I was camping one day in 1991 when a friend asked, “Why do you shave the back of your head and around your ears?”



I had no idea what my friend was talking about. So I found a mirror, looked closely at my head of long, thick hair, and was shocked to discover that large bald spots were developing on the sides and in the back of my head.



Confused and afraid, I consulted a doctor who told me that I was experiencing patchy hair loss (alopecia areata) due to…

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Yesterday marked 6 months since we started Alopecia World and although we had a vision for it, I never knew it would be SO amazing.



I look at the photos, videos, advice giving and it is unbelievable how much all of you have inputted and shared your lives with Alopecia World.



I watch adults showing their spots or lack of eyebrows, all to which the outside world they may hide. I watch women happily upload photos of them with a new wig, eyebrow tattoos or post their first… Continue

First, I wanted to reiterate how we closed the original blog.



“Some people will join Alopecia World for all the wrong reasons and attempt to engage in inappropriate behavior. We take such misbehavior very seriously and strongly react to it whenever it is brought to our attention. Thus, we thank all the upstanding members of Alopecia World for helping us monitor our beloved community and…

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My man (rj) has an article published in a new book entitle "Our Black Fathers - Brave, Bold & Beautiful". You can find a copy of the full article here.

This is not the first time he has been published, but I think this particular article is close to his heart because it concerns the rebuilding of his relationships with his 3 daughters.



More than me…

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With alopecia I still believe that the struggle is internal and the only way to rise above it is to overcome it internally.



At one time or another in everybody lives we are going to meet up with a situation that we can not control. At that point we have 2 choices, to either keep fighting a fight that we can not ultimately win or we can choose to surrender.



Most people think of surrender as a negative, a weakness or giving up. But I see surrender as learning to…

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To me focusing our energies on getting to a place of self-acceptance is where the real cure is. I really don't want my self-confidence to be attached to my hair, my weight, my skin color... I don't want to go through my life with the false idea that only when all circumstances are totally lined up in my favor can I feel confident. Alopecia is probably only one of the curve balls that will be thrown at me in my lifetime.



We now have the awesome opportunity to really find… Continue

Having a relationship with alopecia is no different from having relationship with hair.



We find someone who accepts our lack of hair, but everything else remains. We still have to battle through the process of merging 2 personalities, and me and rj are no different.



We have our good days, our bad days and the days that our relationship is just a struggle. It's all part of the package of loving and growing with someone.



I am not perfect and neither is… Continue