Now that my eyelashes, eyebrows, and body hair is all falling out, I have been experiencing severe itching, watery eyes, redness, burning skin and body pain. Has anyone out there experienced this? And if so, what has alleviated your symptoms? Has anyone seen any kind of specialist if they have had or have these symptoms. I am so miserable right now. Allergy pills do not help, I feel like I'm overdosing on benadryl. It's hard.
I've been to my primary physician, I'm a Medical Assistant at…
Alopecia is a bit of a bitch :) I'm not so bothered about having no hair on my head any more, or my eye brows, and TOTALLY cool with no leg hair (I really should wear skirts more often)
BUT why does the hair have to grow in stupid places where I don't want it. I actually feel a bit manky today and it is due to unwanted hair I will have to sort out ASAP. It comes everywhere I don't want it, toes, arm pits, bikini line/area, even my chin has the odd one here and there at times, lady…Continue
My life changed about 3 weeks ago when I came down with some sort of contact dermatitis throughout my neck and scalp. The dermatologist put me on prednisone for 7 days. Then I was diagnosed with AA about 2 weeks ago when a large amount of hair came out from one spot at the back of my scalp on the left side. I felt it all pull away in the shower and it was a very weird feeling. I got cortisone injections in that spot and my dermatologist also prescribed a topical solution called Clobetasol to…Continue
Well last year I was gifted another autoimmune disease called Rheumatoid Arthritis. I spent all year wracked in pain and downing all kinds of medication given to me by prescription. I was sick of feeling sorry for myself so I decided to do some deep research on nutrition. For a whole year because I knew this was not what I wanted for my life. I researched cancer cures, and other diseased body cures and all of them came down to better eating. Not JUST better eating but eating real whole RAW…Continue
Today I went to the docter and she told me that in my case my hair probably will never grow back.
But to give me the feeling that i tried everything she gave me hormonal cream.
Im just gonna try it and I really hope it will work for me.
Question for today is:
Has anybody had a good experience with hormonal cream?
I just wanted to say to everybody on this site, Youre beatiful,I like people who stand out from the crowd, people that are…Continue
May 14th, 2012 at 28 I found my first patch of hair missing. Two weeks later, I made the difficult decision to shave my head with the support of a wonderful friend and my boyfriend. At the end of February, 2013, I was lucky to have my hair starting to grow back - I even could make a small mohawk!
Monday, I noticed a patch missing again, along with some thinning.…
Added by HilEspi on March 27, 2013 at 1:30pm — No Comments
Paint me a picture,
Of what life should be,
A world where it's people don't judge what they see.
Your hair is all gone,
It's alien—it's strange,
You find that your world has started to change.
Why is the question,
You keep in your mind,
Where are the answers you struggle to find.
A while it will take,
To accept this is you,
To challenge yourself in all that is new.
Two eyes and a nose,
A mouth and ears too,…
I feel the need to post a note about the Follea Lifestyle Wig I just bought for my 14 yr old daughter. It is a little pricey but worth every cent, in my opinion. If you want quality and the best you have to pay for it. This wig is absolutely amazing! The hair is European human hair and is very soft, beautiful and manageable and the parting is 99.9% lifelike! She can put it in a pony tail, a bun for ballet class, french braids etc. My daughter managed to hide her AA up to the very last moment…Continue
Hey everyone! I've had alopecia for about 10 years and have tried every thing... literally everything. I've done laser, creams, injections, shampoos, but nothing really seemed to help me. My hair fell out almost like the seasons my dad always says. The spring and summer my hair always grew in and in the winter and fall alot of my hair fell out. So, I've been using squaric acid. The acid isn't FDA approved yet, but me and my dermotolgist said its worth a shot. So between 4-5 months mostly all…Continue
So like most people on this site I have also lost my hair and feel really self conscious about it. The icing on the cake is that I have been away from my fiance since September of last year. He hasn't seen much of me since I've been completely bald. He has seen maybe one or two pictures. I keep my beanie or scarf on while we Skype or FaceTime. So the other day while we were Skyping, without thinking of it, I moved my beanie a little to scratch my head. When I realized what I had done, I felt…Continue
I'm really considering getting these vitamins i've read a few comments of how t was helping a couple of you and some it wasn't on here but it was hard to find all the comments about it. I know about that 10 year old girl who had success with it. I have AA and i'm woundering if any of you has had success with it or not?
Also if any males have tried this?
Thanks a lot!
Added by Ryan on March 21, 2013 at 6:30am — No Comments
Hello again, I have been weaaring hats to school since I was in first grade and now I am in sixth grade. Anyway yesterday I had an hat on and this boy who is in the same grade as me walks up to me and says "No hats in school." Then I just looked at him for a few seconds and then said "Do you really want to go ther?" This just shows how used to my alopecia people at my school are like a few months ago my friend had her hair done really cute and she said to me "I can do it to your hair…Continue
I have had Aloepecia since I was 11-12yrs old, just before starting highschool (how many of you can guess how much I enjoyed highschool?)
Anyways, I've never had regrowth to the point I dont feel the need of
wearing my wigs anymore, I have woren Lcae wigs starting around the age of 15 yrs old.
I feel that because of my age of when it started that I never got a chance to enjoy life or highschool and my peers like others did. You don't realize how much lack of confidence you…
The This Is Me Foundation is very excited to announce we will be giving two national scholarships to graduating high school seniors in the US who have/had alopecia and are pursuing advanced level education! Please contact us at firstname.lastname@example.org to receive an application. We will be awarding 2 $500.00 scholarships that will be sent directly to the student.
Has anyone lost their hair due to severe estrogen deficiency and tried HRT to regrow their hair?
In my thirty-eight years on this planet I have seen friends come and go. Living with a shameful disease like alopecia I have seen a fair share mostly go. I can admit to myself a lot of that was due to not wanting anyone close enough to know my shameful secret. I have gotten better at picking my friends over the years, as we all do as we get older. Or so I thought. Coming out of the shame of alopecia three years ago I found a set of friends that welcomed my new found energy. These friends…Continue
my dermatologist has told me a few good things on DPCP (Diphenylcyclopropenone). I have read a few studies on its effect, and it seems worth a try despite the itchiness - like 40% of the times it has "considerable effects"
Does anyone here know how to get it in the US? It is not FDA approved, but I have also seen a lot of posts of people having used it.
Any tip helps!
Thank you ,
That is how I feel tonight. My alopecia struck me 6 years ago at the age of 35. It came 2 years after my second child was born. My thyroid was not being treated properly and I was depressed. In fact, depression has lurked in and out of my life for as long as I could remember. I have spent a lot of time trying to understand my situations in life. To this day it is unclear to me why I was handed the life I got. I know that sounds scary but if you were in my shoes you would question it almost…Continue
Hello to all my friends at Alapecia world. A friend gave me a magazine a couple of weeks ago because she had bought 2 the same called (That's Life).Of course I read it from cover to cover. There was a section that said tell us your story so I thought ok I will tell them about my hair loss. Didn't hear anything and to be quite honest I had fogotten that I had even written to them. Well I recieved a call from the Magazine the other day sent them some photo's of when I was loosing my hair, and…Continue