All Blog Posts (5,832)

Please can I be normal again?

Going through a rough time again i suppose. I haven't been on this site in the longest time. I think it's like if i do then it's me admitting i have alopecia. Which in all honesty makes no sense whatsoever, because i'm completely bald...When i go out i wear a wig and a hat or scarf over it. I think it looks too fake if there isn't any "decoration" to it. If i'm just at home i wear just a winter type cap/hat. I feel miserable everyday. I feel like i've lost myself. I want my hair back. Why can't… Continue

Added by Lucinda on February 26, 2010 at 12:30am — 4 Comments

02-25-10, Some Background on Me

I was born in 1978, the year of the horse. Ironically, I am a majorly intense horse lover! I have loved reading since I can remember, also. Writing came a bit later, but not by much. By age 8 I was keeping a journal faithfully, and early realized the therapeutic benefits of pouring all my feeling out in the page. Literature took hold in me in my mid-twenties, and I devoured Jane Austen, Thomas Mann, Harold Bloom, Virginia Woolf, etc. I have since extensively read critical works about any author… Continue

Added by Laura Adams on February 25, 2010 at 6:15am — 4 Comments

Dotty's Inspirational/Motivational Reflection

"Hard Work Does Not Guarentee Success, But No Work Guarentees Faliure"

Added by Dotty on February 24, 2010 at 2:22pm — No Comments

Any teens interested in being interviewed?

I am looking for teenagers with alopecia to interview for a school related project on alopecia. I am at the graduate level and have a great idea!! l If you are interested please e-mail me at megpierce11@gmail.com. Thanks for your interest.

Added by Megan Pierce on February 22, 2010 at 5:22pm — No Comments

I want to interview parents of children with alopecia

I am looking for a parent to interview for my graduate project on alopecia. I will inform you about my project. I was interested in doing an e-mail type interview, unless you prefer the phone. Thanks for your interest! Please e-mail me at megpierce11@gmail.com if interested!!

Added by Megan Pierce on February 22, 2010 at 5:00pm — No Comments

Dotty's Inspirational/Motivational Reflection

"Never part without loving words to think of during your absence. It may be that you will not meet again in this life."

Added by Dotty on February 22, 2010 at 11:46am — No Comments

Creative Introduction

This Sunday after Church a young girl came up to me and wanted to introduce me to her friend. The girl informatively said, "she has the other type of chemo." It was so hard for me not to giggle. My little friend knew I wasn't sick, and she constructed a creative introduction.

Added by Jill on February 22, 2010 at 11:38am — 5 Comments

Dotty's Inspirational/Motivational Reflection

"Snowflakes are one of natures most fragile things, but just look what they can do when they stick together."

Added by Dotty on February 21, 2010 at 9:39am — 1 Comment

Rant about that courier guy

Last week I encountered a rather inquisitive courier. He looked at me and asked straight out, "Is that your real hair?" Feeling annoyed at his lack of sensitivity, i just looked at him. Also, I was caught off guard as nobody has ever asked me before! Most people that see me with my wig on just asks me where I get my hair done because it looks good. :) So I guess I can let just one guy slide..


But it doesn't end there. The courier guy continues with, "oh i guess it's your…
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Added by Clara S. on February 21, 2010 at 5:13am — 7 Comments

How annoying!

Does anyone else get this?

I went into town with my mum for a bit of a girly day out shopping really. We were queuing to pay, and with it being half term holidays, we were next to a mum with her two young daughters. The youngest, about 4 or 5 years old, kept staring at me and whispering to her sister, "That girls got no hair". okay I can accept that. I'm sure I would have at her age. then she turns around to her mum, "That girls got no hair". okay, a little annoying now. once…

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Added by Lizzie on February 19, 2010 at 6:43pm — 4 Comments

