April 2012 Blog Posts (50)

I hate injections

I went for my injections today. I should really be happy they work and not complain. And I should be proud of my self when the nurse says I am a pro/amazing. I wish I could tell her that on the outside I may seem tough but on the inside I feel lost/mad/angry/physical pain.... I come home and take a shower because maybe it will erase these feelings. I don't like these feelings, I don't want to feel angry at G-d and sad. I don't want my head to be sore for the rest of the night. I know…

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Added by You can do it : ) on April 18, 2012 at 6:10pm — 9 Comments

About me

Well I had this alopecia since I was 2. I have never felt comfortable with myself because of it. I prefer not to talk about it and try to hide it. I have hairloss under my hair no eyebrows and no eyelashes on 1 eye WTF anyways. The hair on my head the back and sides has never grown back. Im just happy i found this support here, cus I have never met any1 else with alopecia...

Added by jenna on April 18, 2012 at 3:50pm — No Comments

Latest research on MPB and FPB: Proteins!

ScienceDaily: Hair Loss News

prevention, treatment options for alopecia, male pattern baldness, ...
http://www.sciencedaily.com/news/health_medicine/hair_loss/

Added by Tallgirl on April 17, 2012 at 9:30am — 1 Comment

Out of the mouths of babes- conversations with kids about alopecia :-)

I have had some great conversations with kids in the past 24 hours about my alopecia and wanted to share.

Last night I met 3 adorable kids, and this was my conversation with them:

Adorable little boy#1:" I thought youd have long hair" (he had been told about me and that I was going to babysit him and his siblings during a kirtan)

Me: "Nope, I dont have any hair"

ALB#1: "You have some."

Me: "Yes, I do"

ALB#1: "Why dont you have any hair?"

Me: "…

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Added by Christine Peck on April 15, 2012 at 2:01pm — 2 Comments

The Question

It’s been fifteen days since I shaved my head.

I knew it was going to happen sooner or later. For some reason, I thought it was going to happen later. Well, yesterday I got “the question.”

I knew it was going to happen and I was still taken aback by it.

I guess it’s because the person who asked me wasn’t a friend. It wasn’t out of concern. She was just being nosy. I assume she was asking because I shaved my head because didn’t even mention my new look. She didn’t even…

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Added by sks on April 15, 2012 at 12:56am — 4 Comments

Words of wisdom?

"To the Dalai Lama, suffering and adversity are the necessary conditions for developing patience and tolerance. These qualities are vital if we want to reduce negative emotions like hatred or anger. When things go well, we have less need to be patient and forgiving. It's only when we come across problems, when we suffer, that we truly learn these virtues. Once we internalize them, compassion flows naturally."

I read these words while reading The Wisdom of Forgiveness. One of the many…

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Added by Bald and Fabulous AKA Terri on April 13, 2012 at 8:30pm — No Comments

So this happened at work today

Customer: Oh my gosh, you're so beautiful.

Me: Oh, thanks

Customer: But why aren't you wearing a wig?

Me: Umm what?

Customer: It's really deterring from your beauty. You could be truly beautiful if you wore a wig.

Me: I'm completely comfortable with who I am and don't feel the need to hide it by wearing a wig, thanks.

Customer: Oh you're just being stubborn.

Me: No, actually I've been bald since I was two years old and I like myself the way I…

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Added by Erika Vincent on April 12, 2012 at 11:00pm — 29 Comments

My new wig is fabulous! :)

Well, I must say that I'm loving my new wig. My cousin went with me to pick one out at the beauty supply. I'm not really a "bangs" type of girl, but she asked me to try one on with auburn highlights and a "swoop" bang. I actually loved it! The nice thing about wearing wigs is that you don't have to worry about styling your hair...you just go with the flow...what sucks is what is underneath...I've been battling alopecia for the past 4 years. I manage to get it into remission for a while, and…

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Added by Chari on April 12, 2012 at 10:59pm — 3 Comments

Days later

days after being called a liar, i understand why it hurt me so bad. i wish i could lie about this situation i'm in. i wish the simple truth was that i wanted to draw attention to myself, and that i could stop at any time. but the truth is still there - i can't grow hair. i don't shave my arms and eyebrows off like i was accused of doing. i wish that i did, because i could stop and they would grow back. but they don't, i have alopecia. this is my fate. unlike theirs, mine doesn't involve hair…

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Added by jamie on April 12, 2012 at 9:30pm — 3 Comments

Found one

Well I have finally found a new wig, I loved the new place I found the owner Angie was brilliant, experienced, had family with alopecia and had the patience to help me find the right one, had just what I was looking for waiting for me ready (after I'd suggested what I wanted) and picked me a nice new ROP wig. One issue I found was she very sneakily kept the tag so I don't know what she got me lol but she did everything cut it to suit, adjusted the cap to make it smaller and fit my head…

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Added by KFlame on April 12, 2012 at 8:00am — 2 Comments

So this bald girl walks in for an interview...

