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High iron levels, positive ANA, elevated prolactin levels?? Anybody?

Hello all. I have been checking in on this site for quite a while now and although I really admire the "Bald is Beautiful" idea,but I REALLY want my hair back! I am soooo NOT beautiful bald! I just dont have the face or confidence for it. Ive been trying to find out about autoimmune disorders and why they make your hair fall out but no one seems to know much about it at all. For example thyroid disease can cause alopecia........ so if your thyroid levels are corrected then shouldnt your hair… Continue

Added by GINA on January 22, 2009 at 1:21am — 5 Comments

Have you ever thought?

J.H.C.!!! I'm never going to make it. I'm incapable of securing sanity for anyone at this point. I'm angry and disappointed. I refuse to believe this is real. My family would rather I die or be a goddess - stupid baldness not giving me super powers.

I wish I could be saved - not by a religion but a prince -saved.

Am I the only one suffering in this moment the you will never do any better syndrome?

XOXO

...







P.S. I wish I never had children to spare them… Continue

Added by Carmella on January 22, 2009 at 12:00am — 4 Comments

wow

everyone is so friendly. hi to everyone.
i joined a.w. so i could learn more about alopecia, and how i may be able to help-through my work as a hairdresser. i was an assistant to a stylist who had a client with alopecia. she was really cool. i admired her attitude-nearly always sunny.

Added by tiffany wermund on January 21, 2009 at 10:13pm — 2 Comments

Five patches and counting...

So...I'm ordering my wig tonight. I found 3 more patches starting - which gives me a total of 5...that I know of.

Does anyone else experience a pain sensation at the site of a patch? My big spot hurts to touch it. And it seems itchy a lot.

Has anyone ordered from wigs.com? I found a wig on there that was very close to my normal hair style - and the price seems to be average.

I hope somebody can help me with this - as I plan to order within the next hour...



I can't wait… Continue

Added by Christie on January 21, 2009 at 5:54pm — 3 Comments

hmmmm

so im kinda new at this...

i was just disgnosed with alopecia arreta(sp?) last month. i'm about to be twenty on the 3rd.

haha, one day (about a month or so ago)i woke up and noticed a big chunk of my hair missing on the right side of my head..

"hmmm, what the hell?" i thought.

i didn't really care much. i mean yeah it was kinda big but nothing a sweet hair-part couldn't handle, you know?

so whatever... the only thing that REALLY bugged me was what caused it.

kind… Continue

Added by tat on January 21, 2009 at 5:12pm — 7 Comments

Thankfulness Prayer

>

> Please take a moment to relax your mind and humble your heart to focus

> on Christ. Allow God to be the only person on your mind while you read

> this prayer. If we can take the time to read long jokes, stories, etc,

> we should give the same respect to this prayer. Friends, who pray

> together, stay together.

> If you pray this prayer, change the number in the subject box before

> forwarding the message so people can SEE how many… Continue

Added by Lori Black on January 21, 2009 at 12:24pm — 1 Comment

Freedom Wig! - need advice

This is my first blog, don't really know how to write it!



Basically, I'm getting a Freedom wig. My first EVER wig, after having AT for 8 years! I've always either worn a bandana or for the last 4 years just gone with nothing at all on my head. But I've finally decided the time has come to get a wig, for various reasons. I've had my fitcap appointment and the cap fitted wonderfully, I love the colour of the hair sample and now I am patiently waiting for my new hair to arrive! Should… Continue

Added by Hayley Burton on January 21, 2009 at 11:01am — 1 Comment

Should I Shave?

I have been pondering shaving my head for quite some time. I have chronic telogen effluvium and have been shedding excessively for the past year. At first, I believed the dermatologist, the OB and the endocrinologist when they said my hair would stop shedding. They said it was from the 'hormonal shock' to my system from stopping birth control pills 3 months before this started. It sounded good and I found research to support them, so I waited. However, my hair didn't stop shedding after the… Continue

Added by Laurie on January 21, 2009 at 11:00am — 4 Comments

Free at Last!



I shaved my head because I was tired of looking at one hair falling out at a tim. I was tired of assessing how big the pateches were or were not getting. I was tired of worrying about if my bald spots were showing. Look out, World! I have a bald spot showing! It's called my scalp. LOL. It took longer than I thought (a friend and my husband both helped) and my hair held on like a pit bull. But we won at last. I feel so much better. I have a wig I… Continue

Added by Nants the Rebellion Dog on January 20, 2009 at 7:58pm — 10 Comments

Wigs, Wigs, and more Wigs! (Questions)

Hi all!

Since I have female pattern baldness, I might get to a stage where my natural hair is no longer attractive and I will want to wear a wig. If and when it gets to that point, I would ideally like to shave my head first, against my mom's tears and grandma's begging and pleading. (It royally sucks that they're so unsupportive of me getting this crap out of my life. At least grandma supports the wigs, though she still tells me to promise I wouldn't do the big… Continue

Added by Alexandra on January 20, 2009 at 5:00pm — 7 Comments

No Coverage?? This seems silly!

