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The Case of the Missing Eyebrow

I totally suck at drawing on eyebrows - one is always thicker than the other, one is higher than the other, one is longer, or one is ridiculously stubby, etc. Most days I just don't bother, but for some reason I decided I cared this morning. Fast-forward to this afternoon at Macy's with Nan-naw (my grandmother). We are walking around and seem to be going in aimless circles attempting to find the intimates department and I keep noticing these really weird looks. Normally I love "wigging" people… Continue

Added by Val on January 6, 2009 at 12:23am — 18 Comments

New hair for 2009

Hey everyone! So I haven't been on here in forever and I'm sorry! I've been so busy through the holiday season that I haven't had a chance to get on here. I think also since I am so happy I just sort of tend to neglect the site sometimes - which is awful because this site was so helpful for me when I was first diagnosed and I want to be there for others, too. So even though I'm not on here as much I still want everyone to know that I will continue to check up on my site here and respond to… Continue

Added by Mandy on January 5, 2009 at 10:30pm — 9 Comments

hmm hair loss

Once upon a time, I was a beatiful blond girl. Everything about me was based on my appearance, and of course mostly my blond hair. I was always told that I would have a husband, a house, blah blah blah because I was so pretty. I went to school, got a degree but no . . . my whole life was based on my appearance, mostly my gorgeous locks. Every time some one new met me, it was all about the blue eyes and blond hair...then it was gone.



When my hair left, my companion left, my life… Continue

Added by Debbie on January 4, 2009 at 5:45pm — 2 Comments

Stretch the Cat

It has been said that grief is the good-bye you don't want to say. Last evening, my beloved cat came home with a huge hunk chewed out of his lower left quadrant. I knew immediately there was nothing to be done. Because of shock, he wasn't in any pain. So we let him lie on his favorite Persian rug. We scratched the back of his neck and the side of his ears, and told him we loved him. And we also told him it was okay to go, that he had done his job… Continue

Added by Nants the Rebellion Dog on January 4, 2009 at 3:39pm — 5 Comments

Hi again

Here on Alopecia World on my page, they're only pictures with my hair. And I wanne try something with a lot of daring.

I want take a picture of me without hair. I'll post it when it has taken.

I walked always round at home without wig, when there come visitors, then I run so quickly as I can upstairs. But when I go downstairs and I don't know that they're visitors. Then I 'm so sad on my brother, because it's mosly one of his friends are downstairs. If they other visitors, then my… Continue

Added by Evelien on January 4, 2009 at 12:09pm — 3 Comments

It's now easier to get around Alopecia World

Sample - New submenus on Alopecia World Submenus have been added to the navigation menu at the top of each page on Alopecia World, making it much easier for you to find your way around our beloved community.

Simply move your mouse over each navigation tab to see the additional choices.

You'll find new selections under the following tabs:

* My Stuff (all your personal options are now just a click away!)

* Members (check out the new search page!)

* Blogs

* Photos (be sure to try the…

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Added by Alopecia World on January 4, 2009 at 12:30am — No Comments

Ordered a Bohyme lace front wig

I had my first wig salon visit and oh my how expensive a good wig can be! The stylist recommended a $1500 european virgin hair wig for me but right now it's not an affordable option. What I did get to see is the french lace aka french top aka skin top aka invisible knots aka injected hair (so many names for the same thing). Anyway the french top is amazing, it's where they do a layer of lace, tie hair to it then pull the hair through another layer of lace so you don't see any knots and it gives… Continue

Added by NPC3 on January 3, 2009 at 11:11pm — 3 Comments

An update on Merari's new Wig!!

Here is an update on how Merari's first wig consultation went....well...it went VERY WELL!! Thank God.



Phew :-) ....because we were very nervous at first and were unsure what to expect. We had many question and some concerns, as you can image. The consultant was very kind and was able to answer all the questions. The most important thing to us was that Merari find a wonderful wig that she would love to wear.The other concern was the cost. We wanted Merari to have a nice and natural… Continue

Added by Merari's Page on January 3, 2009 at 7:32pm — 3 Comments

Acceptance

Hello to all my friends here at Alopecia World.

I hope this new year is finding you well.



I'm writing about acceptance tonight. As you may know the slogan at Alopecia World is "Where acceptance is all there is. This holds esspecially true to me. I have been accepting me my entire life. Not only me but accepting of everyone.



I have had alopecia for just under a year and a half.