Finally made it to Texas. All the way from Idaho and feels like I have moved into a different country. People drive here as if gold is at the next light. Freakin fast. Big change from in town speed of 25 mph.

When I moved here, I made the decision to wear the "Love me or leave me outfit". As is. No returns. The one that was always in the closet. Meaning going out without a scarf or hat. Come to find out, it's been my best outfit yet.

People stare. But this time instead of looking…

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Added by Kristine on April 11, 2012 at 1:17am — 18 Comments

Ponder this

"The self is the friend of a man who masters himself through the self, but for a man without self-mastery, the self is like an enemy at war."

The Bhagavad Giga, India, Circa A.D. First Century



"We mean the ability to keep one's head at times of exceptional stress and violent emotion...But it might be closer to the truth to assume that the faculty known as self-control-the gift of keeping calm even under the greatest stress-is rooted in temperament. It is itself an emotion…

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Added by RonaldStone on April 10, 2012 at 6:30pm — No Comments

Eight AM

i get up for school. late. awesome. instead of trying anything fancy, i throw on yogas and a hoodie. put on my makeup real fast. and give myself one braid down my back. eat. out the door. great.



in the car i realize that you can see two bald spots with my hair braided. i can't do anything about it either. i just take out my hair and put it in a bun. again. like i have the past month and a half now. i'm really upset this morning, i've got a million things to do and all i can think…

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Added by jamie on April 10, 2012 at 8:00am — No Comments

Locks of Love

So, I first applied for Locks of Love towards the end of fourth grade. And it literally was the best decision I have ever made. It saved my life. Everyone was like, "Wow, nice hair Jackie." I mean, a few girls gave me snotty looks. It was probably because my hairpiece looks awesome and they were just jealous. That's how I like to look at it. lol c: Anyway, I love Locks of Love. They are the nicest people ever. Super sweet and down to earth. This month, I need to apply for a new one because…

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Added by Jackie on April 9, 2012 at 10:34pm — 1 Comment

April ninth: not eventful.

i play tennis, forgot to mention. its the only time when i don't feel like a slob for wearing my hair up and having a thick headband in. no school today, so i didn't have to paint my face on at six am. instead i got to wait until before my tennis match at three. but that's barely anything, i still have eight million more things to do tonight. and when i get back to school tomorrow there's still nine million more things waiting. yippee... i used to dress up, business casual i'd even say. high…

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Added by jamie on April 9, 2012 at 8:00pm — 2 Comments

My life as a high school senior

has become extremely difficult. i'm stressed out over everything. i have a lot of pull in my school. as the national honor society president, yearbook editor, and lead & seed (anti drug and alcohol group) president, i always have a lot on my mind. and you know what, dealing with stress and the pressure of being perfect is what i'm best at. i can pull off every single deadline and meet every single requirement for any task. plus more. the only thing that can't handle it... is my hair.…

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Added by jamie on April 8, 2012 at 9:30pm — 4 Comments

You know what I think?

I have had sence just out of elementary what looks like a males natural balding pattern. Just a three inch diameter circle, spotty around the edge and now my receding hair line cutting into it a lil. Pretty much got a comb forward. It's only embarrassing in a strong wind. I assume people Think I am a very youthful Old Man; especially in a suit Haha. but I Think maybe it is like a temperature control to release heat to optimize brain function. Its what I like to think anyway. I never paid…

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Added by RonaldStone on April 7, 2012 at 10:00pm — No Comments

Wigging out

Tomorrow it will be a week since I shaved my head. The honeymoon is over and the reality of being bald is sinking in. Today was a rough day. Having second thoughts about shaving my head. I felt very self conscious. It took me forever to work up the nerve to go out for a walk. I don’t own any caps and my bandanas I usually wear to the gym now slip off. I finally got the bandana to work. Later I went to the store and that was total agony. After spending some time praying and meditating about…

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Added by sks on April 6, 2012 at 11:00pm — 7 Comments

IT IS SETTLED...I KNOW WHAT I WANT!

I have to say these words..."I really want my hair back!" Now that I got that out I can be candid. I had to be honest with myself and I did. I said those words and I believe those words to be the desire of my heart. That is my faith...to believe that which I do not have... to possess in my future which I can not see, but I see. I know sounds crazy but isn't this whole situation crazy? I have lamented over my hair loss and it's true I stayed in that place for a while. Now, I am on the other…

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Added by Theresa on April 6, 2012 at 10:00am — 17 Comments

18 year olds & older please!

I lost my hair at 4 and was diagnosed with Alopecia around the same time. You'd think I'd have this down to a science by now (yeah I wish). I am now about to be 24 years old and have pretty much gotten over the shock and the jitters about the disease although I still do struggle with not accepting, but embracing it. Mind you, I've never had problems dating...just been really careful with who I dealt with. Yet recently, I've been with my boyfriend for 2 years and he has seen the highs and…

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Added by Melly_Matrix on April 6, 2012 at 9:00am — 5 Comments

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