All Blog Posts (5,825)

Wigs or not

Since buzzing what was left of my hair I haven't had the desire to wear any wigs. It just doesn't feel like me. I have also lost my eyebrows and lashes. The loss of my eyelashes almost feels worse than loosing my scalp hair. However, with makeup I am coping.

Added by Anne Williams on May 24, 2017 at 12:49am — 1 Comment

Having a tantrum and feel like a 2 year old

Well, what can I say? I hang my head about my shameful, childish behaviour today. What a tantrum I had. Even threw my wig over the balcony into the garden 2 floors below. The reason? I have washed it 3 times in the last week trying to get it not to bunch up in the back. I don't know why it is doing this, it rarely happens. It is a remy hair wig and usually I don't have this problem. I am over it!

Since I lost (and found) my virgin Freedom hair wig I have felt so insecure about myself.…

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Added by Pat on May 21, 2017 at 3:55am — 12 Comments

*NEW*

Hi I am new to this group. I am looking to meet like minded people that can support me, I experienced hair loss, bald patches due to the use of treatments etc and launched the hair heals campaign. Really looking to get a group of people that understand me together and assist in raising awareness here in the UK.

Added by sClaire on May 19, 2017 at 5:23pm — 2 Comments

The Creation Of A Bald Princess - Ella The Enchanted Princess

Here is why and how Ella The Enchanted Princess was created. She was created because of what I learned when I was going through the challenges of Breast Cancer. I found out what was really important in life and it was definitely not my hair. After losing my hair to Breast Cancer, I realized that Bald Is Beautiful and that being bald doesn't change who you are! I didn't hide my baldness, because I knew I was the same person with or without hair.



It didn't make a difference to me if… Continue

Added by PrincessElla on May 12, 2017 at 2:37pm — No Comments

Polish Alopecians near Tarnow

After wondering about the four people with alopecia over several generations in my family tree, I have been missing the obvious option to trace this: AlopeciaWorld! If anyone can tell me the present and past (1800s and earlier) prevalence if AA, AT, and AU in Wierzchoslawice, Poland (particularly in the Bogusz families), please let me know! I am also about to do the Ancestry.com DNA test...but I hear there is a DNA test with another company that focuses on males. Out of those I know since… Continue

Added by Tallgirl on May 5, 2017 at 11:30am — 1 Comment

Covering Partial Hair Loss

Does anyone have a cosmetic solution for partial (50%) hair loss? I have been using Topik spray for my daughter with progressing AA and it's getting difficult to achieve a natural look. She is not quite ready for a wig. She is 9 years old and I am hoping someone here has dealt with this successfully and can give advice. Thanks

Added by jesse in NJ on May 5, 2017 at 11:30am — 7 Comments

Freedom Wig Repair question

Hi Everyone

I am new to this website and wondered if anyone can help.

I have been suffering with AT for the past 4 years and have been wearing freedom pieces. I sent one of my freedom pieces in over 6 months ago to be repaired and have been informed that mine is in the next batch to be repaired. I have also been told that owing to the extensive damage it may"die during the repair process"!

I only worn the freedom piece for 12 months and yes there was a bald spot…

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Added by Bonnie Piper on May 5, 2017 at 7:34am — 1 Comment

Treatments for AU

Has anyone heared aquatic acid treatment for AU?

Added by Suzi on May 1, 2017 at 5:14pm — No Comments

Hair growth

Hello everyone (someone-- whoever may be reading this). I wanted to make an update about my alopecia. Maybe 2 weeks after I got steroid injections in my two bald spots I had little hairs starting to peek through. Now weeks in I have a significant amount of hair growth not only on the bald spots, but I feel like it helped out my hair with volume. I'm happy to say that the treatment worked for me with just one dosage. Good luck to everyone out there dealing with their alopecia. May it go away and… Continue

Added by Daniedays on April 30, 2017 at 12:57am — 3 Comments

"I created my own beauty standards"

It amazes me how many people share their stories and triumphs about their alopecia.  I recently found another one that I think the community would benefit from.

 

By Lennox Bishop

...Fast forward to a few weeks after I decided to shave off what remained of my hair—surrounded by friends and with many…

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Added by Cheryl, Co-founder on April 29, 2017 at 11:41pm — 7 Comments

Alopecia tutorials!!

