December 2010 Blog Posts (61)

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Reached my limit and it's just the beginning

Hi everybody. Brand new here desperately needing some support. I am a 22 year old girl living in an nonsupport household. I am the youngest of 2 girls in my home. My older sister is my mommy's perfect angel. Ballerina, singer, guitar player, actress, wonderful boyfriend, mom's best friend. I was the 2nd and an accident. I grew up pretty much alone but with people all around me. I was in after school programs because my parents didn't have the time for me, summer camps, baby sitters, past…

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Added by Lindsay on December 10, 2010 at 1:29pm — 9 Comments

Newcomer

Hi this is my second time with Alopecia. I had it 10 years ago, but not as bad as this time. I have now lost 90% of my hair and I am having a hard time dealing with it. I went online and bought a wig. I was so excited when I tried it on and actually like it. My husband, friends, and family were all very supportive and they said it looked great. My younger son he is 14 looked at me and said that it did not look good, because I did not look like myself. So the next day my awesome husband took…

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Added by zeida on December 9, 2010 at 9:29pm — 2 Comments

Help with doctors! : )

Hi everyone! I need some help with a temporary Doctor to perform cortisone shots very soon. I was wondering if any of y'all have any suggestions of a Doctor close or in Austin. I have a lot of hair and a solid Doctor, but he has gone on vacation and I have noticed some problem spots develop that can ruin all the progress I have been working on for years. I appreciate any help. Thanks so much!


-Sam

Added by Samantha Callaway on December 8, 2010 at 5:00pm — No Comments

Wig or not?

Well... I´ve, for a couple of years, thinking about getting a wig. Never had one before and it´s quite hard to know where to start. What kind of haircut and color, and where to get?



Finally I found a store in a town nearby where I will go next weekend. Maybe they can give me some advice about it. Then - if I decide to buy one - I only need the courage to wear it. By loosing my hair at the age of 2 I really don´t know anything else. Therefore I´m not really sure that I´ve got the… Continue

Added by Niclas Jacobsson on December 8, 2010 at 8:48am — 9 Comments

Treatments

What type of treatments have u had that had helped with the regrowth?

Added by Heidi verholtz on December 8, 2010 at 2:03am — 4 Comments

Was just diagnosed.

Please I would like some input on it.

Added by Heidi verholtz on December 8, 2010 at 1:59am — No Comments

Final decision has been made...and need some help too

Sorry it has been a while since I logged on...it has been a rough decision making time.

Well I have decided that after my friend's wedding and reception(the first two weekends in January) that I am going to get a wig. My alopecia has been getting worse and I am done trying different medications to try and stop the inevitable. I don't want to keep trying different meds that are going to possibly hurt something else.

So I have decided that I am going to finally make the move to a wig.… Continue

Added by Julie G on December 7, 2010 at 1:27pm — 8 Comments

Dealing with mean people

I've always said I needed the bumper stick that says, "Mean People Suck". Not to get too into the whole background of the situation, but my step-father has a not so nice daughter that lives in Texas (we live in Virginia) who only talks to him when she needs money. My step dad Rick has had enough of it and told her so yesterday. Now I've only met his daughter 2 times in person, but we have texted off and on for a few years. I lost my dad in 2007 and was kind of pushing Rick to have some kind of… Continue

Added by Tamara on December 7, 2010 at 10:12am — 14 Comments

Is it possible to have sex with your wig on?

Hey I am freaking out, this might sound weird but I am thinking to have an affair NOT a relationship that is why Telling him I am almost bald is out of question. But I want to go for it. My main issue is is I can wear a wig during sex. Ladies Have you?? If it is a non adhesive lace wig where you could eventually use tape or glue will it be enough for a night?



Any ideas on how to handle it, maybe I should tell him not to pull my hair? or it will be too obvious?



Please help… Continue

Added by Grace on December 7, 2010 at 1:20am — 26 Comments

Facial numbness

hey guys, I've been having issues while wearing my wig with facial numbness has anybody else had any issues like this?

Added by Mary Felitte on December 6, 2010 at 8:37pm — 1 Comment

I am in LOVE

Just wanted to share this little bit with my alopecia family,



I AM IN LOVE !!!



Now its not what you think.....I didnt just meet someone. Actually I known this person all my life.

ITS ME !!!!

Silly I know but when you really stop and think about it, its not. As all you probably experienced in this crazy journey, we have many moments where we are so consumed with our hair loss that we do see ourselves anymore. All we see is alopecia.

Well yesterday… Continue

Added by Bald and Fabulous AKA Terri on December 6, 2010 at 3:37pm — 5 Comments

Acceptance is the key!