So, after i became excited about deciding to shave my head - I immediately started to inquire about insurance coverage...only to become frustrated with it!!

My employment benefits will not cover anything. I called up social assistance to see if they help out...they don't. They gave me a number for "assistive" something ( I can't remember it now)...they don't cover wigs at all. I have been looking all over for some sort of relief, but can't find anything.

Canada must have something for… Continue

Added by Christie on January 20, 2009 at 2:49pm — 3 Comments

Stage Makeup

So I'm taking this online course about stage makeup. I did my first assigned look yesterday and I wanted to post the picture here, but I can find the danged files. (Does this have something to do with the pink lemonade I spilled in my laptop two nights ago? - Probably). At any rate before they disappeared I made a slide show and it's at my youtube account if anyone wants to check them out.

Also I don't know if I mentioned this but I am renting a house that is for sale. It sucks because the… Continue

Added by Carmella on January 20, 2009 at 2:29pm — No Comments

how to take care of a wig

Well, I just got my first synthetic wig-- does anyone have any tips for keeping it looking like new? How often do you wash it, how to keep it from frizzing, etc.
Thanks,
kenra

Added by ken on January 19, 2009 at 6:37pm — 3 Comments

New for the New year?

Well not exactly. I'm still lazy, but maybe just a little less. I haven't been exercising daily as I'd planned and we failed at 30 days of no spending, but we're going to give that another try. I quit my job, for fear of being sued by a psychopath (no literally a pyschopath who is sue happy) I know that she'd lose, but I don't want to explain at every interview why I went to court. I've got to get another job. I'm very behind on my school work this term. I apologize for not being around as… Continue

Added by Carmella on January 19, 2009 at 1:19pm — No Comments

Its progressed

So, 3 nice new noticable patchs are now gone on my face, the original patch which was treated with corti shots has fallen back out. I havent noticed any new success from using Zinc, Biotin, supplements for the past 2 months now. A connection I can make with my alopecia is it seems to occur when times of extreme emtional/stress occur. When that happens, the alopecia attacks and it seems to love the facial hair alot. So now Im shaving my face and my head.....yikes.

Added by Eddie N. Padilla on January 19, 2009 at 2:46am — 1 Comment

The One Flaw In Women

The One Flaw In Women



By the time the Lord made woman,

He was into his sixth day of working overtime.

An angel appeared and said,

"Why are you spending so much time on this one?"

And the Lord answered, "Have you seen my spec sheet on her?

She has to be completely washable, but not plastic,

have over 200 movable parts, all replaceable

and able to run on diet coke and leftovers,

have a lap that can hold four children at one time,

have a kiss… Continue

Added by Lori Black on January 17, 2009 at 11:24am — 1 Comment

QUIRKS AND ALL

Quirks And All

16 Jan 2009



"We love because he first loved us." I John 4:19 (NIV)



We have lived in our house for just a few months, and the quirks are starting to show. One of the burners on the stove doesn't work on the low setting. A piece of tile on the counter top is not glued in all the way. Several of the outlets in the bonus room were wired wrong, which means sometimes the electricity in that room works, and sometimes it doesn't. And sometimes, if someone turns… Continue

Added by Lori Black on January 16, 2009 at 11:18am — No Comments

Getting my hair back

One good thing about alopecia totalis, you get really excited when your hair is growing back, and mine is. The fuzz that I used to have has gotten longer and i have started growing hair on the sides of my head, the place where I first started losing my hair. Everything at school is getting better for me now that I think by the time I go into 8th grade I'll have all of my hair back and at a normal length (I'm in sixth grade). So I'm very happy. YAAAAAA!!!!

Added by Shannon M on January 15, 2009 at 7:10pm — 4 Comments

A life of tourture...

Hey, im Kevin and i just wanted to share my story of alopecia, dont want to waste anyones time so...yea just doing this as a release i cant do anything with this on my mind and i doubt this is gunna get it off but i have homework to do and i cant get it done sitting here crying so... yea.



Alright im 16 bout to get a second go around with the beast formaly known as AT alopecia totalis.....weeeee.

So i got my first bald spot in the 6th grade ya know its watever who cares im an… Continue

Added by Kevin on January 15, 2009 at 3:59pm — 8 Comments

Going, going, gone!!!

Well...It's official, I have decided to shave my head. This decision was made after I noticed my second patch starting last night.

I know that some people would suggest I keep my hair and wait - but I have allowed my hair loss to consume me and my emotions. I still have yet to fully come to terms with this challenge - But honestly, do most people slowly peel off a bandaid that's sitting snuggly on your skin, or do you quickly rip it off? I prefer not to let this AA control me. I don't want… Continue

Added by Christie on January 15, 2009 at 7:30am — 3 Comments

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