Featured Blog Posts – February 2013 Archive (22)

The road to acceptance


I wake up every day to light kisses on my cheeks, my sleepy eyes, my lips, the tip of my nose, my forehead, and lastly, my bald head. Lately I have been waking to heaven. The sight of my Superman smiling at me when I open my eyes is simply amazing. This seems to have been my husband’s morning routine lately. And I’m not the one to complain about it. I took it all with open arms. Like I said, it was heaven. This routine actually made me feel loved and accepted (first thing every…


Added by IcedBit on February 26, 2013 at 12:00pm — 5 Comments

How do you tell your children?

It has been a really long time since I was last on this site but I am in need of some suggestions, ideas or input please...

I have a new baby (girl) and I am wondering how others with children have chosen to tell their kids about their alopecia? I know that I have time (though it goes fast) before she will be able to ask questions, but I am still uncertain about how I'll respond.

I have never hidden my alopecia from my baby, nor have I hidden my wigs. However, when she's old…


Added by amanda~ on February 25, 2013 at 4:21pm — 7 Comments

Just another manic bald day

One of the joys of having Alopecia Areata and opting for the bald path is the need to shave every few days. I decided I will not learn to shave my own head, and have my husband do it to me instead. This way he’d have some participation in the delights of my Alopecia, because I’m nice like that. I have also decided to refer to him as “Superman” on this blog, because he is my superman (and this is my lame attempt at flattering him). So, every couple of days I would be niggling Superman into…


Added by IcedBit on February 22, 2013 at 11:30am — 4 Comments

Need wedding hat. HELP!

Still looking for a perfect hat for my wedding. Any ideas where to go to? I have tried google, etsy, everything.

Added by HeatherRae on February 21, 2013 at 5:00pm — 9 Comments

1 year old losing hair

Anyone else experience this with their children. It's shedding everywhere and dr said its normal. I am freaking out cause my husband and I both have hair loss. Does anyone else seem to think it is stange that we all have hair issues. I am starting to think its our apartment or water. I don't know what to think anymore.

Added by Michelle on February 20, 2013 at 6:26pm — 3 Comments

It's rude to stare

Some people should really be reminded of their manners, from curious looks to downright stare fest, seriously. I have been getting this a lot lately. Yes, I am bald. Yes, I’m a woman. No, it wasn’t by choice that I’m bald. No, I’m not on Chemotherapy. Yes, those are extra-bald patches you see scattered all over the backside of my head. Yes, it’s a disease; and before you give me that look, no, it’s not infectious. It’s Alopecia Areata. Google it. Get over it.

I would say I found out…


Added by IcedBit on February 20, 2013 at 5:00am — 6 Comments


Well my hair is growing back at a very rapid pace no bald spots just lots of hair don't like the colour grey and white though Hey but it's hair

Added by Annette on February 19, 2013 at 4:38pm — 15 Comments

It does come back sometimes!

Hey everyone, just dropping in to let everyone know that my hair did come back. Not perfectly, but beggars cant be choosers hey! Took 2 years though and still haven't got my facial back

Added by Shane Beard on February 18, 2013 at 7:12pm — 1 Comment

Cortisone injections are working to treat my nails

Hi - it's been a while since my last post about my nails that were lifting away from the nailbed. I've found something that seems to work - - although I have to say, it's pretty extreme. On two of my most affected nails where the nail had almost completely lifted away from the nail bed, I've received a cortisone injection at the cuticle line. Painful, but it seems to work. Next time, I'll apply some numbing agent the dr. prescribed before my next appointment.

Added by JMEL on February 17, 2013 at 1:00am — 3 Comments

Baby Let Your Hair Hang Down is now available on DVD and Amazon VOD - finally!!

Hi Everyone!

I am so so so so excited to be able to write on here to tell you all that the film that I have been talking to so many of you about over the years is finally on sale. My documentary - BABY LET YOUR HAIR HANG DOWN - about my journey with Alopecia Areata is available for you to watch. You can buy a DVD or download it from Amazon VOD.

The link to the film is here:…


Added by Georgia Van C on February 16, 2013 at 9:45pm — No Comments


Hi Everyone. It has been one year this month since I first lost all my hair and posted on Alopecia World.

I am happy to say it is growing back in. I still have a few small bald spots and the new hair growth is baby fine.But I will take what I can get.

