All Blog Posts Tagged 'Alopecia' (97)

BBC documentary about adults living with alopecia

Following the success of the recent BBC Documentary My Life Without hair the BBC have contacted BeBold with an interest in producing a full length documentary about adults living with alopecia, a target audience 18-30.

In order to get this commissioned we are currently looking for about three individuals in the above age range who would like to take part.

For this to work we are looking for individuals with a really interesting story to tell. This will be a fantastic chance for…

Continue

Added by The Be Bold Team on March 30, 2012 at 7:00am — 11 Comments

Nominate your Hairy Hero!

Is there someone in your life that has loved you and accepted you even though you were bald from Alopecia? If so, nominate that person as a Women Behaving Baldly Hairy Hero! Visit us here to submit your nomination.

Added by Laura Hudson on March 20, 2012 at 9:00pm — No Comments

No title because I couldn't think of one.

I just want to get my feelings out...I see people on this site especially parents asking what to do, and stuff...I don't know if I'd ever give good advice about it because we're all different, different strokes for different folks...

But I just wanted to say my peace...I've been full on bald since I was four years old. I was never normal well...I used to have a full head of curly black hair that I would never let anyone but my dad touch. I don't remember much of my years WITH hair as…

Continue

Added by Storm_Uchiha on March 13, 2012 at 3:33am — 3 Comments

Wigin'

Yesterday at work I had to stay late to help unpack some new mannequins that we had received. So, at the store I work at our mannequins wear wigs.. and I thought since the store was closed it was the perfect opportunity to try one on! Hahahaha, it was just for fun, I would never actually wear a wig. But me and my co-workers sure got a kick out of it. :)

PS: My eyelashes are growing back!…

Continue

Added by Erika Vincent on February 18, 2012 at 11:49pm — 6 Comments

Confused- Toppik or a Wig?

Hi Guys,

Hope you are all well.

I am really really confused. I have been diagnosed with Lichen Planopilaris which results in scarring alopecia. In the past month I’ve lost a lot of hair from my crown area and have been wearing my hair back….sort of like a comb over for a girl.

Before the alopecia got bad I always wore my hair open, I’m scared people will soon start asking the reason as to why I wear my hair up especially at family occasions or nights out. My parents are…

Continue

Added by London girl on February 10, 2012 at 5:34pm — 16 Comments

Is this regrowth?

Many of you have seen regrowth, this is my son's head (close up). He has these small hair on his scalp now, which are much thinner but still black in color. He never had the white peach fuzz that I expected. I am not sure if this is something positive? Please help me decide what to make of it.

1/5/2012

1/9/2012…

Continue

Added by Gaurav Batra on January 5, 2012 at 11:00pm — 11 Comments

Radon testing?

My 16 month old has been diagnosed with Alopecia, so I am talking to everyone who knows anything about this problem. Someone mentioned if this could be related to Radon Gas, and If I ever have tested my house for Radon. So I went first thing today morning and got a Radon Test Kit which takes about 2 weeks to get results, and I am growing impatient to figure out if it could be related. Has anyone who suffering from Alopecia looked into Radon gas in their house or work place?

Added by Gaurav Batra on December 18, 2011 at 1:00pm — 4 Comments

Today is a better day.....I think???

There is so much support out there for Alopecia. I had no idea and I just want to scream it from my house-top. I felt so lost (still do for the most part) but I feel there is hope. Life will go on whether my hair chooses to join in or not. I think I may even be able to go back to church and not fear for the person sitting behind me to look at the back of my balding head. (Of course I will have my "fabulous, perfect hair on).....I think I can do this....maybe :/

Added by Dana on November 11, 2011 at 1:02pm — No Comments

Losing my eyebrows

I lost most of my hair end of February beginning of March of this year, 2011. In the past month I have begun to lose my eyebrows. I am losing them at break-neck speed. Its incredible. When I go out,when I have a gig (I'm a musician) I have to beef them up, pencil/draw in.



I'm finding it incredible how fast they're going. Anyone out there have any info on if they grow back? I didn't think I'd lose them because they stayed intact. All part of the disease. I've learned to pencil in well… Continue

Added by Lili Añel (aka Eulalia) on September 26, 2011 at 2:00pm — 2 Comments

My experiences with Alopecia

I'm a 24 yr old Indian guy with AA. It's been 2.5 months since I discovered and frankly it's been hell.

I'm a part-time writer (besides being a software engineer in Bangalore) and writing about my experience with alopecia has been almost therapeutic.

Here's my blog.. Comments and feedback are very much welcome.. :)

http://alopecia-anonymous.blogspot.com/

Added by Nachiketa Sanyal on September 22, 2011 at 8:06am — 5 Comments

WCAU NBC 10! Show - Speaking About Alopecia Awareness and Upcoming Event!