Hi everybody!

Here you are my Youtube channel in case you are interested on videos related with alopecia.

https://www.youtube.com/channel/UCwSIVpu2jMWFBzU-t_69ldA

See you there!

Hola, hola!

Aquí os dejo el enlace a mi canal de Youtube donde iré subiendo vídeos relacionados con la alopecia. Si os interesa, ahí va:…

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Added by Patricia Morales on April 27, 2017 at 7:30am — No Comments

CNN - Girl with alopecia wins competition with gorgeous jeweled head

Source:  CNN/ By Alexandra Larkin

I agree with this mother that it is important to support your children with alopecia and help them understand that they are no different than anyone else with or without hair.

(CNN)Even without hair, 7 year-old Gianessa Wride has managed to sparkle -- and win her Utah school's "Crazy Hair…

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Added by Cheryl, Co-founder on April 27, 2017 at 3:13am — No Comments

"Meet the inspiring woman embracing her alopecia, even on her wedding day"

I recently came across an article about Kylie Bamberger, a member of Alopecia World. Below are some excerpts I would like to share:

“Kylie Bamberger looks every bit the blushing bride in her wedding photos. She’s wearing a white ball gown, clutching a bouquet of…

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Added by Cheryl, Co-founder on April 26, 2017 at 11:00pm — No Comments

Bald

So.... Had a very severe bout of hair loss. Couldn't hide the bald spots. With the support of my husband, daughters and great friends, I shaved it all off. Very freeing! My husband says I look sexy, my daughters love it. I feel supported. I have gone out to dinner and shows without a wig or any head covering. Since I live n Arizona, I have lots of hats too. Having fun with eye makeup.

Added by Anne Williams on April 23, 2017 at 2:05pm — 1 Comment

Organic 99% sulfur and hair growth

I've been taking organic sulfur for 2 months , a teaspoon a day and my eye lashes are growing back. Sulphur also helps phase 2 liver detox, so is good for getting estrogen and other steroid hormones out of the body faster, as well as toxic metabolites sitting around from phase 1 liver detox. I've never seen anyone whose phase 2 was as fast as their phase 1, have you? I think everyone can benefit…

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Added by Mike Staffieri RHN on April 19, 2017 at 8:06pm — 4 Comments

Attachment to Suffering. Why did I have to be the one to lose my hair?

“To be free from suffering, free yourself from attachments.”

 

They say being attached can lead to suffering, but we can also be attached to our suffering.

 

Every person living now is going through some kind of suffering……

 

There is death, sickness, poverty, injustice, cruelty, judgements, projections, failures, and insecurities.

 

Sometimes it is easy to forget that other…

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Added by gldean1988 on April 19, 2017 at 11:26am — No Comments

Eye lashes and facial hair are growing

Hi Friends ,
I have been gluten and dairy free for 6 mos. I also see a dermatologist every 2 weeks for a application of some type of medication to my scalp that forms a dermititis. I have. AU and my whole scalp looks like eczema.
I'm not sure if it's my new diet or treatment. But something is growing. Has anyone else had this experience?
Thank you ,
Suzana

Added by Suzi on April 18, 2017 at 9:30am — 3 Comments

Headbands, bandanas and turbans

Hi women!!

I like to use different headbands, bandanas and turbans in my day to day. It´s funny! You can combine with your clothes.

Hola chicas!!

Me gusta usar turbantes y bandanas en…

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Added by Patricia Morales on April 11, 2017 at 4:00am — 2 Comments

Everything happens for a reason.

Here I am back on this site years later and I'm loving it ... 

I joined when I was around 14 years old and now I'm 18.

I was diagnosed with alopecia when I was just 4 years old. I decided to wear a wig when I was in 6th grade because I wanted to be like everyone else. Throughout the years I continued wearing them, although I didn't want to wear them any longer. It's hard you know, to just stop wearing wigs when everyone knows you as the girl with hair. But if I were to stop…

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Added by Nicky on April 11, 2017 at 12:13am — 4 Comments

Article Revelist Magazine about Alopecia

Here you have an article about women with alopecia in which I appear of the magazine Revelist.

http://www.revelist.com/ideas/what-alopecia-looks-like/7083

A huge kiss everyone.

Added by Patricia Morales on April 5, 2017 at 4:44am — No Comments

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