Well I feel like Im doing abit of a dance step lately. This week I have an appointment to buy a wig, but still hesitant about shaving what is left of my hair. I know I cant continue watching my hair fall out, and clean it up off the floor and toss it in the garbage. Next week I have my appointment for the tatt that Im getting on the back of my neck. Something that I have been thinking about for so long and excited about getting. Even tho I know there will be no hiding it and it will definitely… Continue
Added by Bald and Fabulous AKA Terri on August 31, 2010 at 12:15pm —
So my husband shaved my head with clippers on Sunday afternoon. It was the best feeling ever. Showering is easier that is for sure. I even went out without a scarf or hat on in front of people I didnt know and actually held my head high. I wore my scarf to work yesterday but ended up taking it off and leaving it off most of the day. I decided that I didnt like the "velcro head" feeling anymore so I busted out the shaving cream and razor last night, this is the best feeling yet. I love the… Continue
Added by Julia S on August 31, 2010 at 11:38am —
The hairloss has gotten a lot worse since those pictures on my profile were taken, and Ive lost half my left eyebrow and a huge chunk on my right eyebrow. My hairloss on my head has been SO itchy. I've been thinking about shaving my head for almost a month now, and I have been talking about it with my mom, step dad Rick, and my boyfriend, Jeremy. Took a while for my mom and Rick, but they are finally understanding my feelings towards my hair. My boyfriend is the most amazing guy ever and has… Continue
Added by Tamara on August 31, 2010 at 9:53am —
Life seems to be moving in a good direction right now. Its weird i must admit, i am happy. I havent been truly happy in a looong time, and im scared. Scared that it will all just leave me, leave me empty like it has always done in the past.
In the last week i have told quite a few more people about my alopecia. i was at a party in the weekend and a guy asked me what was under the scarf wrapped around my head, and i told him nothing, im bald, and felt fine telling the truth.
I feel… Continue
Added by Mjay on August 31, 2010 at 2:35am —
For the first time since my diagnosis three years ago, I actually met someone face to face with Alopecia. All I have ever known and spoken with are the great people on here. My friends on this site talked me off a ledge at the very beginning...but I digress. Continue
I was busy running around coordinating an Entertainment event here in my city on the weekend and the member of a band getting ready to perform approached me and said, "So how long have you had Alopecia?" I stopped dead in my…
Added by Mike on August 31, 2010 at 12:30am —
Alopecia World is pleased to serve your online support and networking needs.
However, we are always interested in learning how our beloved community might better serve you.
Therefore, please let us know the following as soon as possible:
What additional features and options would you like the site to have?
Are there any administrative changes you would like to see? In other words, how might we improve the manner in which we moderate the content of the… Continue
Added by Alopecia World on August 30, 2010 at 10:30pm —
I'm feeling guilty today because of something I did last night. I was at an outdoor concert, wearing one of my Turkish scarves because it was cool.
A pleasant woman about my age was introduced to me by mutual friends. The FIRST words out of her mouth were: "I was where you are." Instead of responding with my usual "Oh, I don't have cancer, I have alopecia areata, etc..." I calmly said: "And where do you think I am?"
She was a little taken aback, and said that she assumed I… Continue
Added by Mary on August 30, 2010 at 7:25pm —
As I reported last week, my alopecia areata is very active right now and I am developing a new spot. I am finally reaching a place of acceptance and peace after a day or two of full-on freaking out and frantic doctor's visits. I realize that this is just something I will face for the rest of my life.
I had to slow down this week and realize that my family and friends are not at the same point of acceptance of my alopecia. When I told my mom and dad about my new spot, they were quick… Continue
Added by Emily B on August 29, 2010 at 10:44pm —
So lately my hair has been growing back as you may have read in one of my previous blogs, and it's been getting better and better. I hadn't really paid so much attention to my hair when it was growing back at first (not so much that I was obsessed with growing it back), but lately I have been paying more attention to it because now I can visibly keep track on the regrowth, and that's fun!
I have a hair-line again at the front of my head again, and I've produced myself a milimetered mohawk.… Continue
Added by Lionel on August 29, 2010 at 11:35am —
Well I had decided that I was going to shave my head tonight and well it didnt happen. My hubby was supportive but now is questioning why I want to do it now. I still have some hair and he thinks it covers the big spots. I just want to feel whole again, I feel like with more than half of my hair gone that I'm lost and it sucks. I have worn my scarves for the past 3 days and feel completely comfortable in them so that isnt the problem. I guess I'm just having a bad night, ugh. Good night AW.
