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Alopecians on Myspace

I started and am working on a myspace page for alopecia. The web address is www.myspace.com/alopeciakids feel free to take a look at it and let me know what you think or if you have any suggestions! Thanks!

~Amanda

Added by Lyndsey on January 5, 2009 at 6:01pm — 2 Comments

Did you see the H&R Block commercial and find it offensive????????

HI I was wondering if anyone seen the H&R Block commercial...It shows tax prepares pulling out their hair...It really bothered me..My daughter has Alopecia and she seen the commercial..she asked if they were making fun of people with Alopecia...Does that commercial bother anyone else........I found it on you tube to show you.http://advmania.blogspot.com/ H&R Block Commercial 2008 Cal: What's your secret, Johnson? Johnson: Secret?

Added by Maria, Mia's Mom on January 4, 2009 at 10:00pm — 11 Comments

hmm hair loss

Once upon a time, I was a beatiful blond girl. Everything about me was based on my appearance, and of course mostly my blond hair. I was always told that I would have a husband, a house, blah blah blah because I was so pretty. I went to school, got a degree but no . . . my whole life was based on my appearance, mostly my gorgeous locks. Every time some one new met me, it was all about the blue eyes and blond hair...then it was gone.



When my hair left, my companion left, my life… Continue

Added by Debbie on January 4, 2009 at 5:45pm — 2 Comments

Stretch the Cat

It has been said that grief is the good-bye you don't want to say. Last evening, my beloved cat came home with a huge hunk chewed out of his lower left quadrant. I knew immediately there was nothing to be done. Because of shock, he wasn't in any pain. So we let him lie on his favorite Persian rug. We scratched the back of his neck and the side of his ears, and told him we loved him. And we also told him it was okay to go, that he had done his job… Continue

Added by Nants the Rebellion Dog on January 4, 2009 at 3:39pm — 5 Comments

Hi again

Here on Alopecia World on my page, they're only pictures with my hair. And I wanne try something with a lot of daring.

I want take a picture of me without hair. I'll post it when it has taken.

I walked always round at home without wig, when there come visitors, then I run so quickly as I can upstairs. But when I go downstairs and I don't know that they're visitors. Then I 'm so sad on my brother, because it's mosly one of his friends are downstairs. If they other visitors, then my… Continue

Added by Evelien on January 4, 2009 at 12:09pm — 3 Comments

It's now easier to get around Alopecia World

Sample - New submenus on Alopecia World Submenus have been added to the navigation menu at the top of each page on Alopecia World, making it much easier for you to find your way around our beloved community.

Simply move your mouse over each navigation tab to see the additional choices.

You'll find new selections under the following tabs:

* My Stuff (all your personal options are now just a click away!)

* Members (check out the new search page!)

* Blogs

* Photos (be sure to try the…

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Added by Alopecia World on January 4, 2009 at 12:30am — No Comments

Ordered a Bohyme lace front wig

I had my first wig salon visit and oh my how expensive a good wig can be! The stylist recommended a $1500 european virgin hair wig for me but right now it's not an affordable option. What I did get to see is the french lace aka french top aka skin top aka invisible knots aka injected hair (so many names for the same thing). Anyway the french top is amazing, it's where they do a layer of lace, tie hair to it then pull the hair through another layer of lace so you don't see any knots and it gives… Continue

Added by NPC3 on January 3, 2009 at 11:11pm — 3 Comments

An update on Merari's new Wig!!

Here is an update on how Merari's first wig consultation went....well...it went VERY WELL!! Thank God.



Phew :-) ....because we were very nervous at first and were unsure what to expect. We had many question and some concerns, as you can image. The consultant was very kind and was able to answer all the questions. The most important thing to us was that Merari find a wonderful wig that she would love to wear.The other concern was the cost. We wanted Merari to have a nice and natural… Continue

Added by Merari's Page on January 3, 2009 at 7:32pm — 3 Comments

Acceptance

Hello to all my friends here at Alopecia World.

I hope this new year is finding you well.



I'm writing about acceptance tonight. As you may know the slogan at Alopecia World is "Where acceptance is all there is. This holds esspecially true to me. I have been accepting me my entire life. Not only me but accepting of everyone.



I have had alopecia for just under a year and a half.

