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Finally the long awaited appointment!

So I finally saw the new doc about new treatments available. The doc is just a kid. Well, he gave me one topical solution to try, also info on two drugs that I could take. I would really appreciate if any of you have any knowledge/experience on these drugs. They are as follows:

Topical Solution- Capsaicin; derived from the hot cayenne pepper. Used to control pain & itching. Causes stinging and burning. Not too many serious side effects.

Pill- Cyclosporine… Continue

Added by Brandy Snap on March 15, 2010 at 6:42pm — 9 Comments

Done. shaved. yay!

My boyfriend shaved my head for me and it feels GREAT! I'm not sure if I'll ever leave the house bald but I'm loving how I no longer have to worry about my falling hair. Besides, I didn't have that much left either so what's the point of holding on? I am still pursuing treatment but I don't think it matters to me at this point. If it grows, and treatment works, then that's great. If not, oh wells!

Added by Clara S. on March 14, 2010 at 10:39pm — 12 Comments

Wig in a box

I have a wig in a box. I'm afraid to open it. I shaved my head to about 1/4 inch. I'm afraid to shave the rest. It's so weird. The hair I shaved was long and beautiful. There just wasn't much of it. I find myself fascinated by how pretty it was when I look at it. I'd forgotten during all my angst. Perhaps it will grow back. As a young teen/adult, I always wanted to have edgy hairstyles--now I've got one! I should just go all the way and shave the rest off. I have really dark hair, so it's still… Continue

Added by Kelly D on March 14, 2010 at 4:47pm — 3 Comments

Too long!

Hey all, Its been a long time since Ive been on here, sorry all!! Would like to say that I havnt been on for a while because everything has been fab but sadily it hasnt! I have been in hospital =[

It started at the end of november with a bit of sickness, thought I had a sickness bug going around but after 2 week I knew something was wrong so went to doctor and because of the past 2 years of being very poorly they ran test straight away and signed me off work, wasnt too happy but glad they… Continue

Added by Kayleigh George on March 14, 2010 at 1:55pm — 6 Comments

Anniversary - gonna do it!

It's the year anniversary of my accident that started the alopecia. Empowered by everyone's comments I am going for lunch with no head covering. Will let you know how I get on. At the very least I should get extra portions cos they feel sorry for me!!!!!!!

Added by Sam G on March 14, 2010 at 8:30am — 9 Comments

Dotty's Inspirational/Motivational Reflection

"The steeper the mountain the harder the climb the better the view from the finishing line."

Added by Dotty on March 13, 2010 at 1:09am — No Comments

Alopecia Books

Hey Gang,

I have an idea!
How about passing around some books about alopecia? Once you read it write a note inside and pass it along.

Jeffrey

Added by JeffreySF on March 12, 2010 at 10:42pm — 11 Comments

Dotty's Inspirational/Motivational Reflection

The person who says it cannot be done should not interrupt the person doing it.

Added by Dotty on March 12, 2010 at 12:35am — 1 Comment

Support group in S. California

I am in the High Desert area (Vicotrville) and am thinking of starting a support group ..anyone interested in Inland Empire area..or High desert..
Jean

Added by Jean Smith on March 11, 2010 at 10:41am — 1 Comment

Synthetic wigs

can anyone help as i get synthetic wigs from the nhs, i get 2 for 6months as they only last about 3, but i have only had them since january and they have hair comin out thro the top like ive cut lots of strands, they are suppose to look realistic and it makes me feel self consious, i was gonna go to a diff hairdressers that do wigs and ask as the hairdressers i go to say its something called permateze, dont know wat that is and if its meant to happen, they r both startin to look this way and i… Continue

Added by lynne on March 10, 2010 at 4:29pm — 12 Comments

Lichen planopilaris with frontal fibrosing - form of alopecia

Does anyone out there have this form of alopecia? How can so much of my hair fall out so quickly? How long does it take to accept and let it go? How do I know this is permanent?

