July 2013 Blog Posts (42)

This is to all of you Dealing with Alopecia , Both Joyous & Painful of All Age Groups!!

I have read blogs that were insightful, informing, and raising my spirits blogs and have been up & down emotional roller coaster! Especially, when you read blogs that are depressing, heartfelt, and almost suicidal breaking points at times! Thank You Sincerely for sharing your deepest pain, fears, tears,joys and pleasures!



Looking For Faith & Found it Surrounds Me!



I know you hear me,I know your there, But in my heart some things in life are just not fair. If I look… Continue

Added by JEANETTE on July 18, 2013 at 3:49pm — No Comments

Does anyone know of any good salons in Vancouver, BC doing hair extensions?

I have been battling with Alopecia for 2 years now. My hair has become so thin that at times you can see the scalp through my hair when I wear it down OR up. I am considering getting hair extension to create more fullness. I have never had them before, so I am a little lost as to which ones are the best, affordable ones in the Vancouver (or lower mainland) area.

Can anyone help me with this? Your comments are highly appreciated! Thank you!!

Added by Ladyloss on July 17, 2013 at 10:47pm — 3 Comments

Positive side to alopecia

Just a a few thoughts, after a night out on Saturday I have realised that I have way more compliments since having Alopecia than ever before! My wig looks glam, along with my eyelashes and I have the smoothest legs without the hassle of waxing:)

I have had many hard times and still do but with each day I realise having AU is not the end of the world and there are many people out there who are less fortunate than me.

Added by Hannah on July 17, 2013 at 4:30pm — 4 Comments

Is acceptance the same as giving up?

I’m a 32 year old South African female. I have lived with Alopecia Areata since I was 22 however for the most part I didn’t worry about it as it was just small patches here or there that came and went and were easily hidden.

For the past 2.5 yrs one patch has become a second patch & a third and they have all become friends…spreading up from my neckline and sides to the top of my head. Daily I am losing more hair and its getting more and more difficult to hide. Basically I have…

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Added by Kim on July 17, 2013 at 8:00am — 39 Comments

Semi-permanent eyebrows

I am from Chicago IL and am looking for a semi permanent eyebrow specialists in the area or surrounding states. Any suggestions or recommendations??

Added by Michael Dominguez on July 16, 2013 at 10:30pm — No Comments

Trick #2

So I return to my dermatologist this week to see what he has next in his bag of tricks for me. We have just tried a round of steroid injections once a week for three weeks to try to "trick" my immune system and shut it down with zero improvement. He mentioned that next time we will try to take the opposite approach and "rev it up"??? Anyone tried this and what does it entail. I haven't been able to find any information on the internet. I was only diagnosed five months ago so I am still…

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Added by bamakelly on July 16, 2013 at 3:00pm — 3 Comments

Doctors?

Does anyone in Colorado know of a good doctor? I feel like I need to push this lupus thing. The last place I went didn't feel like I needed to worry about it but I still feel like there is something else wrong with me..

Added by Jen on July 15, 2013 at 9:01pm — 2 Comments

Getting together the Portuguese "alopecians"

HI everyone! First of all, thans for the existance of this web site once again... it's really important for us to have someone "like us" to talk to.... to share our doubts and fears, to share our vitories and new challenges! I'm portugese and here in my country with don't have yet any kinf of association or nacional support group... Like in many many countries and states, i think that we should have one! becaus of that i'm trying to difuse this new facebook group that i created in order to…

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Added by Catia on July 15, 2013 at 6:00pm — No Comments

Life sentence

Hello everyone, The last 4 years have been the most difficult of my life. I had my 4th child at age 39. The hairloss started soon thereafter. Having the love child was supposed to be the best thing but it soon turned into a nightmare. Even during the pregnancy things started to change in my relationship. My baby was born at 32 weeks and in turn missed out on that all important bonding. Instead she spent 3 weeks in hospital being looked after by nurses and doctors. I had 3 teenagers at home and… Continue

Added by Petra on July 15, 2013 at 5:28am — 3 Comments

Mirror, mirror, on the wall

I remember the first time I saw my bald reflection looking back at me and thinking what a great shaped head I had. Of course I looked completely unlike anything I had ever seen in the mirror previously but I didn’t look like the hideous pictures on the doctors hand outs and at that moment, I just assumed this is how I’d look for a while until it all grew back. I felt happier at that moment than I had done for the previous few weeks having had to watch my hair thin and fall out, I felt in…

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Added by Kate on July 13, 2013 at 9:30pm — 7 Comments

Be strong

Hi,

Pease take one day at a time. It is not the end of the world. You will survive this one. I wish you great luck to fight this and get the best of it. You can talk to me any time you like to.

