

Feeling sad

Today I've noticed my eye brows are thining out and my lashes have started to fall out abit :( that made me very depressed today just want to cry and scream out to God why me?
anyone know how much tattood brows are at all?

Added by Lisa-Lynn Marini on June 12, 2011 at 2:30pm — 11 Comments

My Seb. Derm.

I bit the proverbial bullet and applied promiseb all over my face today. I have been using this on my ears for the past few days and have not experienced any side effects and thought that I should now try this on my entire face. I will not try this along my hairline until my hair is cut. I hope this works. I think it will!

Added by D. Brown on June 12, 2011 at 2:10pm — No Comments

Alopecia veteran - and proud of it!

I use the word veteran literally and mean it. I have been fighting a war against alopecia from the moment I was diagnosed at age 4, and have waged brutal battles against countless doctors, classmates, friends, family members, and significant others. I have hated myself and my looks for more years than I care to count, and I distrust anybody who dares to think that I am beautiful in spite of alopecia. I have prayed daily for 10,592 days (as of this morning) for a treatment that won't reverse… Continue

Added by kastababy on June 12, 2011 at 12:30pm — 7 Comments

Insecurity

Now in the middle of the year I'll move from town to start college to study psychology. I must admit I'm insecure about the new people I'll meet and their comments, mainly because of being away from the comfort of family and friends.
But I think it will be a good experience for my personal growth. I hope everything goes well.
x}

Added by Giovana on June 11, 2011 at 3:17pm — 5 Comments

Anyone between Oshawa and Toronto

I was wondering if anyone in these regions had alopecia and would like to have a something planned for those of us hat have alopecia this summer??

Added by Lisa-Lynn Marini on June 11, 2011 at 1:32pm — No Comments

Bumps around my bald patch

Hi everyone!
Has anyone experienced little red bumps around the perimiter of their bald spots or patches? I woke up this morning and 4 of these little bumps have sprung up. My scalp where I lose hair is also pink (thats where I can tell where my next hairloss spot will be) but the pink is not raised. I have only had AA since March so it is all new to me...and the doc doesn't know a whole lot when I ask questions.

Added by Jules on June 11, 2011 at 10:00am — 5 Comments

Gutted!

Well I posted a blog a while back shouting out how i had regrowth and that i only had a little bit to fill in, well it now seems to be falling out again :( I'm so fed up, thought that was gonna be then end of the nightmare.

I'm sick of wearing wigs and having people stare at me all the time.. I can see people looking at my hair when they are talking to me and it pisses me off, maybe I should go back to wearing my head scarf least then its obvious i have no hair..



thought I'd… Continue

Added by lynne on June 11, 2011 at 4:30am — 6 Comments

Good and bad

Hey everyone,

( you will probably think what has Rihanna have to do with me feeling down but it's on another topic )

So I have things in my life now, that seems good but somehow I manage to put a negative meaning to them..

The first bad thing is not related to my alopecia...

lately I have been feeling really confused and depressed.

Have to pass my exams, and it's not going very well, I have pretty good grades, but still I feel like a failure, when I don't get the best… Continue

Added by Calipso on June 10, 2011 at 7:00am — 7 Comments

A special day for me

I went to therapy today and was given a goal, not a specific one but any goal and I was to TO DO IT!!! So i was thinking what could I do , then I thought hmmmm,,,,,,,,my therapy was over at 2:30 and I usually wait around til 5ish for my hubby to pick me up because of my anxiety and thoughts of others staring at me and i thought today I DON'T CARE who stares at me who looks at my wig (whether or not they could even tell) and I walked home it took me an hour to get home so I achieved my goal and… Continue

Added by Lisa-Lynn Marini on June 8, 2011 at 5:00pm — 9 Comments

New member. My story so far

Hi everyone I'm new here! Thought it was a good time to share my experiences. I'm a 48 year old bloke, happily married father of four living in the UK. I have always had a very full head of hair and have never experienced any type of hair loss in the past. In fact my hair has always been so thick that barbours have often said to me how I shall never go bald! About three months ago I came across a bald patch on the side of my head about the size of a 2 pound coin. Since then this patch has grown… Continue

Added by Val on June 8, 2011 at 11:30am — 3 Comments

Hello again...

Hey everyone! Feel like its been a while again, This vertigo has got me everywhere. I'm finally doing better. Not dizzy all day, but now have no muscle in my body and I'm trying to get that back. Loving the pool in the backyard for my work-outs. Everything is pretty much the same for me, just getting out of bed and trying to get back on my feet again and hopefully return to work by the end of this month!! Hope everyone is well!

Added by Tamara on June 6, 2011 at 7:58pm — 2 Comments

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