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9 1/2 months

Where has the time gone? A quick check of the calendar revealed 9 ½ months has passed since the first telltale spot appeared on my head. A month later, I had shaved my head rather than fight with the every growing contingent of hairless areas.



9 ½ months, the same amount of time for a child to come forth into this world. Enough time for my oldest DD to graduate from high school and set off on her own for college…for my youngest daughter to transform from a giggling 8th grader to a… Continue

Added by Tony on January 15, 2009 at 7:13am — 1 Comment

My journey with AA - nearly three months in

It's been a while since I last wrote and a lot has happened really. Had a great Christmas, ate too much and laughed lots. I then spent two weeks camping in the sunny Hawkes Bay. During my two weeks away I had no Enar treatment, I'm not sure if it was helping slow down the hair loss or not but man did my hair loss have a major come back. Standing in a low pressure camp site shower covered in your own hair trying to rinse it off is a pretty depressing state of affairs and caused a few teary… Continue

Added by Karen on January 14, 2009 at 3:23pm — 1 Comment

solar keratosis

Hi,

I have had alopecia for over 40 years now (diagnosed at the age of 5) and looks like all those years without sunscreen, not really covering up has taken its toll. I have been recently diagnosed with AK (Actinic/solar kerotosis), essentially pre cancerous skin marks on my scalp. Fortunately the prognosis is good, but the treatmentn is a little bit scary depending upon what websites you visit. The treatment is to apply EFFUDEX (5-FLUORO URACIL). cream for several weeks. Essentially the… Continue

Added by FRAZ on January 14, 2009 at 3:04pm — 1 Comment

another 3 monthes

so i went back to my doctor to get another set of needles poked into my head its been three monthes since the last time. she says its growing in fine . though for me it feels like its taking forever. my mom still things i got if becuase i dont eat right or take vitamins. which is a bit irritating. so i like to walk arounf the house with my bald spot all out like friar tuck style, and irritate her back. ( shes very emotional about my hair 0_o)



after getting the needles the first time… Continue

Added by Amanda on January 14, 2009 at 12:03pm — No Comments

Support is overwhelming here!

Well, I have been on this site for about 2 days now - and I must say...the support is very impressive!

The past two days have been a little better, mentally. You know, all the sites say that Alopecia does not cause any medical issues, except emotional or mental, and man...they weren't kidding eh?

I guess what they say is true..."The things that do not kill us, will only make us stronger"...How so very true.

I had struggles, many struggles before the AA started - which could be a… Continue

Added by Christie on January 14, 2009 at 8:20am — 2 Comments

Virtuesse Hair System

I was wondering if anyone has heard of or has a Virtuesse Hair System. It is almost like a prosthesis in that it does not come off, but every three months you go and get new hair. I went and was fitted for one today, just have to let them know what I decide. I still have some hair so it would have to be shaved. I'm really nervous about the decision, just don't really know what to do. What if I hate it or something.
Hope someone has some input to this. Thanks.

Added by Jamie on January 13, 2009 at 8:41pm — 9 Comments

Alopecia Book Review

I've never read any alopecia specific books before, that is until I got my copy of "Metamorphosis" by Julia Crittendon. Of course my portion of the book was excellent LOL But seriously, it was one of those things I could have writen a hundred times over and never been completely satisfied with. It was wonderful to hear about everyone's battle and recovery, if you will, over alopecia. It is a very inspiring and motivational book and I encourage anyone with alopecia to give it a… Continue

Added by Carol on January 13, 2009 at 7:22pm — No Comments

maybe someone can help!!

Thank you everyone for such positive welcomes:) its nice to know there is so much support.
I have not lost all of my hair yet, I have AA, but my eyebrows and eyelashes are falling out now too. I am tired of the shots and am looking for a chinese remedy like tea to help it. I have heard a few stories of Alopeicia fully recovered. If anyone can help please let me know what has worked for you.
thanks
z

Added by zenaida telfair on January 13, 2009 at 6:11pm — No Comments

What did you get for Christmas?????

Happy New Year to you all!!!!



I hope that everyone had a great festive break and that Santa brought you all lots of goodies. As for me, I got lots of goodies including a full on attack of Alopecia. As you may know from my recent posts, near to the end of November I had developed a patch on my left hand side just above my ear and on the right hand side my hair line was rising above the ear but I had left it for a while to see how things developed.



