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So this is it eh?

Today is April 19th, 2009. It was just about 3 months ago when I noticed a dime sized bald patch in my beard on the left side of my face. I Googled "facial hair loss" or something like that and found a forum with post after post from guys with the same thing. I was a little freaked out.



Over the next couple of weeks that patch started to get bigger and it spread. I came to grips with the fact that I would need to be clean-shaven until either ALL my facial hair stops growing, or, God… Continue

Added by Chris A on April 19, 2009 at 8:27pm — 1 Comment

A crisis

Is it possible to have a deep, multi-layered crisis in your life that somehow manages to touch every aspect of your being?



Sometimes it seems to me that we humans seem to continuously move between crises -- whether they are those of our own making or those created by someone else that has a direct impact on us -- and yet, when we finally emerge from the crisis of the moment into some area of peace, it seems we're never satisfied with that status quo -- and often end up looking for… Continue

Added by kastababy on April 19, 2009 at 11:31am — 4 Comments

PLEASE Let Me Know What You Think :)

This is a paper I wrote for my English 302 course at my university. I was able to choose whatever topic I wished and I decided that I wanted to educate people about something that brings all of us together. I worked really hard on it and would like to know the opinions of people who live day to day with Alopecia just like me....Please let me know what you think about it :)



~Erica







Hair is not something that many think of in any special or significant way in when… Continue

Added by Erica on April 19, 2009 at 11:30am — 3 Comments

Inspirational words from Michael J. Fox about his Parkinson's that apply to us, too

I heard Michael J. Fox speak a year ago. It was when I was just losing my hair and very depressed and angry. I came away from his talk feeling inspired and uplifted. When I saw him speak, he couldn't stand or sit still, and was constantly fighting his body's involuntary movements. The new TIME magazine (April 27, 2009 issue) has "10 Questions" with him. I'd like to share a few of the questions. Every time it says "Parkinson's disease", substitute "Alopecia":



Q: How do you keep your… Continue

Added by Mary on April 19, 2009 at 12:49am — 13 Comments

Still pregnant and more hair on my head???

I'm 29 weeks pregnant now and the white little hair on my head is still growing and also becoming a big thicker than it was before my pregnancy. My eyebrows have also come out a little bit more but they are not really full eyebrows. I think my eyelashes are still falling out but there's fortunately still a little bit left!



I don't have a single hair on my body and what I'm asking myself is if it's possible to have hair on your head but no hair on your body? I've just heard from… Continue

Added by Zoe on April 19, 2009 at 12:43am — No Comments

A New Beginning

Hi everyone! So yesterday and today were HUGE days for me! I met with Karen Peterik of Freedom Wigs yesterday, and she was absolutely inspiring! She has such a positive attitude and carries herself with style and confidence; Karen and the many other women who have been through this tough journey and have come out of it that much stronger are such role models for me. We ordered my vacuum wig, and I SHAVED MY HEAD!!! It was awesome!! I was a little bit nervous, but mostly excited. My Mom,… Continue

Added by Natalie on April 18, 2009 at 10:30pm — 17 Comments

Finally...

Sorry it's taken me so long, but I finally put up a new (updated) picture of my new wig. Here it is!

I'm getting married soon (Sept) and this is just after my makeup trial. Hope you like it. I know that I love it. It's so thick and lucious in comparison to my old wig and I love the rich dark color too.
Hope everyone is doing well.
amanda~

Added by amanda~ on April 18, 2009 at 8:08pm — No Comments

Sick of everyone thinking I am really young

So I am almost 24 - and before people know how old I am, everyone assumes I am heaps younger. A (younger) friend said to me today, I don't know if it's your hair or what but you don't look anywhere near 23! (She knows I wear a wig). Now I am starting to wonder if maybe my hairstyle is making me look younger. I am about to order another wig and am wondering if I should get a different style - but I don't know where to start!!! At the moment I have straightish red hair that is just below my… Continue

Added by Karina Louise on April 18, 2009 at 2:56pm — 4 Comments

Last two weeks My son started to get a little bit of prickly hair comming through th e top of his head...I thought oh my gosh it's comming back. But it has seemed to be going nowhere. I gave him a ba…

Last two weeks My son started to get a little bit of prickly hair comming through th e top of his head...I thought oh my gosh it's comming back. But it has seemed to be going nowhere. I gave him a bath the other night and when I was drying him off I was finding all of these longer hairs falling out. What a roller coster of emotions..... Continue

Added by Christine Messner on April 17, 2009 at 11:53am — No Comments

Brittany's Wig

Hello Everyone - Brittany got a new wig today, her very first wig and I just wante to share it with you all!!! The pictures are posted in my profile!