Here is the video to the interview I did on the NBC 10! Show with the head of Children's Alopecia Project, Jeff Woytovich and his daughter Madison. I commend NBC 10! for having us on and helping me spread awareness by highlighting the upcoming Musicians for Children's Alopecia Project Benefit Concert.

Click HERE to see the video!

Thank you!

Lili

Added by Lili Añel (aka Eulalia) on September 9, 2011 at 10:30pm — 4 Comments

Spreading Awareness One Step At A Time

I'm thrilled that the courier Post a New Jersey newspaper has run a feature in their health/wellness section in today's newspaper about Alopecia.



I contacted them in the hopes they'd do a piece talking about alopecia and the Musician's Alopecia Project Benefit I organized raising funds for the Children's Alopecia Project taking place September 16, 2011 at World Cafe Live! in Philadelphia.



I'm very excited they did such a great job on the piece. As well, the Honorable Mayor… Continue

Added by Lili Añel (aka Eulalia) on September 5, 2011 at 12:30pm — No Comments

September is Alopecia Awareness Month!

What special activities do you have planned for Alopecia Awareness Month? Please be sure to list them on Alopecia World's events calendar. We also welcome you to make suggestions and discuss your plans in the comments section below.

Wishing you great joy and good success,

Cheryl Carvery-Jones & rj jones
Founders, Alopecia World

Added by Cheryl, Co-founder on September 1, 2011 at 12:00pm — 19 Comments

Longing for a cure - Defeated by alopecia

It is amazing how many emails and messages I get about other organizations dealing with alopecia. My canned response has always been, "We are stronger together then we are apart." I mean this, I am not just saying it to be politically correct. When I founded CAP I did so because I wanted more for my daughter then what was out there. The oldest and largest is NAAF and was the only thing I could fine in 2003. They had the annual conference but that was all until they incorporated Charlie's… Continue

Added by Children's Alopecia Project on July 26, 2011 at 6:00pm — 3 Comments

My new hair, and Clinic Del Mondo

This photo is of me wearing my "new hair". An awesome piece of new technology from an awesome man name Greg T Kirk who has teamed up with Clinic Del Mondo on the Gold Coast (QLD) to bring it to Australia. Essentially it's a thin membrane of some plastic substance, threaded with human hair, and glued to the scalp - lasting some 4-6 weeks. While Greg has worked with the technology for a few years in the States, it is completely new here.…



Continue

Added by Dominique on January 31, 2011 at 8:30am — 4 Comments

Alopecia Areata Registry

I wanted to ask everyone to please help find a cure for our disease.
Please fill out a questionaire and donate a blood sample to www.naaf.org/site/PageServer?pagename=research_registry
This is our hope for a cure.
Happy New Year!!!
Jeffrey

Added by JeffreySF on December 29, 2010 at 1:47am — 4 Comments

The 3rd Annual 12 Days of Alopecia

Hi Friends,

I'm a little late but maybe we can make this work. Share your line and have some fun!

 

On the 1st day of Alopecia Areata I recieved my first little bald spot on me.

What happened on the 2nd day?

 

Added by JeffreySF on December 23, 2010 at 1:11am — 16 Comments

Being bald is not a reason not to date

So the guy I told that I have alopecia. 2 ½ weeks ago I called our relationship off for good reasons. I found out that because a guy accepts you with alopecia doesn’t mean it will be a match made in heaven, it only made me realize that a lot of other guys will be just accepting.



First he never called/text after working hours. And he was always too busy. Too busy to call/text/be together, sounds like maybe a wife @home. I said what am I doing dating you? So after trying to explain… Continue

Added by Sam Sam on September 22, 2010 at 12:00pm — 20 Comments

Hair!

So lately my hair has been growing back as you may have read in one of my previous blogs, and it's been getting better and better. I hadn't really paid so much attention to my hair when it was growing back at first (not so much that I was obsessed with growing it back), but lately I have been paying more attention to it because now I can visibly keep track on the regrowth, and that's fun!

I have a hair-line again at the front of my head again, and I've produced myself a milimetered mohawk.… Continue

Added by Lionel on August 29, 2010 at 11:35am — 1 Comment

NAAF research volunteer

So I registered for the NAAF reseach because I'm an identical twin and they called me today and are sending me a package in the mail to get my blood drawn and send back to them. My question is has anybody done this and where can I go to get the blood draw done for free because my insurance will not cover it, and all of the NAAF outposts are states away.

Added by Jeannie Terrel on August 24, 2010 at 5:36pm — 1 Comment

Monthly Archives

2024

2023

2022

2021

2020

2019

2018

2017

2016

2015

2014

2013

2012

2011

2010

2009

2008

1999

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service