I have my Dr appt and hubby says steroid cream may help too, and I said then I'm cutting off all of my hair (so I can see all of the spots. He proceeds to say I will look "stupid." Well he's a dork and there's no way I can get lotion through my hair now. Maybe a really short cut and slowly go shorter. He does need a lesson in empathy though.

I'm wondering... how long does it take to go from Areata to Universalis?
The bald spots on my head keep growing and now I've discovered small ones under my armpits and on my eyebrows. It also feels like my eyelashes are thinning out.
Any experiences/stories you want to share? Isn't it a bit unusual to skip the Totalis?

Greetz from Germany!

Ulli

Two years ago, March, 2011 to be exact, I incurred my first bald spot. 5 months later I was completely bald. I had never heard of Alopecia…now Alopecia was controlling my emotions, actions and my entire life. I did not want to venture out in public with my condition and taking pictures was a no-no. And when I did leave my home, I did so in complete fear of people staring at me and whispering under their breath about me. I tried to smile but I didn’t mean it… I was too heartbroken. I was…

Last Saturday (August 3) was International Alopecia Day. A day created a few years ago to bring more awareness to the world and also to bring a supportive and unifying voice to all those affected by alopecia.

This year I decided to share my voice to this cause by spending the day at a local botanical garden. Enjoying a beautiful summer day and surprisingly bug free. For International Alopecia Day, a day of feeling empowered and confident I felt none of it. In the nearly 3 years since…

I am so beyond sitting back and watching my life go by. I am so beyond not achieving my goals and not living my dreams. It is time to make a change, time to give birth to a difference. A different way of living. Living a more healthy life, a balanced life. We all have challenges that we feel are boulders in our path but these challenges are opportunities to build strength. It is time to pick up the boulder, walk around the boulder or climb over the boulder. It is time to make a difference in…

Shed shed shed!! Every time I move my head I rain hair. It's grossing me out. I had to switch pillows last night because my pillow case got too hairy (hey it was 3am and wasn't going to look for another pillow case...)

4 days until I see the Dr.... This is so irritating both figuratively and literally.

HI there.I am a 26 year old and have been losing massive chunks of hair since the last six months.I feel so terrible about it and am having low self esteem issues.I also have this constant fear of my hubby not fining me attractive enough for him.It just consumes all my thoughts with negativity,leaving me grumpy ,moody and pissed all the time.

I just hate going out,am always worried about my scalp showing(through my carefully maneuvered hairdos)and just hate having my pictures taken.I…

International Alopecia Day ® is – Saturday, August 3, 2013! Be a part of this year’s YouTube video slide show of International Alopecia Day around the world!

International Alopecia Day began several years ago. My idea was for there to be a day when people with Alopecia Areata could celebrate who we are, and perhaps try going out in public bald for the first time in the company of others with Alopecia. The more cities and countries we have participating each year, the more IAD will…

How frequently do you take shower with your wig on?

I also don't know where should i post this, on forum or in my blog, so i post in both places.

Our local night news just featured Maddie Woytovich (you may know her from the Children's Alopecia Project), in a very positive and inspiring piece. They also mentioned the crowdsourcing effort that is going on in getting a children's book, inspired by her experience with alopecia [universalis], printed. If it's okay I'm going to put the link that that they mentioned in the piece here, so you can check out the book yourself.

For those of you who haven't seen Maddie talk about her…