Added by Julia S on August 28, 2010 at 10:38pm —
Tonight I was sitting here, reading some other posts by people, talking about differnt treatments, talking about bits of hair sprouting back, talking about possibilities. And for me it is never like that, I truly don't expect my hair to ever grow back. I guess after 10 yeas I just can't see it happening. I've become so accustomed to it that I don't even think about that part. I rarely even think about the part where i don't have hair to start with.
When i first lost my hair it ll came out… Continue
Added by Erin on August 28, 2010 at 7:42pm —
There are indications that the nearly universal economic downturn is going to last much longer and probably get even worse than most economists and other experts will officially proclaim.
Have these abysmal economic conditions altered the way in which you cope with your alopecia?
In other words, do you now find yourself spending less on wigs, make-up, counseling, or perhaps even travel to distant support group meetings?
Or, do you now find yourself trying harder… Continue
Added by rj, Co-founder on August 28, 2010 at 2:00pm —
Oh geez. I am a bit of a nervous, indecisive wreck right now. I am getting a haircut on Saturday, my first since my doctor's visits confirmed my female pattern hair loss earlier this summer. Also, and more importantly than the doctor's diagnosis, this is my first haircut since I started obsessively analyzing my head with a hand mirror and identifying every thin spot. And to make matters more unsettling, I am working with a new stylist, and I have no idea of her qualifications for working with… Continue
Added by Kate on August 26, 2010 at 6:48pm —
well i had baby Eric 12 days ago.
a lot didnt go to plan at the end of my pregnancy.
as you may have read in my previous blog i have alopecia and lupus. i had a lupus flare (the doctors think) at 35 weeks, went into hospital with contractions, they filled me with panadine forte (codine) and the contractions stopped, i got an impacted bowel (ouuuuuuchhhh) and they didnt know it was an impacted bowel so they almost took him out via C-section but a MRI saved that, thank goodness i just… Continue
Added by Alison on August 25, 2010 at 8:55am —
In my last blog post, I lamented on my dad's critical view of me going outside without my wig on. Well, I have moved over 1000 miles away from home, parents and in with my best friend. In the last month I have noticed black hairs sprouting up all over! I must also disclose I have started to use the DNCB treatment that I'd previously gave up on. I had one tub of the stuff (expired, but, ah hey why not) and thought I'd use it up. Things look good!
Added by Margarita on August 25, 2010 at 12:47am —
This morning I was admiring my hair and how well I've managed to disguise the large bald spot on the back of my head by wearing my hair kinda wavy and messy.....when I spotted a new area on the crown of my head. It's about the size of a quarter right now and growing. :( I have been experiencing pain in the site for a while but couldn't figure out why. Now I know that it's related to losing hair. This really stinks! I will have to get really creative to cover this one.
Alopecia is… Continue
Added by Emily B on August 24, 2010 at 8:37pm —
hi guys! ive never written on here before, but ive encountered a very sticky situation and i would really appreciate your advice. ive been losing my hair for like 2 years but I keep it very private. over the summer the loss got so bad that I shaved my head and got a wig, which I now wear daily. i started nursing school in this wig 2 days ago, thinking i would be able to keep this a secret. well today I found out that it will basically be impossible to keep it a secret because we will be doing… Continue
Added by Lauren on August 24, 2010 at 5:10pm —
My name is Sara and I have alopecia. Alopecia is an autoimmune disease that attacks the hair follicles causing them to die and fall out. It can vary from small bald spots to total hair loss. Mine first appeared when I was ten years old. By the time I was thirteen, my hair had grown back and we saw no signs that the alopecia would flare up again. However, in September 2006, I found a quarter-sized bald spot. Alopecia had made another appearance. For months, hiding it was what consumed my life,… Continue
Added by Sara Wood on August 24, 2010 at 4:50pm —
So for years i dealt with my own hair loss - no big deal.
It went like this:
When I was 24 my hair came out in little round circles that my mom who is a hairdresser discovered - no big deal.
Over the next couple of years the circles would come and go - no big deal.
Then my eyelashes and eyebrows fell out - okay, still no big deal, I think.
Then all of the hair around my hairline fell out - the dermatologist told me this was called… Continue
Added by Sandi Walmsley on August 24, 2010 at 12:23pm —
I lost my hair twice the first time 10 years ago(45). It grew back about 2 years later dark and wavy, before it had been straight and blond. I really did not care, it was hair and I was happy to have it back. After a year of having my hair back it fell out again, then a year later I lost my eyelashes, I had the most beautiful eyelashes (I could not wear glasses they were so long). Then every hair on my body was gone,This was the change of life for me times 10. I am a polio survivor, asthmatic,… Continue
Added by Laurie Price on August 24, 2010 at 11:32am —