Added by Tracy on April 16, 2009 at 1:35pm — No Comments

Me!!! haha

okay



well i grew up with mostly guy friends i guess you could say i was a "tom boy". And i don't think i wud be as strong as am today if i didnt have them at that early age. They always stuck up for me and taught me how to fight bak but i also do a bit of martial arts now anyways. We all played rugby together in the same club and it our primary school even though it was banded. i was staying at my mates daniels house every weekend since i was 6 and he wud always hav his step bros… Continue

Added by ✖Sadistic Lullaby✖ on April 16, 2009 at 8:29am — No Comments

Authors on Alopecia World

The following list of books were written by members of Alopecia World. Please click the title of each book to learn more about it and to purchase a copy.

If you have an updated profile on AlopeciaWorld.com and would like your book listed here,…

Continue

Added by Alopecia World on April 16, 2009 at 7:30am — No Comments

Did the hokey pokey to my head...with the derm's needle

Went to a new dermatologist yesterday. She was great. A good listener, and was able to answer questions...much better experience than the first derm. She looked at my many(yes there are several patches in my head now ...AWESOME!!!) patches and saw hair growing back in a few of them...yeay!!! She suggested that she inject steroid around the newer patches and some that were just starting sprouts. I agreed to it, and about 30 (maybe more) needle pokes later, done. Here's how it felt;



1)… Continue

Added by Jennifer Krahn on April 15, 2009 at 3:40pm — 6 Comments

west coast love & east coast stress

so i did decide to go on that vacation last month! i spent two weeks in las vegas and california.

i am completely in love. you lucky westerners! something about it just completely lifted my soul off the ground.

im moving out there. to n.las vegas. (dont get me wrong, i want cali!)

soon.

i've taken the necessary steps to get some loans.

and it's all workin out.

gonna drive my big fat twenty year old cadillac across country, wish me luck!

going on a whim for an… Continue

Added by tat on April 15, 2009 at 12:30pm — 1 Comment

the patch gets a friend.

friday night i found my second patch. this one on the right side (stage right) of my head. smaller than the first, about the size of quarter, as opposed to being lime size like patch 1. i suppose i'll have to give them proper names now that there is more than one...so i cried a bit then got incredibly moody. then picked a fight with the husband. kicked the cat (just kidding... my cats are enormous, i would injure myself kicking them). then i got wasted with my family. good times. not the most… Continue

Added by Jodi on April 15, 2009 at 12:55am — 14 Comments

Beauty

I just want to thank everyone on alopecia world. I have not felt this beautiful in a very long time.

Soo, thank you all!!!!

With love, hope and compassion,

Camille Rose

Added by Camille Reinecker on April 14, 2009 at 9:50pm — 3 Comments

Kenalog injections

Just wondering if anyone else has had more hair loss after kenalog injection. Had injection done last Thursday. Now I have more hair falling out of the spot then I did before, and allot of scalp pain.

Added by Katie on April 14, 2009 at 9:08pm — No Comments

Men's Rogaine

Wanted to know if anyone has used Men's Rogaine extra strenght. Went to the derm. and was told to use Betamethasone Lotion twice a day, and Rogain. Bought a box, and I would say it is not cheap.Wondering why the label says NOT for use by women.Sure hope that the derm. know what she is talking about! Would appreciate any comments.
Thanks,
Katie

Added by Katie on April 14, 2009 at 7:22pm — 2 Comments

Follow Up with Dr. Lovely Mc Needles

I saw my lovely Dermatologist today and she shot up my eyebrows with the Kenalog injections. She said to pick an area on each brow and add the Lumigan to see if it helps in filling out the area between appointents- "it can't hurt" -as the Lumigan is really a serendipitous (is that a word?) use of the Lumigan product anyway..



So lots of "ouchies" today- I must say I would rather be hammer fisted once in the groin as a consolation to the multiple ouchies, but I can't be a wuss! If it… Continue

Added by Craig S on April 14, 2009 at 4:18pm — 2 Comments

Acceptance

As I move on down path of being AU I try to keep up to date on the various Alopecia Websites and I was pleased to read about one young lady who had AU showing lots of re growth. It is amazing that she has so much hair again and I hope that she gets all of it back and it stays with her for ever. What I hope for more than that though is that she is not let down by the dreaded Alopecia. She seems so happy with her re growth and I really hope that she is not hurt by a turn in fortune. We all know… Continue

Added by Ray on April 14, 2009 at 1:02pm — 3 Comments

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