I do want to say thank you to everyone on this sight for the support, it has really helped me cope.I did not feel so alone!!!!.…


Added by Klo on February 16, 2013 at 4:58pm — 4 Comments

Feeling quite melancholic about my hair loss...and also feel alone

I'm glad to chance upon this site and I've only joined last night. Guess I'll start at the beginning. I used to have a tremendous amount of hair when I was 18 (am now 46) except it was a very fine, frizzy type hair and back in the 80's, there wasn't the kind of hair products or curling iron straighteners we have today and so the only solution was to perm my hair. One day, I got my step mom to perm my hair but she pulled the curlers too tight which resulted in the perm solution literally…


Added by Meloncholy on February 12, 2013 at 4:30pm — 2 Comments

I'm warming up to this site

Hi everyone!

I'm warming up to this site. I'm happy to have found it and wish I knew about it earlier. I'm nervous, I'm affirmed ... and I'm making sense of them together.

Thanks for being brave enough to share your stories and allowing me to see myself in those stories. I plan to share a photo soon.

Thanks (and please share all your love)

Added by Ann on February 11, 2013 at 9:00pm — No Comments

Wig help please:)

im on the verge of getting a wig. i think bald is beautiful, i just dont think its the right option for me. anyways, i just have all of these questions about wigs and i cant seem to find a straight answer online.

how does a wig feel? is it itchy? do you have to wear a cap under it?

how secure does it feel? how do you keep it from blowing off in the wind? is gluing recommended? can i swim with a wig on? how did you feel transitioning into a wig? can you sleep in it? can you be…


Added by neverthoughtidenduphere on February 8, 2013 at 2:00am — 5 Comments

Total regrowth

Hey everyone

I hope you are all well. I haven't been on here in a long time.

I felt it was important I wrote this blog to let you know how I have been and how my Alopecia Universalis has 'changed'.

Those of you who read my previous blog will know that I experienced my hair loss at quite a fast pace, literally within a few months I had gone from having a tiny bald patch at the top of my head, to having complete hair loss all over my body.

My last blog in 2010 spoke…


Added by Sarah McA on February 7, 2013 at 9:00am — 4 Comments

New “bald” friend of Barbie causes controversy

U.S. toymaker Mattel created a “bald” friend of Barbie doll named Ella and donated a limited quantity of the dolls to the National Alopecia Areata Foundation (NAAF).

However, the bald doll has created some controversy in the alopecia community because Ella is packaged with a wig on.

Some feel that it is not a real representation of a person with alopecia and…


Added by Cheryl, Co-founder on February 5, 2013 at 11:00pm — 54 Comments

How to explain to a 10 yr old?

It's been very hard for my son who is only 10 yrs old. how do i answer his questions?

Added by Iris Mendez on February 5, 2013 at 1:00pm — 6 Comments

My daughter

Hi my name is Krystal and my soon to be 14yr.old daughter has A.A.she's losing her hair at a faster rate than we anticipated. I don't think the full aspect of what's to come has hit her yet and I want to shelter her from it but I know that I can't as much as I want to.when does the feeling of utter uselessness and not in control go away or at least fades and gets Better? Please help an emotionally behind closed doors mom.any and all advice welcome.

Added by Krystal on February 3, 2013 at 12:30am — 4 Comments

Bald and burning scalp sensation

Help - anyone who has experienced this place respond.

It is almost two years since I had the little bit of hair I had left cut, shaved and I began to live my life as an alopecian (I barely had hair). Last week I developed a burning sensation on the back of my head. It looks like I have a sunburn. Initially it looked like a rash, but that went away in two days. It burns like I have a sunburn. I went to my regular doctor thinking perhaps I had shingles. I had chicken pox at 34 years of…


Added by Lili Añel (aka Eulalia) on February 2, 2013 at 2:18pm — 8 Comments



Wondering if anyone has this auto immune disease and had it passed on through their family? I have been dealing with this all my life off and on since I was around nine years old. Then things became even worse, where I've had to wear a wig for the last 18 years. But I don't care about me, its my daughter. She's a beautiful 21 year old with gorgeous long hair and yesterday she showed me a bald circle on the nape of her neck the size of a 50cent piece. I instantly became sick to my… Continue

Added by Hope on February 2, 2013 at 12:58am — 4 Comments

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