Nick

Added by Nick Saund on July 13, 2013 at 5:59pm — 1 Comment

Patch

I keep finding more bald patches, the most I have had in years. I feel it's coming from last year when I had a very stressful time, nursing my beloved Grandad and Auntie in my home, who died from cancer.

But strangely I don't care, I have been through so much that hair loss seems so unimportant now. If anything I am using it like a badge of honour, yes I have seen through hell but I have survive. And if I loose all my hair. I will be fine, because over the last year I have found out who…

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Added by Jo-Anne on July 13, 2013 at 5:29pm — 1 Comment

In need of support

It's days like these when I really need support. I don't really know what to do with myself. My family needs me, and they are constantly upset by my lack of contributions to the household. As a teenager, I'm sort of at the whim of the adults in my household, and they don't always understand what's going on. I have cried countless times today, and probably will again.

I was diagnosed with alopecia in May, and it has progressed to about 60% loss. I also have diffuse hairloss, and my…

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Added by Madeline on July 12, 2013 at 8:00pm — 23 Comments

All of the Strands...a song produced for Australia Alopecia Areata Foundation

http://redwoodsmusic.bandcamp.com/album/all-of-the-strands-single



Hi everyone!

AAAF Song - Strands is now live!!



AAAF thanks Reuben and all members of the Redwood band for the generosity of time, expertise and continuous awareness programs. Enjoy the song.…



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Added by Vesna Devcic on July 12, 2013 at 6:44pm — No Comments

Why so many people are losing their hair lately?

Why so many people are losing their hair lately?
Why I am losing will be mine?
I feel sad, not knowing what to do ...

Added by Lucy on July 11, 2013 at 3:30pm — 1 Comment

Locks Of Love retreat 2013

So, around last month, Locks Of Love called and invited my mother and I to the 5th annual Locks Of Love retreat held in West Palm Beach, Florida. My mother, of course, was thrilled, and said yes, we will be attending the retreat on June 27th. While my mom was excited, I was crawling with nerves. I was anxious to meet the other girls. But I'm glad I didn't back out because when my mother and I met at the Florida airport with the other moms and their daughters, all my nerves vanished. I met…

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Added by Jackie on July 10, 2013 at 7:52pm — 2 Comments

DAY 62 - Have you heard of Olux-E???

So I finally met the new doc!

yes it's DAY 62...that's how long it took because the previous doc kept cancelling my appointments!

As you can imagine, lots can change in 62 days!

It's actually a bit strange...bitter-sweet almost.

The spot grew a little bit but I also see more fuzz. The entire area is covered with decent length fuzz. The size probably ranges from 0.2cm to 0.5cm. The edge of the patch grew first and has now turned into black fuzz to match my original…

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Added by User306 on July 9, 2013 at 3:56pm — No Comments

Shedding hair sucks!

Anyone else tired of seeing hair collect all over your floor, bed, hairbrush? My hair has gotten to my lower back, but I still have large patches over the entire back and sides, with some smaller patches on top. So, of course, my long hair sheds and it becomes very obvious that there's hair everywhere. The worst is when cooking! I'm always scared someone will find a hair in their food and be disgusted.

Makes me want to shave it all off -- a thought that's been around for a few months.…

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Added by okiegal on July 8, 2013 at 5:11pm — 5 Comments

A positive side to alopecia

So admittedly, there is very little good about having Alopecia and whatever happens, any positives that come out of it do not, in my eyes, outweigh the terrible burden of having no hair. However, I realised one of those positives today and feel the need to share it.

In fact the drama began yesterday, in the freezing cold, wet town of Queenstown, New Zealand. I’m here for a few days after nearly a year away from home. The morning had gone well, after a disappointing beginning whereby…

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Added by Kate on July 8, 2013 at 3:30am — 22 Comments

My 6th anniversary with alopecia

Hi Folks,

Well...It's been 6 years today since I found that little bald patch on me...Picture it, July 5th 2007 I thought an ember of my independence had fallen upon me. But no it was Alopecia. i had never heard of it before.

It was pretty tough to lose all my hair within 3 months. I lost my identity and my self confidence.

I slowly started accepting what had happened after a year of turmoil.

How does a person deal with such a crises?

Luckily for me I found…

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Added by JeffreySF on July 6, 2013 at 12:00am — 2 Comments

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