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drifting

laughter
peace = absence of fighting
calm before the storm


tears
entitlement
selfishness

sinking

what have I created?
There's no one else to blame

never soaring

what I deserve

what did I expect.

Everything.

Added by Kelly D on March 6, 2010 at 11:41pm — No Comments

Wow! It has been a year since I got diagnosed

wow, i didn't realize how long it has been since i got diagnosed, but it has been a year, not much has changed and i'm still the same person i was before march 6th 2009, i'm still confident as ever, music is the still the constant for me and i'm still positive about everything whether good or bad, met a lot of good people on here, and i sure hope to meet more of you this year too, i hate to make this one short but i need to rest.


cheers!!



Paul

Added by Paul on March 6, 2010 at 11:00pm — No Comments

Theres hope! ahhhh! :))

A while ago my dad told me that a guys daughter that he works with had alopecia and she grew out of it completely by the time she was 18 :) I figured i would put this up and tell people this so they would have hope that it can go away. :) When my hair falls out it comes in spells and lasts for a couple of months and each time it falls out it less and less hair falls out each time. :D Is anyone elses hair doing the same thing as mine??

Added by Rachel Taylor on March 5, 2010 at 3:11pm — 5 Comments

Things Alopecians Like #14

No need to keep up with the latest hair trends.

Added by Jill on March 5, 2010 at 1:29pm — No Comments

Oprah's March magazine

Just wondering if anyone else was a disappointed as I was when I got this issue. One of the headlines was "When the one thing getting thinner is your hair". I thought finally there will be an artical to explain our situation. But when I read the one page artical I was stunned to see most of the page was advertisments for Minoxidil,finasterdie lasers and hair transplants!!! In the first paragragh they state"80% of the time regrowth is possible" they never even mention totalis or areata,they talk… Continue

Added by linda carraway on March 4, 2010 at 4:20pm — 5 Comments

Heartbroken?

It breaks my heart to see anyone with no hair, little hair, bald spots, or to find out that they have a disease that will cause that but it really put my heart in pain when I saw a little girl not even in her teens yet with no hair and I watched people stare at her like they thought she was from a completely different world. It brought tears to my eyes when I saw a grown adult ask a little girl, that looked to be about 7 years old, why she didnt have any hair. I mean are you serious?!Your an… Continue

Added by Rachel Taylor on March 4, 2010 at 3:12pm — 5 Comments

If you do NOT have alopecia...

If you do not have alopecia, please join the group "Non-alopecians in Alopecia World" and also consider participating in one or more of the following groups:

NAME: Non-alopecians in Alopecia World

DESCRIPTION: If you're a member of Alopecia World and you do NOT have alopecia, you should join this group. Share your unique concerns as a non-alopecian who's truly supportive of alopecians. Let us learn from…

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Added by Alopecia World on March 4, 2010 at 12:00pm — No Comments

People These Days!

I just wanted to share a story that happened this past Sunday. My nephew's brand new Nintendo DS that he got for his birthday (I just bought it Wednesday!!) was stolen right from my booth at the flea market, and to top it off, I tried to stop the woman who I suspected took it, and she hit me with her car trying to get away!!! Didn't get the DS, and have a massive bruise on my knee!!! I will never understand how someone could steal from a little child who was sitting right there with me. I… Continue

Added by Dotty on March 4, 2010 at 9:30am — 4 Comments

Dotty's Inspirational/Motivational Reflection

Mother Teresa's prayer



People are often unreasonable, illogical, and self-centered;

... Forgive them anyway.



If you are kind, people may accuse you of selfish, ulterior motives;

... Be kind anyway.



If you are successful, you will win some false friends and some true enemies;

... Succeed anyway.



If you are honest and frank, people may cheat you;

... Be honest and frank anyway.



What you spend years building, someone… Continue

Added by Dotty on March 4, 2010 at 9:29am — No Comments

Get-togethers

Hi all. After having Alopecia for decades, I finally decided to go to a support group to find out if any new treatment plans have developed since I was first diagnosed. Treatments were all the same with much of the same results, but I enjoyed interacting with people that had the same thing I had. I was inspired to start a group but a motivational like gathering, so we Alopecians can meet and talk and share and cry and laugh together. I have the motivationals every month in Manhattan (New York… Continue

Added by Gale Moorman on March 3, 2010 at 10:30pm — 2 Comments

A cure that has worked for me

Now to set the record straight im not here to gloat im here to inform people about the success i have had from cortisone shots, forgive me if thats the wrong spelling.



