August 2008 Blog Posts (115)

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Dotty's Inspirational/Motivational Reflection

Added by Dotty on August 26, 2008 at 10:06pm — No Comments

“Dating in Alopecia World” - In defense of the “rj's" of the world

First, I wanted to reiterate how we closed the original blog.



“Some people will join Alopecia World for all the wrong reasons and attempt to engage in inappropriate behavior. We take such misbehavior very seriously and strongly react to it whenever it is brought to our attention. Thus, we thank all the upstanding members of Alopecia World for helping us monitor our beloved community and…

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Added by Cheryl, Co-founder on August 26, 2008 at 10:00pm — 8 Comments

Some people............................

My school has this new strict rule about wearing hats unless you have a medical condittion (which i have). The office , security guards and my teachers all know why i wear my hat. So today while me and my friend were walking around the school the head security guy came up to me and said i know you have a reason to wear your hat but i need to see a doctors not (and of course i didnt have one i dont carry around doctors note's with me) so the jerk made me take off my hat (there was a decent… Continue

Added by lauren on August 26, 2008 at 8:13pm — 10 Comments

touching base

I haven't had that much time to come on here lately, so I thought I would touch base with what is going on.

1) my hair is still getting worse, but the extensions are still working fine. I have about 20 hairs left right behing my ear and as soon as thoses are gone, then I will be bald from 2 inches above my ear and down. That is ridiculous!

2) My eyebrows are worse, but I still haven't done the tattoo. I found someone else to doit, I'm just waitingfor some money. I hate credit card… Continue

Added by Jennifer on August 26, 2008 at 6:53pm — No Comments

Link to your Alopecia World profile

Your Alopecia World profile has its own unique Web address, and you are encouraged to share this useful “page address” with others.

If you would like to learn or change the address of your profile, simply sign into Alopecia World and check out these account options.

There are also different Alopecia World “badges” available for use on your…

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Added by Alopecia World on August 26, 2008 at 3:30pm — No Comments

Bald versus wig!

I have, for the first time, bought a wig I like and are comfertable to wear... but it is not as easy as that:)



I have had alopecia for 20 years and have never worn a wig before for more than a coupl of seconds. Ofcourse I have tried some, but never started using it. I have actually been very proud of that. I go out bald without any stuggle or feeling ashamed. I went through my teens and my early twenties bald and proud of it:) And now I see all the beatiful people in the same… Continue

Added by Silje H Teig on August 26, 2008 at 10:07am — 5 Comments

GET THIS!!!

So my school was being sued for years and recently they lost. Some doctors screwed up six years ago and the families of the patients sued and won. So what do they do? Raise the nursing student's tuition! Yeah, good idea. We don't have a nursing shortage and the nurses were the one's who screwed up after all so put it on them (heavy sarcasm). Anyway 2000 a term = 6000 more a year and I have to figure something out.

Then this wonderful scholarship presents itself. I'm stoked it's 5000 a year… Continue

Added by Carmella on August 25, 2008 at 6:47pm — No Comments

Master Cleanse day Four and a half

So Day three went pretty well. I wasn't hungry at all, stayed busy with house work and preparing for school, and felt pretty great. I didn't post because I was so busy and I really had nothing to report. The laxative tea that night however didn't work more than to give me a bit of a stomach ache for a short period. The next day (yesterday) however was a bit more difficult. You see my husband had the day off and we pretty much were lounging around ... we went fishing in the morning and the… Continue

Added by Carmella on August 25, 2008 at 2:46pm — 1 Comment

decisions.

I woke up again this morning to stare at several strands of black hair on my pillow and sheets. Earlier in the shower more strands fell out. Looking at myself in the mirror, it doesn't seem like I'm losing anything. In fact, my hair looks like it's growing. But I know that's not the case. This Friday when I go see Miss Peggy to get my new wig, I think I'm going to ask her to shave off the hairs on my head right now. I didn't think I'd be so emotional about this decision, but even now I'm choked… Continue

Added by traci on August 25, 2008 at 1:58am — 1 Comment

UPDATE!!!! Craziness... but what isn't in my life.

