July 2011 Blog Posts (96)

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Once again

It Has been about 3 months to the date that I last signed in and stated, I saw some small loss and missing eyelashes. Today, I went to the dermatologist for a follow up,. I decided to take a break from the treatments. There has been no regrowth, no eye layers remain on my right eye, and I have a small pony tail out the top of my head. I can let it down and still wear a wide headband/wrap, which is a plus. However, I'm really pretty freaking sick of it. This is the third time I have gone thru… Continue

Added by Bigmama on July 5, 2011 at 9:00pm — No Comments

Clobex spray

Hi all! I have been living with AA for 23 years and I swear by injections but decided to try a less painful route and my doctor got me to try Clobex spray. I am just curious of anyones experience with it? Any results or side effects you were or were not happy about?? I also want to know if anyone had any opposite effects like hair loss? Last thing I need is to boost my AA ahead/behind whichever way you look at it. Thanks :)

Jenny

Added by Jenny on July 5, 2011 at 8:30pm — 2 Comments

Wigs, wigs, wigs

Can anyone out there recommend a short natural synthetic wig that has a monofilament top? If you are like me, you have probably purchased more wigs that you don't like than those that you do. I am just beside myself as to shopping online and trying to decide what would work best for me. I have some wigs that I have never worn that I would be more than willing to sell at a very low price if anybody would be interested in buying. Just let me know.

Added by Ktownnana on July 5, 2011 at 7:00pm — 14 Comments

Needing more support right now

Well, I haven't been on here for the longest time, but I find myself needing more support right now since I am very close to losing all of my hair. For a while, I had been experiencing so much regrowth that I was becoming very hopeful that this "worst case" of alopecia was over. The top of my head started growing in pretty thick even though the bottom half of my head was still pretty much bald. However, I was optimistic that I might actually have my own hair for my wedding next September.… Continue

Added by Nikki on July 5, 2011 at 12:30pm — 4 Comments

My first post

I started a discussion...and it started me thinking.

I am continually amazed by this site, which, after posing a heated discussion not 24 hours ago, has already filled 5 internet pages with encouragement, stories, and advice on my issue of HIDING under a hat and how to be free. I have struggled my whole life to find commonality with women (and man) in this; my friends all understand, but from an outsiders view, but they still lovingly style their hair each morning, and complain of having… Continue

Added by Emily Naples on July 5, 2011 at 9:30am — 5 Comments

Alopecia Areata Fact Sheet

I just found this online from the national foundation. I do not know the date this was created.



What is alopecia areata? Whom does this disease affect?

 Alopecia areata is a common autoimmune skin disease resulting in the loss of hair on the scalp and elsewhere on the body. It usually starts with one or more small, round bald patches on the scalp and can progress to total scalp hair loss (alopecia totalis) or complete body hair loss (alopecia… Continue

Added by Tallgirl on July 5, 2011 at 9:28am — No Comments

News

Hello to all, last news:c'est is a disaster, after the fibromyalgia, the disease of bottom dow, the universal alopecia, the prediabetes and a goitre, I have been supposed to be 3 weeks at the hospital for a sarcoïdose I'm fed up I cannot it any more and then I suffer, so physically as morally diseases after which the medicine does not know how to look where the search does not make any progrée. but why I?

Added by coccinelle on July 5, 2011 at 4:57am — No Comments

The cruel world

Yesterday I went to the store for some food. Suddenly an older foreign woman is flipping me her finger. I look around and it takes a second before i realise it is really me she means. Then she starts screaming - racist! bla bla bla, fu-ing racist bla bla... ehh, I am so surprised that I can´t get a word out. She walks away.



Then she comes back after a minute - and starts screaming again... then she says cancer? and points at my bald head. -" if not - racist! bla bla… Continue

Added by Helena Wenzin on July 5, 2011 at 1:33am — 13 Comments

Do you shave your head or have someone do it for you?

Just wondering.....does anyone out there shave their own head or do you pay someone to shave it? If you do shave, do you use a razor or a barber set of clippers?

Added by Ktownnana on July 4, 2011 at 10:00pm — 17 Comments

Finally back home - missed Alopecia World!