I should have shaved my… Continue

Added by Ray on January 13, 2009 at 10:30am — No Comments

wig to give away to a loving home

i'm giving away my second wig.

i've had it since i was 16 or 17..

its beautiful, it was to be longer but i got it cut and styled by a wig maker.

heres a pic of it today



it is synthetic, red/brown, i dont know the brand as back then i didnt ask i just wore haha



i am willing to send it anywhere in the world, just comment and tell me why you want it.



heres the colour close up… Continue

Added by Alison on January 13, 2009 at 6:29am — No Comments

My New Spring Wig

What do you think?
Lol

Jeff

Added by JeffreySF on January 12, 2009 at 10:45pm — 13 Comments

Wig Arrived!



My first wig came today. It is Sassy by Revlon and the color is Autumn Glow. I followed the recommendations from my friends here at Alopecia World and they did my right! It is a mono cap, synthetic, and it was well under $200 from Wilshire Wigs. I must admit it's redder than it looked on my monitor, but I absolutely ADORE it. It fits perfectly and needs no thinning or trim. In fact, it is almost identical to the cut I have right now, only the… Continue

Added by Nants the Rebellion Dog on January 12, 2009 at 8:11pm — 5 Comments

Joseph Paris Salon in NYC????

Has anyone every heard of Joseph Paris or Hair rx? I am not sure how I found this website, but I sent away for literature and the owner Mr. Joseph Paris called me himself. He has two websites. www.josephparis.com and www.yourhairx.com. The pictures of the pieces that he creates are amazing. I have never seen such natural looking hair lines ever. I would love any feedback that you can provide if anyone knows about him and his pieces.



Thanks in advance for your… Continue

Added by RENEE on January 12, 2009 at 7:33pm — 2 Comments

Here goes...

So...December 10th is when it started...

It's now January 12th, and I have finally been given the diagnoses of having AA. The patch started out about the size of a dime...

Now it's about 2.5 inches around, at the top of my head. I haven't noticed any other spots.

I am now using the steriod topical cream. Has anyone had success with this?

I have considered shaving my head - because I'm really tired of obessing over how many hairs will fall out at one time.

I'm feeling… Continue

Added by Christie on January 12, 2009 at 2:21pm — 7 Comments

...

So I am always so busy with work and etc that I never have time to come on here. I'm so glad I did, since I came on here my stress levels about my alopecia have gone down. Right now I have a cream that I rubbing on the spot each day and it seems to be making the hair grow back but I am still being prepared for another one coming or it coming back. It's a scary feeling when it is so unpredictable. I hope everyone is having a great week! Thanks for all the… Continue

Added by Karissa on January 12, 2009 at 11:44am — No Comments

Policy update: Advertising on Alopecia World

Effective immediately, all businesses must receive written authorization from Alopecia World before posting or uploading any advertisement or promotional material, including marketing videos and products photos, to Alopecia World.

In addition, businesses may not use any feature of Alopecia World to spam its members.

This policy does not prohibit members of Alopecia World from continuing to mention, discuss, recommend, or debate commercial products and services in the larger…

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Added by Alopecia World on January 12, 2009 at 11:30am — No Comments

Alopecia Universalis - Do you have any other disease or condition?

Hi I am new to this - I recently in Oct was diagnosed with AU (self-diagnosed as all my docs were useless) I had AA when I was about 10 and had cortisone shots back then and had full hair growth and never any issues until now at 39!!! I never thought it would come back and did not know any better and certainly did not know it could be AU - but I am dealing with it pretty good, the hardest part is the eyebrows and eyelashes.... but what I am trying to find out from anybody with the same thing if… Continue

Added by Diana on January 11, 2009 at 7:38pm — 28 Comments

Things Alopecians Like #10

Frizz-be-gone:
"Freedom from "frizz" drama! No matter rain, wind, humidity, etc..."

Thanks Sandy!

Added by Jill on January 11, 2009 at 3:00pm — No Comments

Feeling scared

I think i have Alopecia like a 95% but i still haven't talked to a gp or a doctor about this and i'm trying to for these past weeks, growing up i've been very scared of what people think of me but now i've been having nervous breakdowns plus my family isn't sympathizing my brother laughs, my mum says nothing and my dad says previous things in his life which are sorta like this but is about easy things which dont change his physical apearence. I have gone through another patch before and my… Continue

Added by Nathan on January 11, 2009 at 9:03am — 4 Comments

1/10/09 where i'm at...itchy

I feel so messed up today. Thursday afternoon I went to see my dermatologist and she found 2 more small bald patches. We agreed to treat them with squaric acid and injections since so far, I've had regrowth every time. But, it's the side affects that are bothering me at the moment. The spots on my head were really itchy yesterday and as long as I don't touch them and get the cooling gel on quick, then everything there is ok. But it's my neck that has a rash on the side now. I haven't… Continue

Added by Georgie on January 11, 2009 at 12:00am — 1 Comment

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