Members of Alopecia World now have the ability to rearrange the different sections of their profiles.

Simply login to Alopecia World, go to your profile (or click the MyPage tab), click and hold the title bar of the section of your profile that you wish to move, drag it to a new location on the page, and click again to release it.

That's all, folk!

Please leave comments on this blog letting us know how you like the new feature or whether you have problems with…

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Each member's positive contributions to Alopecia World are appreciated and encouraged because our beloved community could never be what it is without your contributions.

Nonetheless, we ask that members refrain from creating duplicate posts. For example, do not post duplicate blog and forum discussions even if you use different titles. Post content as often as you like, but please avoid spamming Alopecia World.

We also ask that you use capital letters only when it's appropriate…

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Now its 12 days left for my first american NAAF conference. My friends says...Roger you are a cute person that going to USA all by yourself for this. I say life is to short not to do it. I hope to meet some new friends in Louisville.

Roger.

Well last night I had to deal with my first stupid person. I went to the neighborhood pub last night with a couple of friend who have know me forever. Well Ive been in this bar a couple of time since Ive got my wig and mostly everybody knew about it and noone really cares. I live in a little county where everyone knows everyone and if you dont, you know someone who knows everyone. Well there was this old guy there who asked me if I was dying of cancer and I had to ask him why he thought that.… Continue

Alopecia World has grown to 1,000 members, and many of you have written Cheryl and I to tell us just how much Alopecia World means to you.

You shared with us how interacting with members of our beloved community has changed your life in positive and powerful ways.

You have also told us how every alopecian and their loved ones and friends could benefit from being part of Alopecia World.

We believe and appreciate what you have said, and encourage you to continue spreading…

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This is one of the first photos of my new freedom wig. It's going to take a bit of getting used to but it's very like what my hair used to be, especially the colour. The hair feels absolutely lovely :)



I've got to have some more practice styling it though, when I washed it for the first time it dried a bit fuzzy so I had to straighten it (very like my own hair, actually!). It's also taking a bit of time for me to learn how to put it… Continue

My father Rodolfo Leal passed away almost 2 moths ago; even now that I try to write this some tears come out of my eyes; I loved (and still loving) him so much, he teaches me about courage, love, hardwork, in a few words, how to be a Man...



When I was managing with the darkest sequel of my Alopecia Universalis, short after I finished theUniversity; he stand side-by-side, he wasn't a friendly-like father but more a father-like-father; but always try to search correct words to confort… Continue

If you didn't check it out already, I posted a forum discussion on wigs. If you have any experience with wigs whatsoever, please please check out the discussion and leave your wisdom for those of us that are clueless. :) So so so much appreciated.

If the link below doesn't work (I'm not too technically savvy) then please just go check it out in the forum in the wigs category.
Wigs 101

A calendar hangs on the fridge for the family’s activities. A new pencil was hung at its’ side earlier this year in anticipation of the inevitable frenzy of the approaching summer. A selection of colored pens were gathered and placed into a nearby drawer. Out of quick reach, the pens are intended for events such as birthdays, holidays, graduations and the like whose important dates are set in stone.



The pencil is used for everything else as the only constant in life these days is… Continue

Yesterday's Ning blog featured a very positive article about Alopecia World that states,

"It is inspirational for anyone, because it is a intricate story of coping and living that can be understood universally. We highly encourage you to spend some time on or contribute to this amazing network, because we all get by with a little help from our friends!"

Of course, Alopecia World is such an amazing community because…

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Hey Everyone!



I just got back from a wonderful dinner and met 5 amazing, beautiful, bold, bald women. It was a great opportunity to meet Thea Chassin, founder of baldgirlsdolunch.org and listen to these other women's stories and be able to relate to them, and not feel like I'm alone dealing with AT.



All 5 had AU, one wasn't ready to go "Au Natural" in public but the other 3 in our group were, and quite okay in their skin. It made me hope that someday I can be that… Continue

I have (had?) dark hair and very light skin.

My AA patches are many and they are big, so I've taken to shaving my head, but I don't like the look of dark stubble in the places where I do have hair?

Are there tricks to getting a closer shave?

I tried nair once, but ended up with an icky rash, I guess my skin was too sensitive.

Help?

Sunday night and a new week is coming up. We had a hot day here in Stockholm today. Warmest day this year. 17 days left for the NAAF conference. I have lots of tourists information at home now about Louisville and its looks great.

Take care all alopecians out there =)

Hi guys, if you've read all these posts, you know that there has been some discussion about the purpose of the National Alopecia Areata Registry and how our information and blood samples will be used. I went back and read more carefully myself on the MD Anderson site.



My purpose in posting this particular blog is not to cause a reaction or upset anyone who may disagree with what I am writing. I just feel that there is signifcant reason to believe that the registry will be doing… Continue

My beau likes to give me an orchid on special occasions (I love their delicate beauty, graceful stems, leatherly leaves and beautiful blooms), and over the years I've tried many times unsuccessfully to get a second round of flowers out of them :-(



I had set a side one tired, neglected faded orchid on the landing in our back hallway and had pretty much forgotten about it. Its one leaf was shriveling and the last stem was leaning terribly. I figured it was time to ditch it, I even… Continue