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and so it goes...

It happened again, and why am I surprised? I'm currently collecting data for my dissertation and last week was faced with difficulties that are not research-related but alopecia-related. Something research supervisors can't really prepare you for...



I'm developing a career counseling group to motivate unmotivated high school students to engage in career exploration. During one of the group sessions last week while exploring each participants' individual strengths and characteristics,… Continue

Added by Emily on March 24, 2009 at 11:13am — 5 Comments

I want to go to the conference this year, but....

it would really mean a lot to me to have Todd go with me to Houston to the conference, yet I think it would be pushing him to do something before he's ready to do it. Don't get me wrong, he's doing great with my alopecia (even though he still wishes I would cover my head sometimes -- and he might just get his wish because summer is coming and I don't do sunburn!), but I think that seeing thousands of alopecians gathered in one spot will freak him out enough to regress him.



I'm not… Continue

Added by kastababy on March 23, 2009 at 8:51pm — 8 Comments

Letting people know...

Well this weekend went by without my breaking down again. Don't get me wrong...it was very much on my mind. However, I chose to accept it. No other choice really. Sure I could moan and groan and cry about it, but where would that get me? There are a lot worse things out there. That's what I keep telling myself anyhow, to get through. :)



I told another co-worker today about it, while in earshot of someone who I always thought of as well, not so much heartless, but who didn't really… Continue

Added by Michelle on March 23, 2009 at 1:00pm — 1 Comment

trying to stay strong

i can not get past this. i will try and stay positive. life goes on and things change. maybe this is only temporary. as i am a teen and our bodies change. i pray to god please please let my hair grow back and the others who are feeling the same.



im a nervous person so i need to find something to keep me calm.



music is something that i am so passionate about its almost ridiculous.



all i think about is " is it going to fall out?, please dont fall out!" im… Continue

Added by lauren on March 22, 2009 at 11:30pm — 4 Comments

Do you have Alopecia?

"Do you have Alopecia?" For the first time a stranger asked me this. Usually the question is "do you have cancer?" or something similar.

While loading groceries into my car, a van pulls up with the window down. I smiled at the two women in the car trying to figure out if I knew them. Then they asked the question and a wonderful conversation about alopecia followed. Their 7 year old granddaughter does not have hair. They took my picture to show the child.

A neat experience.

Added by Jill on March 22, 2009 at 10:20pm — 1 Comment

My story

My story began just over two months ago. I was getting ready to go out on a Saturday night, and noticed a bald patch on the right side of my head as I was drying my hair. I was a little freaked out, but read about it and asked a dermatologist friend who assured me it was Alopecia Areata and that it wasn't serious. He said given my age and no previous history of alopecia areata, that my prognosis was good. I made an appointment with a dermatologist to get the steroid injections.



I… Continue

Added by Paula on March 22, 2009 at 3:30pm — 7 Comments

Overwhelming....but coping...barely

Well I guess a little bit of history first. I first found out I had Alopecia when I was in my mid-twenties. I found out by my hairstylist telling me I had a little bald spot at the back of my head. She told me it was Alopecia. At the time, I was stressed out with finals at university. The second time I found some bald spots, I had ended it with my long-time boyfriend of 8 years (had cancalled our wedding three months before it was to occur). I am now in my third bout, and it's worse this time.… Continue

Added by Michelle on March 22, 2009 at 10:30am — 2 Comments

What blood tests are relevent for alopecia?

Hey Gang,

I havent been to the doctor in ages and have an appt on monday. i figure I may as well be tested for everything. What are you sugestions?
The last time everything was normal. My thought are:
Thiroid Function
ANA
Iron Level
CBC
Testosterone level
Liver and Kidney Function
Syphilis
Any others you can think of that are relevent would be appreciated.

Hope everyone is doing well.

Jeffrey

Added by JeffreySF on March 22, 2009 at 2:51am — 5 Comments

you know the kind of bad dream: you show up to school naked or your teeth crack and tumble out of your mouth or you like realize all of your hair has fallen out and you are bald? Yeah.

you know the kind of bad dream: you show up to school naked or your teeth crack and tumble out of your mouth or you like realize all of your hair has fallen out and you are bald? Yeah. The last one...So last week I notice a 2 inch bald spot on the back of my head. I don't know when it started or how it got so big with out me noticing but when I ran my fingers through my hair after the gym on Wed they hit a smooth patch... WHAT?! Confirmed by some yoga moves with a compact in the employee… Continue

Added by Jodi on March 19, 2009 at 10:30pm — 12 Comments

Neglecting...

So I have definitely neglected this site lately. I don’t even remember the last time I spent more than 5 minutes on this site. For a while I was spending at least an hour a day on here. It not that I don’t like this site or anything, I still love it and think its great support. It’s just my life has been changing so fast and I haven’t had a chance to even stop and catch my breath.