SO.... HAIRS ARE GROWING BACK IN CERTAIN SPOTS.... wait for it wait for it.....



Oh that's right, the hairs growing back are completely WHITE!



I can't wait, I hope long white hairs start to grow and then hopefully it will cover my head and then I can have the hair of an 80 year old women. I'll grow it out all long and then I'll start carrying a staff and you can then call me Gandolf or Dumbeldor... haha. I like let it all down and roll down the windows while I drive and let… Continue

Added by suzie on August 25, 2008 at 12:22am — 3 Comments

September is Alopecia Awareness Month

What special activities do you have planned for Alopecia Awareness Month? Please be sure to list them on Alopecia World's events calendar. You are also welcome to make suggestions and discuss your plans in the comments section below.

Wishing you great joy and good success,

richard jones (rj) & Cheryl Carvery
Co-founders, Alopecia World

Added by Alopecia World on August 24, 2008 at 9:30pm — 8 Comments

finding my alter egos

as the pictures on my last post show...it is impossible to hide my spots. I have been wearing scarves and hats for the past two weeks. actually one hat, because up until yesterday, i only had one. it was a little difficult to plan everything i wore around one hat, especially when i need to do laundry :D. Anyway, I like the I can wear hats and scarves, but it just isn't practical for every single day at my job. So, I spent yesterday wig shopping. I found one that is exactly like my hair was, or… Continue

Added by Rachel on August 24, 2008 at 4:00pm — 2 Comments

Just pictures - 2 weeks after i found the first spots










Its progressing really fast. Continue

Added by Rachel on August 24, 2008 at 3:45pm — 3 Comments

The Funniest Thing!

The funniest thing happened to me last night. I was inside Wendy's waiting for my order to be served when I heard this lady "Miss, Miss, where did you get your hair?" I must have thought to myself "I dont think she is talking to me." But she was and she said it again even louder and this time she added "thats some good stuff" which prompted the other workers to say yeah that is nice.



I actually felt flattered considering my community is filled with women who are obsessed with weaves… Continue

Added by Tamara Dixon on August 24, 2008 at 7:30am — 2 Comments

Dotty's Inspirational/Motivational Reflection

Added by Dotty on August 24, 2008 at 12:08am — No Comments

"Confidence check in aisle 5, please."

I'm a thinker. Sometimes I over-think, sometimes I don't think enough. But when I have time to myself to just Be, all of that doesn't seem to matter. (After all, sometimes we all get caught up in trying to do so much that we forget to Be...)



I was thinking the other day about the little moments in life that happen in just seconds, yet have the ability to profoundly impact your life. I've got a few of those that stand out in my mind, but I'm remembering right now about one specific… Continue

Added by traci on August 23, 2008 at 3:15am — 1 Comment

Dotty's Inspirational/Motivational Reflection

Added by Dotty on August 22, 2008 at 10:37pm — No Comments

Master Cleanse Day Two

Still not hungry, surprisingly. The maple syrup I make the lemonade with has all the calories that I need for a day so I guess that's why. I have a bit of a head ache this afternoon, but that isn't out of the ordinary for me. I have however, registrared my kids for school, found a doctor for my son to see on Monday, delivered my husband lunch at work, canceled memberships I don't use, went to the bank and replaced my husbands Debit card (he left his in the ATM) and paid a dozen bills at least.… Continue

Added by Carmella on August 22, 2008 at 5:33pm — No Comments

One door opens, another closes

My eldest daughter left for college this morning. It's her first year...and mine too. I’m happy for her, yet sad to see her go. The tears welled up in my eyes as I stared at the blank walls of her room, now empty except for the faded outlines of where posters of her favorite bands once hung. I closed the door behind me wondering if this was the end. Will she ever spend another night under the same roof? How hard it is to let go…but necessary.



My thoughts are with each parent whose… Continue

Added by Tony on August 22, 2008 at 12:20pm — 1 Comment

Dotty's Inspirational/Motivational Reflection

Added by Dotty on August 21, 2008 at 9:32pm — No Comments

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