My first 6 months with this condition was awful. I didn't know what was happening to… Continue

Added by JeffreySF on January 3, 2009 at 3:14pm — 6 Comments

Hair Don'ts

This is not the first time my hair has caused me trouble. That happened with my best friend, Libby Wyatt. She was just my age and lived down the street from me. I remember we had matching red shoes...little Mary Janes with a t-strap and 3 petal cut-uts at the toe. I still have a pair of that type of shoe...now they have high heels and are more maroon than red, but everytime they come back into fashion I buy a pair! I don't know where she is today...or if she's still buying those shoes as… Continue

Added by Nants the Rebellion Dog on January 3, 2009 at 3:12pm — No Comments

today is a reeeeealy bad day

Hey. Just having a really bad day. I bought a topper and planned to start wearing it over the holidays. To this point I have been able to cover my hair loss patches although you can tell my hair is thinning (it's been about a year of steady thinning and small patches. I have Lichen Planopilaris (scarring alopecia). Well, I had a stylist thin it and she did it too much. Now it sort of looks like a chia pet in spots. No wearing that on Monday to work! Anyway, I've been crying all day and the… Continue

Added by Karen on January 3, 2009 at 2:06pm — No Comments

So Proud

The other day I called Bradyn over to put her foam on her spots before bed. She looked at me and said " I will do it myself". She put the foam on her hands ( I know that its supposed to go either right on the spot or in the cap so it wont melt but shes five Im not going to push the issue) and puts the foam everywhere where she has had hair loss. I was so proud of the fact that here she is at 5 and is taking control of her treatment. :)

Added by Mandy ( Bradyn's Mom) on January 3, 2009 at 2:01pm — 3 Comments

Hopes for 2009

OK - I haven't been on AW for a while now, mainly for two reasons. The first is mainly due to the fact that I can't seem to come here without having some perv think my bald head is the greatest thing since sliced bread. Although it's great that someone thinks I'm drop dead gorgeous, they don't seem to get the idea that one day my hair may come back and they will no longer find me attractive. Besides, since when was love all about being physically attracted to someone, there's gotta be more than… Continue

Added by Carol on January 2, 2009 at 8:41pm — 5 Comments

A Madwoman

The last few nights I've been having vivid dreams in which my hair (slowly disappearing) takes some dramatic way of falling out. Each time it's different, but each time it's horrible. It has been bumming me out, so I decided to be prepared. I went to Ebay last night and bought (actually, bid on auctions in their last seconds) two short dark, brown wigs, not unlike my current hair cut. They were REALLY cheap ($20 each delivered to my doorstep). I really have no intention of wearing them, but I… Continue

Added by Nants the Rebellion Dog on January 2, 2009 at 1:15pm — No Comments

Wigs for strenuous exercise?

My life has been finally calm and I have been using the time to just relax. University is done until my exchange and I passed all of my classes. The other day I took a huge leap and cut off my 30cm long pony tail of hair. I'm saving it to see what wig color will match best. So right now I have a really funny haircut... as all my mom did was cut the pony tail off from the highest part of my head.



But I have a real dilemma... I play soccer competitively and I do not know how to cover… Continue

Added by Christine on January 2, 2009 at 12:39am — 3 Comments

Starting 2009



Here's me starting off 2009 with a growing bald patch. This patch was already treated with squaric acid and injections a month or so ago....but it looks like some more hairs have fallen out. And there's another small patch I have up near my forehead that seems to be growing. Ugh.



I'm going for a haircut and color tomorrow and hopefully we'll be able to blend the bald patches in....again. *sigh*



What a wild goose… Continue

Added by Georgie on January 1, 2009 at 11:39pm — 2 Comments

Happy New Year all!!

Hi guys, it's Carmella, remember me? I'm the bald one with the sassy attitude ... oh right - I don't stand out that way here ... hehehehe. I'm the one who thinks that sunglasses = love, in that case. I've got a lot going on right now and have for a while. I have some really exciting news but I'm not quite ready to release it yet so patience please. Thank you all so much for staying my friends and not giving up on me when I went AWOL. I appreciate all your lovely comments and messages even when… Continue

Added by Carmella on January 1, 2009 at 5:05pm — 1 Comment

Wishing you the best year of your life

Happy New Year! :-)

We hope you will continue to fulfill your dreams, pursue your passions, strengthen existing relationships and welcome new ones.

We also thank you for your unique contribution to Alopecia World and encourage you to make an even greater impact on our beloved community in 2009.

With great expectations and appreciation,

richard jones (rj) & Cheryl Carvery
Founders, Alopecia World

Added by Alopecia World on January 1, 2009 at 10:30am — 3 Comments

My New Year Resolution

As today marks the first day of the new year I thought I would continue with a New Year tradition - the making of a New Year resolution. In the past I have not kept my resolutions and I think that the lack of reasonability is to blame. My cure this year is to make one that I am actually capable of keeping. I resolve to teach all that I come in contact with in the New Year about Alopecia Areata. My goal is to change the stigma that a bald woman is either crazy or has cancer. I want to use my… Continue

Added by Val on January 1, 2009 at 10:03am — 2 Comments

Tingling and alopecia

I have been experiencing a lot of thigling and itchy sensations all over my head. Does this happen to anyone too? Is this linked to alopecia or is it something different? I am scared to scratch my head because I feel like I am going to make more hair fall out. I heard that there is a type of alopecia where the hair folicule gets completely damaged and the hair will never grow back. I am still learning about this so I dont really know what is going on.



Also, thank you to those who… Continue

Added by julie on December 31, 2008 at 10:11pm — 3 Comments

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