In the last few months I have moved to a different part of the state (just for the school year, but its… Continue

Added by Drew on March 18, 2009 at 7:42pm — 4 Comments

Just because I wear a wig does not mean I have self-esteem issues

Today I was with my cousin and I went with her to take her 5 year old son to get a haircut. I'm sitting in a chair reading a magazine waiting for them to be finished when an older lady (70's) comes up to me and says, "Excuse me. Do you mind if I tell you something?" I look up from my magazine to see what she wants to tell me. She tells me, "You have very pretty hair." I wear a wig, as I'm sure this lady could tell. I replied with a polite thank you as I look back at my magazine. The lady then… Continue

Added by Jill on March 18, 2009 at 6:13pm — 7 Comments

Get a Life!

I've been going contest crazy lately! Looking for a new job in this economy with a bad wig is a tough job and can be rather depressing some days. I've been working part time still but only 15 to 20 hours a week which doesn't exactly give me much cash flow. I've got that Doritos commercial on the go but I don't think it will be winning any prizes anytime soon, unfortunately we no longer live in a world where creative ideas are enough, the technology has to match so this amateur ain't gonna cut… Continue

Added by Carol on March 18, 2009 at 5:22pm — No Comments

RE: Also Curious about this!

Hi all! Ok, so maybe some people get alopecia once and never get it again, I would like to talk to one, but, has any one ever experienced dental issues or infections with the Alopecia? I have had some cavities in both wisdom teeth that I haven't taken care of for a while,I know thats bad, but they haven't really hurt or bothered me. I'm wondering if that can trigger the Alopecia?? Anyone heard of this or had the same thing happen around the same time?? Also, I did notice that when I'm gone from… Continue

Added by Melissa Harris on March 17, 2009 at 10:43pm — 3 Comments

embarrasing

So im in track and i wear a bandana to protect my head from the sun.I was runing the 100 meter hurtles and as i was runing my bandana flew off in the middle of the race. I kept on runing for a couple of reasons 1 my coach would been like why did you stop 2 i was like in 2nd or 3rd place and i didnt know were my bandana went. no one said anything but it was still really embarrasing because there was a standuim full of people .

Added by lauren on March 14, 2009 at 7:51pm — 7 Comments

Just Me!!

The thing that I like most about this site is that it provides a lot of support and answers to those who don't know. I used to have so many unanswered questions when I was in school. I used to wonder why me? Out of all these kids at school--why ME!! I remember things like how hot it was to wear a wig in the summer. The constant thought of "I hope nobody snatches my wig off." It really stopped me from participating in things like field trips because i didnt know what the kids would do once i got… Continue

Added by Elaine on March 13, 2009 at 10:55pm — 3 Comments

Hello.. I am new to this site. Just trying to find my way around. It is weird and yet refreshing to know that I am NOT the only out there who looks like me. I refuse to accept the fact that my hai…

Hello..



I am new to this site. Just trying to find my way around.



It is weird and yet refreshing to know that I am NOT the only out there who looks like me.



I refuse to accept the fact that my hair is gone for good. I think if I did, I'd die.



Women are known for their hair.. a woman under the age of 70 is not supposed to be bald. A friend told me today that it is very common for women to go bald. Yea, I replied if there is a type of immune disorder or… Continue

Added by Tnabugg on March 13, 2009 at 8:54am — 5 Comments

Hair For Two

Hello all, I have a question....

Last Friday, after 4 tests, I found out that I am preggo :-)

My question is this...for any of you who had/have a "mild" case of AA like mine, what happened when you got pregnant? More growth? Less growth? Nothing?

Please let me know. Thanks!!

Added by Amy on March 12, 2009 at 9:53am — 4 Comments

Happy 1st Birthday Alopecia World

Cheers to Cheryl and RJ on Alopecia Worlds 1st Birthday!!!
You have given me a priceless gift!!!
I cant wait to see you in June!!!

Jeffrey

PS I'm such a Dope. I thought I posted this Blog but didnt. Grrrrrr

Added by JeffreySF on March 11, 2009 at 9:08pm — 5 Comments

Should i get a freedom wig?

Hi, im 14 years old and I have lost about half of my hair so far. Its still falling out in some areas, but i have some regrowth. Its not alot, but there is some. Every morning i put my hair up is a clip with some bobby pins and hairspray to hide my large bald area, but I hate being so concious about my hair all the time. I cant run without revealing it during gym. I just wanted some opinions if i should get a freedom wig or if i should just wait and see if the spot that is regrowing gets… Continue

Added by Meme on March 11, 2009 at 10:11pm — 5 Comments

Haven't been on AW in a while!!

Hey everyone! It has been a while since I have been on the website. I apologize. I am trying to finish a few more tests before Spring Break! Yay! No plans besides going home for a while and spending time with my parents and my animals! Oh and then going back to College Station to my apartment to go swimming and lay out! Lol



Well anwyays, 2 things I felt like blogging about...



Okay, first one is a complaint. On my myspace webpage men keep trying to add me that only want to… Continue

Added by Brianne on March 11, 2009 at 12:25am — 4 Comments

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