My first 6 months with this condition was awful. I didn't know what was happening to… Continue

Added by JeffreySF on January 3, 2009 at 3:14pm — 6 Comments

Hair Don'ts

This is not the first time my hair has caused me trouble. That happened with my best friend, Libby Wyatt. She was just my age and lived down the street from me. I remember we had matching red shoes...little Mary Janes with a t-strap and 3 petal cut-uts at the toe. I still have a pair of that type of shoe...now they have high heels and are more maroon than red, but everytime they come back into fashion I buy a pair! I don't know where she is today...or if she's still buying those shoes as… Continue

Added by Nants the Rebellion Dog on January 3, 2009 at 3:12pm — No Comments

today is a reeeeealy bad day

Hey. Just having a really bad day. I bought a topper and planned to start wearing it over the holidays. To this point I have been able to cover my hair loss patches although you can tell my hair is thinning (it's been about a year of steady thinning and small patches. I have Lichen Planopilaris (scarring alopecia). Well, I had a stylist thin it and she did it too much. Now it sort of looks like a chia pet in spots. No wearing that on Monday to work! Anyway, I've been crying all day and the… Continue

Added by Karen on January 3, 2009 at 2:06pm — No Comments

So Proud

The other day I called Bradyn over to put her foam on her spots before bed. She looked at me and said " I will do it myself". She put the foam on her hands ( I know that its supposed to go either right on the spot or in the cap so it wont melt but shes five Im not going to push the issue) and puts the foam everywhere where she has had hair loss. I was so proud of the fact that here she is at 5 and is taking control of her treatment. :)

Added by Mandy ( Bradyn's Mom) on January 3, 2009 at 2:01pm — 3 Comments

Sometimes LOL is inappropriate

Like earlier when I posted a blog about my husband not being motivated to take control of his life and being skeptical that he's going to succeed and I 'LOLed' it off. Well I just published his second video on youtube (I never watch them first and he does one take no edit) It's worse that I thought, the man is practically giving up. How do I motivate that? How do I stay motivated myself at the same time?
ARGH

Added by Carmella on January 3, 2009 at 1:53am — 2 Comments

another spot

i found another spot today so i don't really want to write much - i feel very powerless that's basically it -i am angry and sad and i feel powerless- some part of me is trying to make this ok- some things outside of this are ok in my life- other things suck - just like this - but this hurts so much -

it just seems like no one understands - if i hear from one more person that at least i don't have cancer or didn't lose my arm or leg i think i am going to freak out-

Added by dollydreadful on January 2, 2009 at 11:57pm — 1 Comment

Twilite

Heyy i was just wondering if anybody has read twilite???? I just finished the series and I LOVED IT!!!! I am soo waiting for the movie!!! And for the fifth book.....i hope.....keep your fingers crossed:)

Added by Maygen on January 2, 2009 at 9:00pm — 13 Comments

Hopes for 2009

OK - I haven't been on AW for a while now, mainly for two reasons. The first is mainly due to the fact that I can't seem to come here without having some perv think my bald head is the greatest thing since sliced bread. Although it's great that someone thinks I'm drop dead gorgeous, they don't seem to get the idea that one day my hair may come back and they will no longer find me attractive. Besides, since when was love all about being physically attracted to someone, there's gotta be more than… Continue

Added by Carol on January 2, 2009 at 8:41pm — 5 Comments

Super Excitement!!

I know I know I haven't been around a lot lately ... I'm going to make an honest effort to try harder in 2009. I'm SO SO excited for this new year - I feel energized. Plus I'm ready to reveal my exciting stuff.... *drum roll*. I have convinced my husband to really dedicate to weight loss *claps*. In fact we've even started a youtube channel that will track our progress. I'm thrilled that he's agreed to this, because making a public announcement of your goals is proven to increase success rate.… Continue

Added by Carmella on January 2, 2009 at 4:11pm — No Comments

Hi

Hello, everybody

I'ld write here something regulary, when I've time.

I'ld try to talk english, but you know I'm not good in English as Dutch(what I talk)



I don't remember me the feeling of right hair, only on pictures I saw that I had beautiful hair

I remember wel, when I choose a wig in Brussels, with my parents, grandmother, an uncle and a aunnt.

It was funny and rared together. Funny, I was a little girl and found it like I was now go to shopping. and rared,… Continue

Added by Evelien on January 2, 2009 at 1:47pm — 3 Comments

A Madwoman

The last few nights I've been having vivid dreams in which my hair (slowly disappearing) takes some dramatic way of falling out. Each time it's different, but each time it's horrible. It has been bumming me out, so I decided to be prepared. I went to Ebay last night and bought (actually, bid on auctions in their last seconds) two short dark, brown wigs, not unlike my current hair cut. They were REALLY cheap ($20 each delivered to my doorstep). I really have no intention of wearing them, but I… Continue

Added by Nants the Rebellion Dog on January 2, 2009 at 1:15pm — No Comments

Wigs for strenuous exercise?

My life has been finally calm and I have been using the time to just relax. University is done until my exchange and I passed all of my classes. The other day I took a huge leap and cut off my 30cm long pony tail of hair. I'm saving it to see what wig color will match best. So right now I have a really funny haircut... as all my mom did was cut the pony tail off from the highest part of my head.



But I have a real dilemma... I play soccer competitively and I do not know how to cover… Continue

Added by Christine on January 2, 2009 at 12:39am — 3 Comments

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