I wake up every day to light kisses on my cheeks, my sleepy eyes, my lips, the tip of my nose, my forehead, and lastly, my bald head. Lately I have been waking to heaven. The sight of my Superman smiling at me when I open my eyes is simply amazing. This seems to have been my husband’s morning routine lately. And I’m not the one to complain about it. I took it all with open arms. Like I said, it was heaven. This routine actually made me feel loved and accepted (first thing every…Continue
It has been a really long time since I was last on this site but I am in need of some suggestions, ideas or input please...
I have a new baby (girl) and I am wondering how others with children have chosen to tell their kids about their alopecia? I know that I have time (though it goes fast) before she will be able to ask questions, but I am still uncertain about how I'll respond.
I have never hidden my alopecia from my baby, nor have I hidden my wigs. However, when she's old…Continue
One of the joys of having Alopecia Areata and opting for the bald path is the need to shave every few days. I decided I will not learn to shave my own head, and have my husband do it to me instead. This way he’d have some participation in the delights of my Alopecia, because I’m nice like that. I have also decided to refer to him as “Superman” on this blog, because he is my superman (and this is my lame attempt at flattering him). So, every couple of days I would be niggling Superman into…Continue
Still looking for a perfect hat for my wedding. Any ideas where to go to? I have tried google, etsy, everything.
Anyone else experience this with their children. It's shedding everywhere and dr said its normal. I am freaking out cause my husband and I both have hair loss. Does anyone else seem to think it is stange that we all have hair issues. I am starting to think its our apartment or water. I don't know what to think anymore.
Some people should really be reminded of their manners, from curious looks to downright stare fest, seriously. I have been getting this a lot lately. Yes, I am bald. Yes, I’m a woman. No, it wasn’t by choice that I’m bald. No, I’m not on Chemotherapy. Yes, those are extra-bald patches you see scattered all over the backside of my head. Yes, it’s a disease; and before you give me that look, no, it’s not infectious. It’s Alopecia Areata. Google it. Get over it.
I would say I found out…Continue
Well my hair is growing back at a very rapid pace no bald spots just lots of hair don't like the colour grey and white though Hey but it's hair
Hey everyone, just dropping in to let everyone know that my hair did come back. Not perfectly, but beggars cant be choosers hey! Took 2 years though and still haven't got my facial back
Hi - it's been a while since my last post about my nails that were lifting away from the nailbed. I've found something that seems to work - - although I have to say, it's pretty extreme. On two of my most affected nails where the nail had almost completely lifted away from the nail bed, I've received a cortisone injection at the cuticle line. Painful, but it seems to work. Next time, I'll apply some numbing agent the dr. prescribed before my next appointment.
I am so so so so excited to be able to write on here to tell you all that the film that I have been talking to so many of you about over the years is finally on sale. My documentary - BABY LET YOUR HAIR HANG DOWN - about my journey with Alopecia Areata is available for you to watch. You can buy a DVD or download it from Amazon VOD.
The link to the film is here:…
Added by Georgia Van C on February 16, 2013 at 9:45pm — No Comments
Hi Everyone. It has been one year this month since I first lost all my hair and posted on Alopecia World.
I am happy to say it is growing back in. I still have a few small bald spots and the new hair growth is baby fine.But I will take what I can get.
I do want to say thank you to everyone on this sight for the support, it has really helped me cope.I did not feel so alone!!!!.…Continue
I'm glad to chance upon this site and I've only joined last night. Guess I'll start at the beginning. I used to have a tremendous amount of hair when I was 18 (am now 46) except it was a very fine, frizzy type hair and back in the 80's, there wasn't the kind of hair products or curling iron straighteners we have today and so the only solution was to perm my hair. One day, I got my step mom to perm my hair but she pulled the curlers too tight which resulted in the perm solution literally…Continue
I'm warming up to this site. I'm happy to have found it and wish I knew about it earlier. I'm nervous, I'm affirmed ... and I'm making sense of them together.
Thanks for being brave enough to share your stories and allowing me to see myself in those stories. I plan to share a photo soon.
Thanks (and please share all your love)
Added by Ann on February 11, 2013 at 9:00pm — No Comments
im on the verge of getting a wig. i think bald is beautiful, i just dont think its the right option for me. anyways, i just have all of these questions about wigs and i cant seem to find a straight answer online.
how does a wig feel? is it itchy? do you have to wear a cap under it?
how secure does it feel? how do you keep it from blowing off in the wind? is gluing recommended? can i swim with a wig on? how did you feel transitioning into a wig? can you sleep in it? can you be…
I hope you are all well. I haven't been on here in a long time.
I felt it was important I wrote this blog to let you know how I have been and how my Alopecia Universalis has 'changed'.
Those of you who read my previous blog will know that I experienced my hair loss at quite a fast pace, literally within a few months I had gone from having a tiny bald patch at the top of my head, to having complete hair loss all over my body.
My last blog in 2010 spoke…Continue
However, the bald doll has created some controversy in the alopecia community because Ella is packaged with a wig on.
Some feel that it is not a real representation of a person with alopecia and…Continue
It's been very hard for my son who is only 10 yrs old. how do i answer his questions?
Hi my name is Krystal and my soon to be 14yr.old daughter has A.A.she's losing her hair at a faster rate than we anticipated. I don't think the full aspect of what's to come has hit her yet and I want to shelter her from it but I know that I can't as much as I want to.when does the feeling of utter uselessness and not in control go away or at least fades and gets Better? Please help an emotionally behind closed doors mom.any and all advice welcome.
Help - anyone who has experienced this place respond.
It is almost two years since I had the little bit of hair I had left cut, shaved and I began to live my life as an alopecian (I barely had hair). Last week I developed a burning sensation on the back of my head. It looks like I have a sunburn. Initially it looked like a rash, but that went away in two days. It burns like I have a sunburn. I went to my regular doctor thinking perhaps I had shingles. I had chicken pox at 34 years of…Continue