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My first blog

This is my first blog post. I have decided that this could be a good way to say what I need to say....

So....the patches are getting bigger. I have decided not to have any more steriod shots, I would rather be bald and happy then hairy and in pain. My hair is falling out just in the back (underneath) so noone can even see it :) except me :( Is it bad that the fact that noone else can understand what I am going through because my hair is just falling out in the back? Honestly I wish it… Continue

Added by Allison Miller on February 3, 2010 at 2:22pm — 4 Comments

Dyeing Hairpiece

I would like to know if anyone has ever dyed there hair piece themselves? I really need advice or suggestions. Anyways I have a 100% human hair wig by WIGPRO. I really would like to dye it dark since the hair that has been growing back is dark as well and the wig is blonde right now, which is what my hair color use to be. I have an appointment today at a salon but am nervous dont really like taking it to people I dont know. Please all the advice would be great. If i can save the extra money I… Continue

Added by Laura on February 3, 2010 at 2:07pm — No Comments

Dotty's Inspirational/Motivational Reflection

"The supreme prayer of my heart is not to be learned, rich, famous, powerful, or good, but simply to be radiant. I desire to radiate health, cheerfulness, calm courage, and good will. I wish to live without hate, whim, jealousy, envy, fear. I wish to be simple, honest, frank, natural, clean in mind and clean in body, unaffected, as ready to say I do not know, if it be so, and to meet all men on an absolute equality, to face any obstacle and meet every difficulty unabashed and unafraid. I wish… Continue

Added by Dotty on February 3, 2010 at 12:54pm — No Comments

it's been a while...and another derm update!

I've been a little less active than I'd like lately on AW, but work has me crazy right now... they shipped me to Indiana for some GM testing a few weeks ago, then transferred me to a new store, so I had to move... I'm in my new place now, not quite unpacked, but wanted to drop a line to my AW friends while I can...



I went back to the derm today... on a good note, the biggest spot is significantly smaller now, and a few of my smaller spots are gone! I DO have some regrowth!! The white… Continue

Added by Callie on February 2, 2010 at 10:53pm — 1 Comment

Quick quotes to heal the soul

I know that there are a few people here who love quotes as much as me and these are just a few which I've found recently that I really liked and wanted to share...



"Braiding your hair doesn't make you beautiful. Wearing gold jewelry or fine clothes doesn't make you beautiful. Instead, your beauty comes from inside you. It is the beauty of a gentle and quiet spirit. Beauty like that doesn't fade away. God placed great value on it." 1 Peter 3:3-4



"Never discourage anyone who… Continue

Added by Carol on February 1, 2010 at 4:42pm — 8 Comments

My Success, Hooray! THANK YOU

I would just like to say, "Thank you!!!" to all of the amazing people on Alopecia World. I could not have mentally made it through my struggle if it were not for the stories of all the honest and brave people on this forum.



I had been struggling with hair loss for quite some time. At first I actually thought it was cool that it took only half the time for me to dry my hair! Little did I realize how severe it really was until I one day, I very clearly saw my scalp through my hair… Continue

Added by Amy on February 1, 2010 at 1:30pm — 2 Comments

Oh No She Didn't...

Well I gotten some great responses to my blogs so the blogging will continue.... Ah yes a new adventure in my life everyday. A couple weeks ago I wanted to venture out and embrace the night life once again. The clubs are calling my name. No, no that's not right, I should the money is calling my name. Clubs are also known as fast cash. Compared to dead end restaurant jobs that for some reason I keep going back to.



I've been the secretary. The night time cleaning lady. Ice cream… Continue

Added by suzie on January 31, 2010 at 9:31pm — No Comments

Alopecian Adventures in Antarctica and Argentina

I just returned from a trip that my husband and I have been planning for a long time. I was out of Internet contact for most of the time, and I missed the AW community. I'd like to share a few moments from the trip, particularly some that involved my baldness. I've posted one photo on my page, and will probably put some more up eventually, as well as videos on YouTube of the wildlife.



Yesterday was the two-year anniversary of my shaving my head. I've been publicly "out" as a bald… Continue

Added by Mary on January 31, 2010 at 8:07pm — 10 Comments

The man who couldn't take a hint

In and out, costumers coming in, leaving, or walking through. I stare out the large window of the resturant. I probably have a look of great intense search for something. Yet really my eyes and nose are scrunched up merely because I want to see the snow flakes gracefully fall from the sky. "Hey miss, excuse me... yea you." Oh my bad, I quickly go over to their table and wait on them and remove thier plates from the table. Two guys about middle age I would guess, one of them slyly replies… Continue

Added by suzie on January 31, 2010 at 3:13pm — 4 Comments

Pregnancy and alopecia

so after trying for two years to get pregnant we stopped trying in november...

i found out i was pregnant in december... what they say is true! stop trying and it happens.