Added by Diane Ciarlello on March 10, 2010 at 3:31pm — No Comments

Yay new wigs

I've been a little wig crazy lately. I bought 3 new wigs and they arrived a few days ago. I promptly popped them on to see how they look like. Am really liking having so much variety now. I finally got a long, straight haired wig which I wore out to dinner with Danjel. I giggled to myself as I wondered whether the security guards at our condo thought he was going out with a different girl behind my back. They probably recognized me but it's funnier to think what might be going through the heads… Continue

Added by Clara S. on March 10, 2010 at 6:30am — 1 Comment

What to do?

So, although my 13 yr old son Nathan is coping amazingly well, (I would think that we're probably at about 70% hair that has fallen out now and a lot of the sections that fell out earlier are now covered in a fine white fuzz which is great) he seems to be in another pretty active stage which is taking his fringe and the back sections too now. Which begs the question... when do you suggest/insist that maybe it's time that we cut the few bits that are still there short? I've let this whole… Continue

Added by Judith on March 9, 2010 at 9:50pm — 3 Comments

algo q decir....

hola!!! yo tengo alopecia areata, la primera vez q m aparecio fue a los 3 años d edad! desde entonces, iba y venia, al principio eran pelonas pequeñas, y luego0 cuando0 entre en la adolecensia de los 14 años empeze otra vez con el problema, y m duro 4 años, yo pense q m iba a quedar pelona, ya que habia perdido casi o la mitad d mi cabello, y tmb el bello d mis brazos y piernas, estaba super tristeee no sabia q hacer, y fui con un homeopataaa y sali adelante, dure año y medio sin alopecia, pero… Continue

Added by brenda j on March 8, 2010 at 8:50pm — No Comments

Alopecia Cruise in 2011 or 2012?

Hey all... Is anyone interested in going on a cruise? I tried to get one going a couple of years ago and managed to only get about a half dozen alopecians together, mainly because there was no Alopecia World or site to get the word out. And NAAF wouldn't put something in their newsletter. But we had a BLAST!! I would do all the planning with my travel agent. I am thinking sometime in January when the fares are lower, and maybe Western Caribbean or Mexican Riviera. Would love to get some… Continue

Added by Suzanne Thompson on March 8, 2010 at 8:48pm — 21 Comments

Maybe cruel but very very funny!

I work in a secondary school and wear 3 wigs and headscarves according to my mood. Some year 7's stopped me and asked if I had a twin who worked at the school as there is someone who looks like me but with different hair. I laughed and said I wear wigs. They wouldn't believe it and a particularly cheeky one said prove it then, take it off. So I did! Their faces were a picture, chin's hitting the floor doesn't cover it. I said was that ok and they said yes miss and sheepishly walked off. It was… Continue

Added by Sam G on March 8, 2010 at 4:35pm — 10 Comments

Brows and Lashes

Hey everyone, I would really appreciate some advice here.



A few weeks ago I noticed a tiny gap in my eyelashes and I immediately knew that was going to be the start of them, as well as my eyebrows falling out. I have lost almost all of my hair on my head, but I still have some at the back. I haven't had any hairloss from my head in over a month so I am hoping this is a good sign. However, my eyebrows are really starting to thin. I'm not sure if I am going to lose my brows and lashes… Continue

Added by Sarah McA on March 8, 2010 at 3:38pm — 11 Comments

Who I am.

We meet at churches during the day, afternoon, lunch hours, evenings, and midnights. In the conference rooms of churches, basements, outside if the weather is nice, or in church itself, we meet. We gather around at all types of churches, at all times of the day, with all types of people.



Who we are.



We shine your shoes.

Wash your cars.

Serve you food.

Clear your plates.

Park your cars.

We are your bosses.

We are your employees.

Take your… Continue

Added by suzie on March 8, 2010 at 3:04pm — 1 Comment

Dotty's Inspirational/Motivational Reflection

"A loyal friend laughs at your jokes when they're not so good, and sympathizes with your problems when they're not so bad."

Added by Dotty on March 7, 2010 at 10:30pm — 2 Comments

141 days until our wedding

141 days until....our wedding!!! I've wanted to write a post about my fiancé for several months now. To share with this community the man who loves every part of me--the man who even loves that I do not have hair.



It is truly hard to put all of my thoughts into words. When I chose to not wear a wig, the biggest fear I had was dating. You can read some of my past insecurities in "Dating...Is it the hair?"… Continue

Added by Jill on March 7, 2010 at 12:00pm — 9 Comments

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