Added by rj, Co-founder on March 11, 2008 at 11:00pm —
So I figured I'd write a quick blog detailing my history with Alopecia since I didn't feel like writing all that in the "about me" section.
Alopecia runs in my family. My younger sister developed AA when she was 4, had a couple bald spots and then it all grew back. She's now 23 and hasn't lost any hair since. I first lost my hair at age 12 right before I began 7th grade and in a matter of 6 months went from AA to AU. I was completely bald till somewhere towards the end of 9th grade. I was… Continue
Added by Alexandra on March 11, 2008 at 10:52pm —
I'm a walking contradiction of sorts. When I was growing up, I was very comfortable with my alopecia, and got to the point that I would voluntarily shave my hair because I liked the weightlessness and comfort of not having to do my hair every day. However, I have noticed that especially in the last 3 years that I range more from occasional bouts of self-pity to just being all out enraged about the fact that I am 30 years old and I am still dealing with alopecia. Every time I start a new job, or… Continue
Added by kastababy on March 11, 2008 at 10:22pm —
So, we received the finally clips and wig tape for my daughter's wig. Now, we are just waiting until tomorrow to get her wig styled. She is so excited, and so am I. It took a lot to decide on the wig route, and now that it's here we are barely able to sit still. I think this route is going to be great, because regardless of what happens, she can feel confident in her wig, until she is ready to take it off. I hope that that day comes where she is not intimidated by others, or her self. I think… Continue
Added by Miranda on March 11, 2008 at 11:57am —
I got the idea of this blog from RJ -- he has a really cool playlist on his page, if anyone likes to check it out. I love music. There are some really great songs out there that just move my spirit and send chills down my spine with the emotion and power that they make me feel. Like RJ, I love old school slow jams, but I am a REAL eclectic type person, and my idea of some real good slow jams includes some awesome tracks by the Eagles, Patsy Cline, Pink Floyd, the Police, Madonna, you name it.… Continue
Added by kastababy on March 10, 2008 at 10:26pm —
When I think of my fiancée, Cheryl Carvery, I don’t think of alopecia areata.
I think of a friend that sticks closer than any sibling; a compassionate person whose heart and life are wide open to other alopecians and who volunteers at a veterans’ hospital; a fun and inquisitive person who loves to travel and workout; a phenomenal woman who showers me with such sweet affection that I call it “addictive love.”
Added by rj, Co-founder on March 10, 2008 at 8:00pm —
It's March rigth now, and my twins are going to begin Knidergarten in August. I'm a stay at home mom, so they don't have a class or close peers right now, and I am completely nervous about Della beginning kindergarten. I don't want her to be teased. I have thought hard a trough about a wig, and finally we have decided to get her one, for the time being anyways. We do the styling on Thursday, and she is really excited, I am just not sure if I can handle it. All of the care and maintenance of a… Continue
Added by Miranda on March 10, 2008 at 4:21pm —
I had started writing a long, in depth exploration of several issues I have been thinking about since I joined Alopecia World over the weekend. My plan was to post it here, and for it to be insightful and interesting. It was going to include a social and psychological commentary on identity, beauty, and acceptance (or the struggle for it). I have the blog entry saved, and hope to rework it and post it at some point. I think it has potential :). But...it was simply taking too long to get out on… Continue
Added by Emily on March 10, 2008 at 11:27am —
5 years later, I can still remember every moment of the day I had my head shaved. From walking into the salon... watching it happen, getting that first look on the street and finally going home to my wife.
It was the start of my acceptance and the end of the old me. It was a great day and a horrible day.
The people that were there for me will never be forgotten.
Added by Dave Mitchell on March 10, 2008 at 1:59am —
Ok so I was having a great day at work today till this stupid old man ruined it for like 2 minutes. I was working at a Festival and he walked up wants to know how to win our prizes. As I looked up and answered him hw step back and say very loud so all my co worker couls here. Oh i thought you were and man. You shouldn't cut your hair like that people might think you are a lesbian. And then still wanted me to give him free stuff!!!!!! Can you believe that???? As soon as he left all my cowrkers… Continue
Added by Jennifer on March 10, 2008 at 1:58am —
well i head out for work tommarow ill be there for 2 weeks i usually cant get online much at work but ill try as much as i can
Added by brian kirchman on March 10, 2008 at 12:41am —
Tonight, while putting Nnea to sleep, she asked me to stay and cuddle for a minute 'on her pillow'. I thought I'd share our conversation...
"Mom, can you stay a yiddle bit?"
"No, Sweetie. You need to go to sleep now."
"Pease? Just one cuddle on my pillow???" (??? denotes this little high pitched thing she does at the end of her questions)
"Alright. Just for a minute..."
"Sanks, Mom." Nnea then starts to caress my face and cheeks. She says… Continue
Added by Janna on March 8, 2008 at 10:00pm —
ok wow so im pretty sure its not a new hair i think its one that just refuses to go away.......cant mention where but its in a place easyly over looked......that dude is a soldier....hell yea you cant take him out AA what now. hes holding strong.......thats my boy.......im so proud.....(tear)
Added by brian kirchman on March 8, 2008 at 9:52pm —
Wow!!! What a great site! And how cool are social network sites! I think Alopecia World is using the same system that we just moved my company to www.CoCreatingOurReality.com. If any of you are following along with the New Earth book with Oprah and Eckhart Tolle you'll enjoy our site...come check it out when you get a chance!
But back to Alopecia World...this is awesome! What a great resource and place for people to meet, ask questions and feel a sense of community! I *LOVE* the… Continue
Added by Laura Duksta on March 8, 2008 at 8:15pm —
Well, I am a writer of sorts, if you've been reading and browsing along this site. I have jumped into this site feet first and I feel more at home sharing things here regarding my hair loss than I have anywhere ever.
Normally I spend my weekends off work watching TV or reading books or cleaning house, but so far I have spent my ENTIRE Saturday on this site browsing, commenting, and welcoming everyone that I have seen! I keep a regular blog on blogger and MySpace, with MySpace… Continue
Added by kastababy on March 8, 2008 at 5:51pm —
I went on vacation. I was lucky. My Aunt put together a family reunion cruise. A cruise to Bermuda. A 5-day cruise. I roomed with my twin sister, which is an extra bonus - sister time together.
This was my first cruise. We boarded and went through customs, and met up in the dining room for lunch. It was served buffet style. I've never seen so much food in my life. I was sitting at the table as all of the family met up.
A table next to us, a large family with about 4… Continue
Added by Lili Añel (aka Eulalia) on November 30, 1999 at 12:00pm —
I try real hard to share the adversity and understanding I have, for those who share the same condition as me...Alopecia! Continue
I am proud to walk with my beautiful sleek look.
My son loves it!
HOWEVER...YES...THERE ARE THOSE WHO HAVE THEIR OPINIONS, JUDGEMENTS, AND PERCEPTIONS ON HOW WE MUST ACT AND FEEL.
I endeavor to help bring a compassionate understanding, of the adversity we all go through...yet the separation of different emotions always have to be evaluated.
Added by MiNAH on November 30, 1999 at 12:00pm —