Well it came as a bit of a surprise because we were in the middle of selling our house and packing to move!



and i didnt realise morning sickness is so bad!



so many people have said to me that there is a chance my hair will grow with all the hormones and things happening to my body. so far i do… Continue

Added by Alison on January 31, 2010 at 5:10am — 6 Comments

Broken

Oh my dear friends, I am sorry I have not blogged in so long! I've been busy... blah blah what an excuse!...For that I apologize, but hey it's the best I got right now.



Right now, I am going to dig deep for a minute or so and really put some things out here. As you have seen my profile, I'm funny, witty, cocky, bold, etc. But I can feel it coming. I can sense it. It's right behind me, waiting patiently, ready to swallow me whole.For the last couple blogs where I've dabbled in here… Continue

Added by suzie on January 30, 2010 at 7:18pm — 1 Comment

Dotty's Inspirational/Motivational Reflection

"Courage, sacrifice, determination, commitment, toughness,heart, talent, guts. That's what little girls are made of; the heck with sugar and spice."

Added by Dotty on January 30, 2010 at 12:25am — No Comments

Dating with wig

Last night I went on my first date with a wig on. I was nervous and a little self concious, but it was fun and I felt comfortable pretty quick. Im not sure what will happen with this one, but at least now I know that my alopecia is not necessarily a roadblock to finding someone. I can meet people and date and be confident and that's a huge step for me. Every little step I take is another sign that my alopecia is not a death sentence. I can still do everything I wanted to do, and I can do it in… Continue

Added by Andrea on January 28, 2010 at 1:14pm — 8 Comments

"Home...Away from Home"



Every now and then signing on to Alopecia World allows me to reflect.

To share, also connect with people who's life has been thrown into a spiraling pool of loss, isolation and sadness.

Where the only way to feel accepted in the outside world, is to cover up with head covering.

So here at Alopecia World we are free to shed our wigs, our hats, bandannas and head coverings, that hide our sorrows.

Here we can unwind, disrobe, to tell our stories, pains and… Continue

Added by MiNAH on January 27, 2010 at 11:43pm — 5 Comments

Need Some Advice Please!

Hello Alopecia Friends,

My daughter Kimi is getting married in September and I, of course, am absolutely thrilled. Her fiance' is a wonderful man who I absolutely love. My dilemma is, as the "Mother of the Bride," I will be in the spotlight quite a bit at the wedding. As a lot of you know, I have a headful of tattoos and do draw attention to myself pretty much wherever I go. I, however, do not want to draw attention to myself at Kimi's wedding because she deserves the whole spotlight. My… Continue

Added by Dotty on January 27, 2010 at 2:19pm — 9 Comments

It’s been a tough journey to this point

Hello everyone,



I just wanted to start out saying that you are really a bunch of beautiful people! With and without hair! I’ve been admiring you’re photo’s and reading your blogs, and I’m really drawn into you’re openness. I’m truly amazed by some of your willingness and creativity to try different things. Whether it’s baring it all, wigs, tattooing, etc… Just illustrates how ones true beauty is really not skin deep!



I truley appreciate reading everyone’s blogs. Especially… Continue

Added by John on January 26, 2010 at 1:58pm — 8 Comments

Why alopecia makes me a better person

Hi, if you have read my other two blogs you know I am pretty good with my AU, that I actually in some ways like it at this point. Here are some reasons why



1. I am stronger- this is kinda obvious, we are all stronger because of this, we go through a life changing thing really, especially in our culture where looks are so important, where hair is a billion dollar industry, we are thrown into this and we must deal, we must be ok, and we are. it is only hair. I repeat that to myself… Continue

Added by Erin on January 25, 2010 at 1:00pm — 9 Comments

I'm scared!

it's been a year since this problem stared again!! and i'm really scare because it's getting worse!!! the first bald spot it's already full of new hair :D it was really big!! but i have new ones!! and they are not that big, but they are big!! and i notice that i have like 3 new littles spots, and i don't like it, on the big spots i can notice some regrowing, and i some of the old spots are getting bigger, and don't like it, but i'm really scare because i can still cover it, but i don't know how… Continue

Added by brenda j on January 25, 2010 at 1:00am — No Comments

NIH Funding for Alopecia Areata Ending in Sept 2010

Hello Friends,

I wanted to put the word out there that 10 years of NIH funding for alopecia is coming to an end this Sept.

Please help be part of the cure It's free and painless.

www.alopeciaareataregistry.org

Sending all the best to all!

Jeffrey

Added by JeffreySF on January 24, 2010 at 10:00pm — 5 Comments

Dotty's Inspirational/Motivational Reflection

"A good friend is a connection to life - a tie to the past, a road to the future, the key to sanity in a totally insane world."

Added by Dotty on January 24, 2010 at 9:52pm — No Comments

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