I wanted to post a short blog just to let you know that I didn't fall off the face of the earth, or abandon AW. I was travelling for 7 weeks in the UK (I posted a blog from there about meeting a bald woman at the airport in London), and then right after I got home, I took off for a week at my annual Balkan music and dance camp. So, I've had very infrequent Internet access for the past two months. I arrived home yesterday and am slowly catching up on everything.



This was my second…

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Added by Mary on July 4, 2011 at 1:30pm — 11 Comments

FREEDOM

HELLO SISTERS OF ALOPECIA WORLD...



I THANK GOD FOR THIS SITE THAT HAS BEEN AN ECOURGMENT. I ONLY BEGAN TO WEAR MY BALDNESS ON THIS FRIDAY. I FELT SO FREE WITHIN BECAUSE I WAS EMBRACING WHAT GOD HAS GIVEN TO ME. HE TRULY GAVE ME HAIR BUT FIVE YEARS AGO IT BEGAN TO DISAPPEAR. I WORE THE WIGS, THE WEAVE AND TRYING TO CONTINUE TO OBTAIN THE LOOK I WAS ACCUSTOMED TO. I AS A WOMAN DID NOT GO WITH MY HAIR UNDONE. BUT, GOD ALLOWED ME TO REALIZE THAT HAIR DOES NOT A CHRISTIAN MAKE. HE LOVES… Continue

Added by jean on July 3, 2011 at 10:26pm — 4 Comments

Hair Hair Hair!

Hello, my name is Laura! OK I don't have Alopecia but I do know what it's like to be judged for not having any hair. I suffer with bi polar and during one of my erratic episodes I shaved all my hair off. I had a lot of mean things said about me but I want you all to be proud of yourself.... in this video of me on youtube



https://www.youtube.com/watch?v=Mw1P5GMMSYo



It tells you all you should be proud of being… Continue

Added by Laura on July 3, 2011 at 6:37pm — 1 Comment

Alopecians...do NOT boost your immune system!

Several months ago, I decided to start taking Zinc for my Alopecia Areata, thinking it was a good thing to boost my immune system. After probably a couple of weeks on the Zinc, I began to wonder if this was a good thing to do, or not. Well, at this years NAAF conference, what I began to suspect was confirmed. DO NOT take Zinc, or anything else to boost your immune system!!! Your immune system is attacking your hair follicles, thus, boosting your immune system only aids in what is causing your… Continue

Added by Diana Carter on July 2, 2011 at 1:35pm — 8 Comments

Shaving head!!

well i've decided to buy me a very good razor and some shaving cream to get rid of the stubs today, am tired of the itching under the wig and am going to my inlaws today with a wig on , I know i'll be itching like crazy, maybe I should tell them I have head lice or something so we could leave faster,,,lmao
But I am lookng forward to getting my head smooth instead of living with stubs, it's either hair or NO HAIR right?
so I may as well say bye bye to the stubs
xox

Added by Lisa-Lynn Marini on July 2, 2011 at 10:47am — No Comments

2011 NAAF conference, changed my life

Nerves and excitement consumed me the days leading up to finally boarding a plane from Detroit to L.A. I knew I was going to finally meet people who have Alopecia, I had no idea how amazing this was going to be... I arrived there a day and a half prior to the conference starting so I could do some sight seeing.. yes.. I am a typical tourist.. My husband and I had a blast touring the walk of fame.. sunset.. the pier.. the observatory... totally different world from Detroit. The day came to check… Continue

Added by christine policicchio on July 1, 2011 at 11:30am — 16 Comments

How do I just do it?

So I've been bald for 5 yrs now and I went from wearing baseball caps to turbans to now a wig and something I struggle with every summer is I just wanna go swimming with nothing on my head I wanna be able to take my son's to a pool with nothing on my head, so all I wanna know is how does one get enough nerve to do it. I feel naked when I have nothing on my head, and I only do it around people Im comfortable around, and I wanna to be able to do it in public, and Im scared to, idk why. When I… Continue

Added by Debbie on July 1, 2011 at 9:39am — 14 Comments

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