The first time i had alopecia i was incredibly afraid of needles didnt get shots, well i paid for it in the end lost most of my hair but it grew back. Went around 2 years with hair and it was awesome, noticed a bald spot went in to see if there was any new treatment doctor said youll have the best luck with shots, i… Continue

Added by Kevin on March 3, 2010 at 9:27pm — 7 Comments

Who cares?

Okay i left work Yesterday without a hat on. I had my wig on. But I like to where my hat because it covers everything. And the first thought that came to me was someone on the train is going to stare down at my hair trying to figure out if its a wig, weave, or not, but i left anyway made it on the train without anyone staring. I decided to go shopping and after work i forgot about the whole not wearing a hat thing. As i finished shopping and stood online to buy pizza, thinking of what type to… Continue

Added by Sam Sam on March 3, 2010 at 3:13pm — 5 Comments

Venting

I must say I'm excited to have found this website! I am a newbie here but not to Alopecia. My son is 6 and was diagnosed at age 2 with just patchy hair loss. From there, it grew back, only to fall out more severely. To get it to try to look somewhat normal instead of just a really bad hair cut, I decided to shave his entire head about a year and a half ago. He is still completely bald and quiet adorable I might add lol Since, his eyebrows and eyelashes have came out too. This was the kicker for… Continue

Added by April Broughton on March 3, 2010 at 10:01am — 2 Comments

hmmm

How come my daughter's hair grows back in the summer? And as soon as the summer comes and goes so does her hair! Any input? THANKS

Added by Renee on March 3, 2010 at 12:58am — 1 Comment

Roger Ebert is an inspiration - his words about coming to terms with his changed appearance

Film critic and author Roger Ebert appeared on the Oprah Winfrey show today. He's been battling thyroid cancer since 2002, and has had his entire jaw removed and has endured multiple surgeries and attempts to reconstruct his jaw. He can no longer eat, drink or talk, but he continues to write reviews and blogs. A full-page photo of him as he looks now recently appeared in an Esquire magazine article.

Besides the example he sets for everyone in dealing with adversity and…

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Added by Mary on March 2, 2010 at 7:58pm — 8 Comments

My First Marathon = 26.2 miles!

I’m alive! I successfully completed my first full marathon this weekend at the Rock ‘n Roll Mardis Gras Marathon in New Orleans this past Sunday with my Dad. We had beautiful weather (sunny and in the 50s), and there were over 15,000 runners! I was so nervous the week leading up to my race, but on race day I was surprisingly focused and calm. There were about 15 corrals of runners that were started in waves so that there wasn’t a stampede. My goal time was 20 minutes longer than my Dad’s, so…

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Added by Natalie on March 2, 2010 at 2:57pm — 6 Comments

Keeping safe and protecting your privacy on Alopecia World

Alopecia World strongly encourages all of its members to adhere to the following safety and privacy guidelines:

1. Report all suspicious and inappropriate conduct to Alopecia World: http://www.alopeciaworld.com/main/index/report

2. Review your privacy settings at least once a week:…

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Added by Alopecia World on March 2, 2010 at 1:30pm — No Comments

Shaving

I am sure it has been discussed but I can't locate the thread. Do you shave in the shower? Do you just let the warm water run over your head? Do you use a cream or soap? Do you stand in front of the sink having showered the previous evening? Do you put a warm wash cloth on your head for a short period of time first? Do you shave every morning or evening? Do you work in short strokes or long? Do you shave with the grain against the grain or even sideways? Do you go through blades as quickly as I… Continue

Added by Rick Seymour on March 2, 2010 at 12:37pm — 3 Comments

I am so scared

Well, what can I say... after all this time has past!

It has been over a year now since I lost all my hair.

Everything was going great, so I thought!

Damn! I don't deal with stress as well as I used too.

I lost my hair in October, a year has now past...

My hair grew all back, oh what joy it brought to my…

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Added by Ursula on March 2, 2010 at 5:51am — 1 Comment

Regrowth

Hi everyone! Im quite curious as to how many children have regrowth and at what rate? and how often does it regrow just to fall out again? Mikey began losing his hair in october 2009 and recently has begun to show white hair regrowth. The dr said Mikey would have his hair regrow but didnt gurantee the cycle wouldnt repeat itself. Which of course is my biggest concern. Just wondering whats headed our way!! Mikey often talks about geting his big hair back, and we just shaved his head on Feb 8,…

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Added by jackie estrada on March 1, 2010 at 11:10pm — 2 Comments

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