Recently i was diagnosed with AA and i have to tell you i was devastated at first.However 6 long months into it i think i am slowly starting to accept it a little better.I know that every case is different and i hope my hair comes back soon. I HAVE FAITH.Thank you to everyone.clare

Added by clare majka on December 5, 2010 at 7:34pm — No Comments

My update

4 months after my hair fell out into crop circles, and 2 months after my diagnosis, I now have about 1/2" of regrowth. Initially it was impossible to see, but about 2 weeks ago, I noticed it now has color to it again. It is still very hard to see though. I measured my overall hair length the other day, hoping to chop it off before Alopecia could take it, and donate it again, but it is still not long enough for the required 10".

After 1 1/2 months of absolutely NO hair loss at all, and… Continue

Added by Diana Carter on December 5, 2010 at 6:36pm — 4 Comments

Need alopecia model in St Charles, IL, Feb 25-27th . . .

Hi . . . I am exhibiting my hats and scarves at the Working Women's Survival Show in St Charles, IL the weekend of Feb 24-27. I have a speaking engagement to talk about what it is like to lose your hair, and want to do a brief on-stage demo. I am looking for a female model to be a naked noggin . . . you must be comfortable without wigs or hats, since I will need to change the looks around.



I work with women who have alopecia OR who are suffering hair loss from chemotherapy, and… Continue

Added by Kari M on December 3, 2010 at 5:10pm — 2 Comments

The economics of hair

Have you thought about the costs of maintaining hair? I have been maintaining a head of hair all my life, without complaint either, because good hair is a fabulous asset and always seemed worth the effort. But recently, with diminishing hair, I have been exploring the upsides of being hairless. One big upside, money savings! The economics of maintaining hair are appealing when you plot it all out. Take for example my hair maintenance routine (if I was being maximally careful... of course… Continue

Added by Kate on December 3, 2010 at 1:00pm — 9 Comments

How to apply false eyelashes

Hi everyone! Wanted to type this up because I see a lot of questions about this, and it took me about 2 yrs to get it down! These are my personal preferences. I like to use Revlon self adhesive lashes, and DUO glue. They can be found at CVS, and most other drug stores. The reason I use those lashes is A) extra glue on top of the adhesive really keeps these in place. I have kept them on up to 10 hrs, even cried in them ( wedding) and they never budge. B) Because of the adhesive, the lash line is… Continue

Added by Lee on December 3, 2010 at 2:59am — 2 Comments

New hurrr

Ahhh its been a while since i posted here..lazy lazy LAZY!!! i like this community, i should be more active. Hmm i think i am getting a bit of hair growth, im not too worried, ive accepted my alopecia now and sometimes dont really care if it never grows back! I also have a new wig, its human hair, and like a honey blonde, not sure if th colour is right for me though...might need to do a little colour adjusting..

I have been seeing a dermatologist(sp) and he prescribed me prednisone..it… Continue

Added by Mjay on December 3, 2010 at 1:00am — 4 Comments

Update on my college freshman

My daughter has had AU for over a year now and she has grown so much! She told me today that she told one of her new close friends and she said, "yea I already knew but didn't want you to be uncomfortable." She said the girls that know don't care and the boys just think you are gorgeous. This was a relief for her to reveal this since she never really knew if her new friends knew are not. I think this will help her courage to tell people in the future. She has been on sulfasalazine and has good… Continue

Added by Karen Smith on December 2, 2010 at 8:50pm — 1 Comment

Apology to my alopecian sisters & brothers - A lesson learned

I owe my Alopecia World Sister's & Brother's an apology, for I have been absent for over 2 1/2 months.

I pulled a typical Cancer (my sign) & withdrew into my shell.

During Sept to current I was dealing with a Mom who sadly has dementia, but fortunately I have my sister, Kathy, we lean on each other. On September 23rd I lost one of my oldest & dearest friends to complications to diabetics. Patty as I described her to Heather, was an extraordinary individual. She helped me… Continue

Added by Pamela Rosse on December 2, 2010 at 3:30pm — 4 Comments

Hi to all my alopecian friends!

Hello All, I just wanted to give an update on my life and progress lol...I am sorry I have not been on much, I have been trying to focus my time and energy on finals cause they are kicking my butt, but I am doing well...Not much change on my bald patches as of today except for regrowth in the middle of all, but one of my patches..I have also discovered that since my hair is starting to grow back in the patches that I have severe diffuse shedding now which I hope is because my telogen hair is… Continue

Added by Trish on December 2, 2010 at 12:30pm — 6 Comments

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