Loving Our Bald Selves

If we can face life’s challenges feeling good about ourselves, we can

often meet those challenges with more

clarity, more determination, and more

understanding. At no time is such love

of self more important than when fighting

cancer. Yet many women find their

love of self becomes compromised by

the emotions stirred when they find a

bald, “sick-looking” person staring back

at them in the mirror. Even women who

rise above self-deflating…

Continue

Added by Susan Beausang on February 19, 2010 at 2:00pm — 3 Comments

There and back again

Hard to believe that it's been so long since I've posted anything here. Hope everyone here is doing well. My own journey over the past 8 months has taken me to many places…some new, some not so new, some I’d rather forget and be done with. My alopecia continues, primarily in the background as I continue to adapt, yet occasionally offers…

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Added by Tony on February 19, 2010 at 7:13am — 1 Comment

I love to feel alive!

Ok, today I just finished ten days straight with no day off, not including school on four out of those ten days! So, currently I am listening to SHOTS by LMFAO and 3 by Britney Spears, because tonight I'm going out!



Look out town, I'm coming out tonight, and I ain't holding back nothing!

This blog is different from the last… Continue

Added by suzie on February 18, 2010 at 5:42pm — 6 Comments

updated ver1.0 Tired of being tired - here's how I see it

Heres how i see it. What do us Alopicians all have in common, at fist glance it appears nothing, you could say the same thing about people who have athletes foot or fungal nails, kids, men ,women, healthy and other wise all can get athletes foot and fungal nails what the commonality,... you got it a third unwelcomed party Microbial pathogens they have been around forever and evolve and can adapt. I did some detailed research about these little critters turns out there are many types of… Continue

Added by George Ortiz on February 18, 2010 at 12:30am — 3 Comments

Dotty's Inspirational/Motivational Reflection

"We are responsible for what we are, and whatever we wish ourselves to be, we have the power to make ourselves. If what we are now has been the result of our own past actions, it certainly follows that whatever we wish to be in future can be produced by our present actions; so we have to know how to act."

Added by Dotty on February 17, 2010 at 9:42am — 1 Comment

Hello

i've had AA for a few years now.. it started as an ophiasis type that slowly progressed to nearly AT.. it's hard everyday having less hair than the day before, and knowing that it will only get worse as the days go by. i've seen doctors, had injections, tried dpcp, tried acupuncture, lots of time and money and emotionally draining each time i start a new treatment with high hopes that end up in disappointment. luckily my husband is so supportive and lifts my spirits when i am feeling low.. so i… Continue

Added by Sooyeon Lee on February 17, 2010 at 2:10am — 2 Comments

Guilty Crack Head

I have had Alopecia Areata for about 20 years. The first time it fell out I lost most of my hair, eyelashes, and eyebrows. Then some grew back, but not all of it. A few years later a friend who was a nurse told me to try P.U.V.A. which I did and to my surprise all of my hair grew back 100%!!! Of course as you all know there is no cure and when I stopped the…

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Added by Devin on February 16, 2010 at 11:12pm — 17 Comments

Dating

This weekend has made me reflect on a lot of things. When my hair first started to fall out, the thing that seemed the most scary to me was meeting a guy and having to tell him about my alopecia. Then when I got my wig I gained a lot more confidence, and telling someone didn't seem so scary, in my mind. I have now lost 3/4's of my hair....the other quarter, which I was certain would have gone by now is still hanging in there. I have really come to terms with losing my hair and it's something…

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Added by Sarah McA on February 16, 2010 at 6:45am — 10 Comments

Dotty's Inspirational/Motivational Reflection

"We make a living by what we get, we make a life by what we give."

Added by Dotty on February 14, 2010 at 9:51pm — 2 Comments

Head Jewels

Many of us aspire to be more like our wonderful AW role model, Crowned Regal. Last night I tried a little bit of "royalty" on my head - I wore some glue-on head jewels for the first time. I bought a kit online last year from a company that supports women with hair loss due to cancer, called "Crown Jewels", but I hadn't found the right moment to try the look.

For my first attempt at head decoration, I chose all-red jewels and wore them to a Valentine's Day folk dance party. I…

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Added by Mary on February 14, 2010 at 8:33pm — 10 Comments

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